PIERRE ROBIN SYNDROME

[Natalie1984]

hey does anyone on here know anyone with this condition???

They thought my cousins ds had this when he was born. He had a cleft palet and his chin was very far back. They then decided it wasnt Pierre Robin's and left it. Since then he has had his cleft palet mended but has now got middle ear disease from getting so many ear infections. I am sure they should have done more tests.

His palet is fine now and you wouldnt know it when he talks. He is having his ear operated on in a few weeks. He is now 6 years old.

Do you know someone with this?

I know a LO who the docs think probably has PR - why do you ask?

i looked after children with this syndrome as part of my old job

I have Pierre Robin Syndrome.