Support thread for those with hyperemesis/bad ms

[Swaliswan]

I know that there are a few of us struggling on here with hyperemesis. Anyone fancy joining a support thread?

A little about me...

I'm 10 weeks pg with dc2 and am on stemetil for the constant sickness. Sometimes it works, sometimes it doesn't. Today is a bad day. I can cope with the HG but I do get a bit irate when people tell me about their 'miracle cure' as if I haven't already tried everything

I am so fed up Feel like I'm never going to get past this stupid sickness and nausea..

Hi I?m having a bad day too feel like crying, tried to find a number to call for someone to speak too but had no luck. There are no support groups or help lines for this! Managed to speak to a midwife after finding a number on one of my forms who said it?s just something you have to put up with. My doctor just keeps trying me on more and more pills. My sickness is starting to follow a pattern now (most days) so that?s good in some ways. If I take things easy in the morning and stay in bed can manage some cereal first thing if I don?t move it stays down, if I have to get up it does not. Late morning I?m not too bad so I?m trying to nibble on things but I?m getting worried as I have been put off so much food from being sick with it. I really have to force my self to eat small amounts of anything. I don?t know when I?m hungry anymore I just feel sick all the time. In the afternoon it really kicks in and I feel awful with shivers and head aches and can?t keep much down.
I?m worried I will get to a point where I cant eat anything, I'm managing to drink water but cant face anything else. Being at home on my own all day does not help but I can?t face going out.

I just can?t believe there are help and advice lines for every thing but not for HG it?s so bad does nobody take this seriously. I?m so fed up about moaning about this all the time and I?m sure my friends and my husband is, I just wish it would go away.

Some good news I?m 12 weeks now had my scan the baby was bouncing around looking very happy and is very healthy.

Its times like this when I wish my family were closer, I feel trapped at home on my own, it really puts me off having anther child wanted 3 ha ha!

Hi Kayme,

Oh you poor thing. Well you aren't alone, I am having a really depressing day too. Woke up, threw up. Ate a chocolate poptart and drank some fresh OJ then half an hour later threw that up really violently. Since then I've sat on the sofa feeling just dreadful, trying to do some work as I am meant to be working from home... Head just feels spacey and mouth keeps filling up with saliva, so disgusting.

I am home on my own too and it is really tough. If you want to give me your email address I would be happy to email/talk to you. I agree that it is so crap that there's nowhere to get help. I have considered ringing the midwife today to say 'when am I going to get better?'

I just found this chart on HCG levels www.justmommies.com/articles/hcg-levels.shtml
And if you look the rate seems to drop quite a bit after 16 weeks, which might be why people tend to improve then. I am just desperate for some answers and no one seems to have any.....

Cosmo x
15+3

oh please can i join... I am 19 weeks and still so sick and so tird I FEEL JUST LIKE EVERYDAY is just atackle and some days I just wnat to curl up and go to sleep. I have not read all threads but going to read a few now as intersted how you have improved.

The problem with me is i feel sick all the time, hardly eat anything and are exhausted. I do not even have the energy to tackle basic household chores.

Thanks Cosmo it does really help to know I?m not on my own. I am lucky I?ve not had to go to hospital but I still feel so rubbish! I?m sure work thinks I?m skiving!

Don?t know how to give you my email without writing it on this page; it will see if I can set it up so I can be contacted.

I?m trying to eat a piece of toast with beans probably a really bad idea, been sick with it before so seems slightly more appealing than anything else.

Thanks, your not on your own, we could be sick buddies!

Babyalfie,
So know how you feel, I have jobs I should do but just cant muster the energy. I have found if I try to do too much it just makes me worse. I?m so bored of day time T.V!

I had beans on bread yesterday - managed to keep it down but didn't really enjoy eating it tbh. I will set up a gmail account and let you know the address. My email has my real name so best not to put that up here - you never know who is reading!

BabyAlfie - course you can join! 19 weeks and still being sick? Oh dear, that is not good....

I am so sick of TV I have resorted to Classic FM!!

Think I might write to 'this morning' or something, feel so annoyed, want the world to know about this. How can so many women get so sick and people don?t know. I had no idea about this before.

