Bad 12 week screening results just need to talk it through with somone whose been there......

[feelingbadtoday]

I'm 38 wen't for my 12 week screening test today (nuchal fold+bloods) and was given a 1:2 results - I've been put down for CVS hopefully in the next week. I'm blessed that I have DS but this came as a such a shock - I fully expected my results to show a higher risk factor than when I had my son three years ago - I was even mentally prepared (I think!!) for a risk factor that might havve put me in the bracket for being offered CVS but not a 1:2. I just feel in shock at the moment - this preganancy has already been difficult in that I have mentally had probelms getting my head round it (It was planned but when I found out I was pregagnt it bought back lots of bad memories of a difficult birth with DS and a diffult few post natal months) - I can't stop crying and just feel a bit of a mess...Has anyone been there how do you get a grip/get it in perspective - I'm sorry if this isn't very coherent and well written its not been the best of days....thanks to anyone who responds.

Thanks all - the midwife gave me a contact for ARC - I might give them a call tomorrow. Am gong to go bed now - knackered whilst still on an adreneline rush - hope tomorrow things will seem a bit more objective.

Let us know how you get on Feelingbad

Didn't get much sleep last night - just going to try and keep busy today - am just praying that I don't have to wait to long for the CVS - its the waiting/limbo thats killing. My thanks to all of you have posted - I'll let you know how things go.

just to let you know that I am thinking of you feelingbad

You really shouldn't have to wait too long. As I said mine was the following day, its just too cruel to leave women much longer than that. My care was absolutely fantastic throughout the whole time and I really hope you will be able to say the same - And have a happy outcome. Will be thinking of you...

Still waiting for the hospital to call back - I know I'm impatient - if they haven't called by 3 I'm calling them - I can't cope with just sitting and not doing anything (welll about this - I've actually kept quite busy this am taking DS out and doing house stuff - if he has his nap I'm going to try and get some kip as well).

Call them!

I've always called for results!

Fingers crossed!

Ok - they called (DH took the call) the earliest they can do it is next Thursday - which is almost a week away - I don't think I can stand this its completely doing my head in can't concentrate/can't sleep/keep crying - just a bl**dy mess (keep having irrational thoughts about just having a termination - please don't judge me - I can't cope with that - and I know its not rational - just the way I feel). DH has asked if we can have it any earlier if we travel say to another regional hospital - they said they would investigate. Don't know whether to call the Doc and just get myself signed off work next week - just so thats one less thing to worry about - just don't know where to go - just want to turn the clock back 48 hrs and go back to where we were. Sorry to ramble just feel in a very bad place at the moment.

I would call them before 3 pm to see if you have an appointment fixed.

Noone should judge you about thinking of a termination. Sounds normal to me. Sorry you are in such a bad place.

*ring the doctor and chase them to find another hospital
*consider doing it privately if this is an option for you. Your gp should be able to tell you where to go.
*be careful taking time off work, you will drive yourself stir crazy at home

I know what you mean wanting to turn back the clock. I had that when my lo was very ill in scbu. Kept on thinking of travelling to meetings in London and other things that suddenly seemed so wonderfully innocent

No one will judge you, honestly.
Sorry you are in such a bad place, I really feel for you. The waiting is unbearable I know.

I don't understand - week for the results?

Next Thurs is the earliest they can do the test - which means if I get this right I might have some prelim results about 3 days later (Mon/Tues the following week) but the full rsults could be another 18 days - that could be almost a month from now before I know finally!! (if I've understood right) by which time I think I will have well and truley lost the plot.

Hi - so far you have a risk factor but not a definite problem? Take it one day at a time and don't get ahead of yourself. You have to wait to find out IF there is a problem, not to to find out what the problem is. I do have personal experience of this, and you need to be guided by the hospital. BTW, it's sometimes helpful to restrict who you talk to to just a few close friends (and mumsnet of course!)

Oh I see. Totally misunderstood!

Even if you do go private, it would only save a couple of days? Or would this be worth it?

