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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Bad 12 week screening results just need to talk it through with somone whose been there......

135 replies

feelingbadtoday · 24/07/2008 16:27

I'm 38 wen't for my 12 week screening test today (nuchal fold+bloods) and was given a 1:2 results - I've been put down for CVS hopefully in the next week. I'm blessed that I have DS but this came as a such a shock - I fully expected my results to show a higher risk factor than when I had my son three years ago - I was even mentally prepared (I think!!) for a risk factor that might havve put me in the bracket for being offered CVS but not a 1:2. I just feel in shock at the moment - this preganancy has already been difficult in that I have mentally had probelms getting my head round it (It was planned but when I found out I was pregagnt it bought back lots of bad memories of a difficult birth with DS and a diffult few post natal months) - I can't stop crying and just feel a bit of a mess...Has anyone been there how do you get a grip/get it in perspective - I'm sorry if this isn't very coherent and well written its not been the best of days....thanks to anyone who responds.

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Are your children’s vaccines up to date?
LadybirdLorax · 30/07/2008 20:05

I do so hope the results come back well for you.

A ray of hope is that NF and one set of bloods are not madly accurate and often result in false positives. Every hospital should offer the integrated test (nuchal fold, two separate blood tests looking for six markers, not just four, taken at 12 and 15 weeks), this is 95% accurate and cuts the false postives right down. At the moment only a few hospitals do.

I have everything crossed for you. I'm in a similar position myself in that I'm in between blood tests. I remember the wait with DD too, I didn't realise how tense I was til I got the (favourable) results and crired all the way down the street.

feelingbadtoday · 31/07/2008 06:34

Thanls Ladybirdlorax - mine waas only a single blood test - at least the CVS will give us a definitive answer now. The hospital didn't get the results yesterday (they did say it was only a small chance they would be in late Wed.). Woke up in a bit of a blind panic in the night but after spending about 2hrs talking to DH fell a bit (?) calmer this am.

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feelingbadtoday · 31/07/2008 07:01

Just realised how many typos were in my last message - need to put my glasses on and get some sleep!!

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mslucy · 31/07/2008 08:40

good luck fbt.
I am really am keeping everything crossed.

The good news for pregnant women in the future is that they are developing accurate diagnostic tests that can be done with a single blood test - meaning the end of all this fannying about, stress and misery.

I gave them some blood and a pot of wee when I went to UCH to help them with their efforts!!

feelingbadtoday · 31/07/2008 09:25

Just to let you know that i got the results and they are not good - can't really talk about it at the mo - going to see the obsterician at lunchtime. Just can't believe its happened. Thanks to everyone who gave me their support

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smartiejake · 31/07/2008 09:30

Oh FBT

So sorry. {{{{{}}}}}

margoandjerry · 31/07/2008 09:34

I'm so sorry FBT.

I've been through the exact same thing. I couldn't speak either, to anyone.

I am here if you need anyone to talk to - I went into a shell while I dealt with things but in case you need anyone, please don't hesitate. I don't know about CAT or anything but can give you an email address.

thinking of you and sending you strength.

RozzieR · 31/07/2008 09:36

So sorry to hear it FBT.

Like i said before - don't feel rushed into making any decisions. Get all the info you need first (although i'm sure it's hard to think straight).

Will be thinking of you in the days ahead.

ilovemydog · 31/07/2008 10:14

I am so sorry.

But am relieved that you are speaking to the doctor about the results and your options, and that it's being done quickly.

You will get through this.

Chooster · 31/07/2008 10:15

So so sorry FBT - as has been said, take your time, get all the information and assistance offered to you and only talk it through with people you know wont be judgemental or overly emotional. You dont need to be propping anyone else's emotions up at the moment.

As always MN is here and, like Margoandjerry, I've been where you are too and its a horrible time. If you need anything then just let us know and we can either share our stories or provide any support you may need.

gem1981 · 31/07/2008 10:25

FBT

I have not posted much on this thread but I have been watching out for you.

Just wanted to send you my very best wishes you have been in my thoughts over the past few days.

x

gem1981 · 31/07/2008 10:25

FBT

I have not posted much on this thread but I have been watching out for you.

Just wanted to send you my very best wishes you have been in my thoughts over the past few days.

x

madmarriedNika · 31/07/2008 10:53

FBT- I am so sorry, have been following this thread but didn't feel I could post on it. Like others have said you will find a way to get through this but be gentle on yourself and give yourself time.

Thinking of you and your DH xxx

Pinkchampagne · 31/07/2008 10:57

I'm so sorry, FBT.

fedupandisolated · 31/07/2008 13:04

Thinking of you FBT. Have been following this thread and feeling for you.

As others have said - don't be rushed into any decision - unless that decision is the one you already know you'll make.

Be gentle with yourself and DH.

mslucy · 31/07/2008 14:54

oh fbt I am sorry.

oxocube · 31/07/2008 14:59

I'm so terribly sorry for you all FBT.

lou031205 · 31/07/2008 15:09

Feelingbadtoday - I am sorry that your results aren't as you hoped. I really hope that the consultant is able to give you an idea of all your options, and that you can make a choice that you are at peace with.

elkiedee · 31/07/2008 15:14

Sorry FBT, this must be a hard time and I hope you can find the support you need in making this difficult decision, here and elsewhere.

feelingbadtoday · 31/07/2008 16:00

We've been and seen the obsterician and after much talking - much of which started before we got the results we have made a decision not to carry on - its been very hard and all I can say is I think it is probably the right decision for us and I fully respect that it wouldn't be the right decision for others. All I can say is that after nearly 20 years togther DH no and strengths and weaknesses and know in our heart that we probably couldn't make this work. Like I say I fully respect those of you that would make a different choice all we can do is hopefully make the right one for our family.

I probably won't post again but just wanted to say thanks to all of you who gave me encouragement and helped me deal with the wait for results by keeping things in perspective - it really helped knowing I was not alone in this experience.

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madmarriedNika · 31/07/2008 16:07

Just wanted to wish you the very best for your future, I am sure it will be very tough over the next few weeks but glad your DH & you have managed to come to an agreed decision which you can face together. I am just so sorry you had to make such a decision.

Thinking of you x

fedupandisolated · 31/07/2008 16:46

Wishing you both peace. Horrible decision to have to make - but the right one for you.

So sorry you had to be in this position. Thinking of you.

margoandjerry · 31/07/2008 16:52

FBT, I went your path too. It's awful but you will get through it and it sounds like you have all the right support to get through it together. If there's anything you need to know from someone who's been there, please let me know.

In the mean time, hold on tight to your lovely family and know that you will get through and life will be ok again x

ilovemydog · 31/07/2008 16:59

Feelingbad, am sure you've had all the medical advice etc. My sister had Edward's (mosiac). her life lasted 6 years and during that time she was incredibly disabled - both physically and mentally.

I asked my mother when I was going through amnio, whether she would have wanted the information that my sister had a chromosomal abnormality or not.

She said that she would have at least wanted the information....

Hope you come back later and post - maybe under a different name....

lou031205 · 31/07/2008 17:06

Feelingbadtoday you are going to need all your strength to get through the next few days, weeks and months. Try not to dwell on what others may have decided in the same situation. If you are certain of your decision, those thoughts will not help. I hope your DH is supportive, and that you can recover soon.

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