Me either - it is shocking isn't it?....Maybe we should set up a HG support group since the other one isn't running anymore.

Here's my new email: Feel free to vent, rant, rave whatever.
All the good names were gone so I got stuck with the below:

[email protected]

Hi guys, a quick gatecrash for Cosmo.

Haven't been on MN really for a few weeks (so busy at work right now) but so sorry to see you are still suffering.

If it is any consolation at all I was still being extremely sick up till 16 weeks (ended up on anti-emetics but avoided hospital) but it started to improve between 16-17 weeks. Am now 18+5 and so far this week I have only been sick once!!! . So I know it doesn't always go away (so sorry for everyone else still suffering, I don't want to seem insensitive) but it might just start to improve soon.

Just trying to offer a possible ray of light.

Hi Playing! So good to see you. Oh I am so pleased that you seem to be over the worst. I hope I am the same and pick up after 16 weeks....so many people seem to so I am pinning all my hopes on it at the moment.

Pregnancy sickness really is one of the most horrible feelings ever. I think I'm getting a surrogate for the next pregnancy

Yes I have decided pg is def not what is cracked up to be!!!

Hi! May I join pls???

About me...
First pregnancy - HG - im Torecan and B1, B6 and B12 for 10 days - helped to reduce my vomiting to 2-3 a day, so I was happy...and able to work all my pregnancy long. Very healthy son delivered at 38weeks

Second pregnancy - HG - Torecan not on the market anymore - then hospitalized for 3 months, nurished only artificially, and...when I begun to feel better : misscariage (24 weeks)(It was a girl)

Now, third pregnancy, for sure with HG... I tried an online drug store where I found my Torecan and hope to get it...before being seek. My seekness didn't start yet, I am just 4 weeks pregnant...so it will come very soon...

I have read a lot about Torecan, about its safety during pregnancy... and is categorized C?I don?t know?I used it in the past and was safe and effective... I am also afraid not to end up losing the baby...it will be a disaster... Nobody told me the reason for which I lost my second pregnancy, but I read I could have lost it also because of HG...which at long term could affect the baby...

Big hug

Hi to all, and firstly massive sympathy to you all, this really is the absolute pits isnt it. I am coming up for 10 wks pg and for me the sickness started at 3 weeks! Just severe nausea to begin with which quickly turned into throwing up and eventually dry heaving as i just wasnt eating at all. Truly awful, i had many thoughts i am not proud of including termination just to get my life back. I have been hospitalized twice for severe dehyrdation and given various drugs to try including metacopromide (spelling?) cyclazine injections and pills when i was sent home from hospital, where i quickly went down hill - on my last admission i refused cyclazine and so they told me they would try a last resort drug which wasnt often given as its very expensive!!! Its called ondandestron and i had it by injection whilst in hospital as i couldnt keep anything down. By the next day i felt much better than i had in weeks and even fancied nibbling on something!! a real breakthru for me. I was sent home with the pill form but the next day had a terrible day again and was once again totally depressed. However, since then, i have continued with the pills and have moments thru the day when i feel more myself and now manage to drink (the only thing i can stomach and actually quite like is Lucozade Alert Lemon Zing flavour) i think this and the pills are helping me to actually function in some sort of way that gets me thru the day. I have had some terribly low days in the past few weeks and can honestly say its been the worst experience of my life. Although my sickness is still with me i can see the light at the end of the tunnel and feel like part of the living again. Like many others in our situation, i worry very much about taking meds at such a time in my pg but at the same time i know its the only way i can get thru this. If you are reading this and have almost lost hope, maybe ask your doc/midwife about ondanestron, they may be reluctanct to prescribe for cost alone but dont let that stop you asking, it has made the difference to me that i am out of the spiralling despair i have been in over the last 2 months. Good luck to you all. X

Hi, not read through, was about to log off and thought i'd join so i can find you tomorrow. I've just got out of hospital with hyperemesis.

This is my 3rd DC, Had hyperemesis with my DS (dc1) and not a bit of sickness with DD (dc2) so didn't actually expect it to get me again!! Silly me!