I don't know about CVS, as I've only ever had amnio, but you can pay to get preliminary results sooner.

Could you ask about this?

You are right that the results can take a while, which is why I think they need to speed up the test date. You are obviously doing all you can about this and escalating it. It may be worth contacting the people at ARC and see if they have any bright ideas about how to speed up the test date.

I know this seems crazy at the moment, but your anxiety will ease up a little as the time moves on and you will hopefully find yourself able to think and talk calmly about the possibilities. Its still so raw and the time when everything was rosy was still only a day or two ago, so give yourself time. In my particular situation it took 10 weeks to confirm a diagnosis BUT this was because my babies condition was very rare. You will undoubtedly be much quicker than that.

As has been said as well, try not to talk to people who you think may be judgemental. I remember a conversation with my mum only hours after finding out we had a high risk problem, and she said "You would terminate wouldn't you? We couldn't manage with a SN child in the family". I was so angry and upset about this at a time when my thoughts were all over the place anyway. It stopped me speaking to her about it, and we still haven't really to this day .

Sorry, I should clarify, it didn't take 10 weeks for my CVS results to come through, they have a fairly static time-line I think.

At last some better news - I can have it done Mon am if I go to Exeter (about 1hr away) for the first time in the last 24hrs I feel a bit more positive - as they I'm going to start getting somewhere in terms of having the facts and then being able to make informed choices.

Great news!

Can they do preliminary results? How long for full results?

Is DH going?

That sounds a bit better. The prelimary results are the key ones.

They think they may be able to give us some prelim results on Monday (but thats not confirmed) otherwise it should be I think three days. I fell like I've taken a step forward from yesterday - I still feel pretty rough but I think I feel less of a complete muddle. Can I just say thanks to all of you for your kind words and comments it has/is really helping - espcially to keep it some form of perspective.

hi there feelingbadtoday.
I have to have CVS next week too - so I'll be there too. You are most definitely not alone.
I'm 37 (38 next month) and have a son aged 3.
I was considered very low risk with him - had amazing bloods which said odds of 1:50,000. Didn't get nuchal then.
Had 12 week scan yesterday afternoon which gave result of borderline nuchal - went into tailspin of paranoia and spent most of yesterday/today in tears.
Bloods came back at 4:15 - they were very good, but risk increased to 1:200 by nuchal (under 1:250 cut off point).
Going to UCH next week for CVS and second nuchal scans - nuchals can be very hit or miss, esp if not carried out by a specialist. A friend of mine had a similar experience with one - hearing that made me feel less terrified.
have gone from very black to just a bit shaky.
I am glad I am having the CVS as it removes ambiguity and I find ambiguity very scary.

hello,i had a bad result at 12 weeks bloodtest too.waited ages for the results,or at least it seemed like ages anyway.I had he amnio done,they couldnt do it first,was due to go on holiday that day.i couldnt drive.went to blackpool for a week,then i had to come back and go through it all over again.Thankfully she got the fluid straight away.i have to say i didnt enjoy my holiday thatmuch.it was an awful experience.the result came back fine.now i am 37 weeks pregnant and it seems i have a very high level of fluid,all sorts of things have come to light that could happen.the cord could wrap around him,he could detach from the placenta,they are going to leave me another week before they scan me again,tuesday i have to go for a bloodtest to rule out diabetes in pregnancy.its unbelievable.then last night i went on the net,googling,big mistake.couldnt sleep worrying.glad this is baby no.2,not having anymore,37 in a week or so.my heart goes out to you.th

blood ok for me, just nuchal that was crap.
I sometimes think it's a case of too much info - maybe if I'd had a nuchal with ds that would have come back dodgy too.

I'll never know.
Thanks for support - pregnancy is FECKING scary and I tell you I am never doing this again!

I did not conceive easily and had to have IUI which was a real treat ( if you consider a hot date with a turkey baster and loads of lovely injections a treat).

And now this.

Hopefully it will all be worth it.

I just wanted to join in the offering you support. I so hope the results are what you are hoping for.