Will join myself properly tomorrow!!

Hi Ladies.

Just wondering how everyone is getting on?

I'm 12+4 now and sickness is worse than ever. I had acupuncture on tuesday and had no sickness on wednesday/thursday but have had terrible sickness since then. I'm going back for some more acupuncture tomorrow though so maybe I'll get another good couple of days. I've been told to not go in to work this week so I'm going to try and rest.

Hiya... didn't come back and introduce myself properly!!

I'm 23yo, have 2 DC's, DS is 3.10y and DD is 2.6y.

I'm pregnant with my 3rd DC, and suffering with Hyperemesis for the 2nd time (had it with DS too).... With DD i wasn't even sick once, never even felt sick so wasn't sure if i'd get it again, more fool me!!

I was on maxalon syrup (called metrochloride or something but can't remember and can't be bothered to get up and check!!) from 4.5wks pg this time, GP wanted me off it at 9wks, so i did, had a couple of good weeks where i thought i'd almost cracked it, i was only being sick a handful of times in a morning... Then at about 11 weeks i was also being sick after meals etc...

Last thursday i was admitted to hospital with severe de-hydration, had been throwing up tons of blood all weds night, By thursday when i was admitted i'd had only 3 meals stay down in the last 7 days, and had not eaten anything at all for 48hrs, and had no fluids in over 24hrs...

Was on a drip for 2 days and drinking lots of fluids to get my keytons back to normal... I've lost 1.5stone off my pre-pregnant weight, and have gone from 10 weeks pregnant and almost filling a size 14 maternity, to not even fitting in my normal size 14 clothes, my bump is still very predominant and today i'm in a size 12 dress!!

I've only been sick once since thursday night with the help of Cyclazine, but am feeling very light headed on it.

I'm feeling much better in myself now, and hope that it wears off soon... still feel grotty most of the time, but have learnt to cope with that!! haha!!

With my son i was admitted twice but was never prescribed meds to have at home then. So I can definitely tell the difference.

Hope you're all coping ok, and have been getting the care and attention you deserve!! xxx

oh forgot to add, i'm 13+4 today...

heya all

not been on this thread for a while. How are you all doing?
glaskham - you poor thing, it sounds awful, loosing all that wieght.

I still don't know how I managed to put on weight when I was being so constantly sick day and night. I gained 6kg from week 5 - 14 but haven't gained much more since then (18+5 now). My tummy has popped out more than I'd expected it too but I am finding it hard to connect with my baby and feel happy.

I'm not as sick as I was, just a small puke in the morning normally. I have 5 or 6 fine days where I feel a bit ropey and sometimes refluxey but eat OK and seem chirpy and then get 3 or 4 days of exhaustion, food aversions and being sick and I feel like it is all going backwards and down hill. I'm not sleeping great either. I start to get teary and those awful thoughts about wanting my life back...
I've taken the day off work to rest and see acupuncturist. I've also made an appointment with a counsellor to talk it through...

I'm hoping for a miracle at week 20....
I don't think I want to be pregnant ever again...

hey ladies

No posts on here for a while, how is everyone. has anyone experienced the miraculous turing of a corner?

I am still being ill every now and then. the owrst hing is I can't seem to sleep very well. I am so tired in the day that it is hard to do al the eating needed to keep the vomiting at bay.
Does anyone else get cycles of better days followed by not so good days? I know I'm not as bad as I was but have cried every day this week.
I Spoke to midwife who is asking about emotional issues, why can't she just understand that it is so exhautsing and difficult to be positive when you are so tired of being sick! She keeps sugestig going back to maxalon, I don't know. often I am sick without warning or frst thing in the morning before I have eaten. I might take one tonight as at least they used to make me very sleepy when I took it.

Good news is I don't have the gastro bug anymore but my guts are still dodgy!

Hope others are keeping it together a bt more than me.
xx

Hello Everyone.
I have one child, she's 3 and am around 10 weeks pregnant with my second. I had HG with my first and life was hell. I stayed in bed from 5 weeks til 17 weeks, other than the few hospital visits I had for IV fluids and Cyclazine injections. It was probably the worst time of my whole life. I couldn't go to work, so I had to suffer financially as well as everything else! People thought I was over eggagerating and just had bad morning sickness! No-one understood!! My husband and I said we'd never do it again, it was too difficult and put a strain on our relationship.
But here we are again, baby number 2 on the way and I've already been admitted to hospital once, I can't go to work and it's nothing like the first time. I have to make myself get up and I have to show my daughter I'm fine as she's such a worrier and it's not fair on her to see me suffer.
I hate going to bed because I know when I wake up I will feel like dying. I put my alarm on so I can get up in the night to eat a biscuit, just so my bellys not empty when I wake up. My belly can't be empty but it can't be full, I need to keep it in between which is impossible. I'm too tired from having no goodness inside me, the vomiting and the medication to have to think about what I'm eating and drinking. It's the worst thing in the world to have to feel like this when you see others having a beautiful 'blooming'pregnancy. And it drives me crazy when you go in the hospital and they just constantly ask stupid questions. They can see you're nearly dying, they've tested your wee, can tell you're severely dehydrated and they still need to know the amount of times you've vomited in the last 24 hours!!
Sorry to go on but I really don't know what to do anymore. I'm tired, sick and wishing I was someone else, even if it was just for a day!!!!

Hello I have just seen this thread and want to offer all my sympathy. I had HG with all 3 of my pregnancies, in hospital on drip with 2 of them. Absolutely ghastly but now through to the other side and glad I went through the hell to have what I have now. I don't have time at the moment to read through this whole post so apologies if I repeat anything but firstly, I was a member of a forum on www.bloomingawful.com, a British website dedicated to hypremesis and I found it great for support and access to the latest information. Also there is an American website on Hypremesis here: www.hyperemesis.org which has the latest information as America is more up on the condition than the UK.
Also in london there is a specialist clinic at the Royal Hospital London.
I really really feel for you all and if any of you are in london maybe I can help with names of sympathetic obs etc. I will post again later but got to go back the sourse of this trouble to bed.

oh my god, I just had a quick glace at the other posts, has the blooming awful website really shut down, that is dreadful. Why? It was one of the only resources for this condition, that meakes me furious . Can anyone tell me what happened?

Hi Ladies!
I was in tears finally finding a place where people would understand what I've been going through. This is my 2and baby and the first is now 9. I had HG for the first pregnancy, but this pregnancy is such a worse case/time. I have been in and out of the hospital 6 times in the last week and I can't seem to get anyone to help me. All they do is see my diagnosis on file and give me straight IV fluids and some medication starting with an m (?) They give me a couple of bags of fluids and send me home. The only medication they say I can take at home is Diclectin, which I keep trying to tell them doesn't do a thing for me. I've tried gravol, all that does is make me more dizzy. My arms are destroyed and covered in bruises from blood tests and IVs and I'm at the end of my rope. To add to my distress, my son, who is ADHD (extremely) and at the maximum doses after 10's of different medications is still a major handful, and my fiance, daddy to this one on the way is at the end of his rope with having to take care of the household and my son and still maintain 12 hour shifts. Almost every day we sit and cry together because this has been going on for a month and a half straight now and we're at the end of our ropes. I keep trying to remind him that this is a phase and that we'll get through this and everything will be so great once we get through this, but he is so overwhelmed I can tell that much more of this and he'll be out the door. He's a wonderful guy and such a great dad and friend. He's just completely overwhelmed from getting off 12 hour shifts just to spend the rest of the day in the hospital with me and then back to another 12 hour shift just to have to go through it all over again. He's having a terrible time also watching me go through such a horrific time with what seems to be no help from the doctors. I can't get in to see my regular doctor until he gets back from a very very long vacation in a few weeks. Does anyone out there know what I can do to get better or some relief? And do any of you know any guys that have been through this that could offer some advice to my wonderful man? This pregnancy was supposed to be such a beautiful thing for our little family and so far, all its done is tear us apart and cause so much distress and mess. I am so sorry for all you other moms that are going through the same thing. We should be getting medals for living through this but I'm hoping instead of a medal, the baby will be more than amazing. Is there hope out there anyone? Thanks for listening.