Edwards and Pataus Screening

[suchandsuchandsuchandsuch]

Hi, yesterday we receive that call telling us we were high risk for downs, Edwards and Pataus.

I went straight up to the hospital for further blood tests which are sent off to the genetics lab. Hoping that I don't need the more invasive test. I couldn't be more scared we've got 8 days to wait and it's not even been 24hours and I keep crying, I honestly don't know how to get through the next week.

Just wondering how many of you flagged up as high risk and got the all clear on the further blood tests? If you did, did it all work out okay?

And those of you who didn't get the all clear what happened?

Bumping for you 💐

Hey OP.

I'm not classed as low risk so I appreciate its not exactly the same or what you're asking for but have gone for a NIPT.

Low Papp a at 0.38MoM and low HCG at 0.44MoM.

Downs risk is 1:8089
Edwards and patau is 1:6661

With my first, the Edwards was <1:20000. With the low Papp a and low HCG, I thought it would be safer to have the screening privately (£400 🤯) and I had it Monday. I was told I would have results by next Friday (1st Dec) - the wait is already causing me so much anxiety/stress so I completely sympathise for you ❤️

If any help, my friend had 1:149 risks with low Papp A & had a NIPT test and all came back okay! She had a healthy baby boy who is now 1!

Sending positive vibes!

Hi there

You might get more responses if you post over on the antenatal tests board.

I have been in a similar position, sadly it didn't work out for us and we had to terminate.

Yeah I’ve got low PAPP as well it’s 0.2 they’ve put me on aspirin to help the placenta function because of it. But I have a blood disorder so that now throws up other risks 😩

it just feels like the longest wait in the world, I thought it was a long wait at 5 weeks when I was having pains and they couldn’t see babies heart beat so had to wait a week to check again but this just seems to be dragging more, I don’t know what to do with myself to pass the time.

Thats good to hear, It’s Never happened to anyone I know so I’m just fearing the worst.

sending positive vibes your way to, hopefully we’ll both get a good result!

Thank you, I didn’t realise there was one of them, in my panic of looking for answers I just headed straight here, I’ll try that thank you 😊

I’m sorry to hear that, that must have been truly awful, right now my head is all over the place with knowing we’ll potentially have to navigate that decision, you’re so strong for facing up to that decision, I hope you’re healing well 💙

I had a call from midwife to say I’m high risk 1 in 4 in complete despair haven’t slept I was asked to come straight away to hospital and had a CVS not painful just traumatic as I was in shock. My third pregnancy and I’m 39 it’s my bloods which seem to be have swayed it with Papp being low and the other really high. My first baby was high risk one in 50 and no issues but was small at birth I wonder if this would be same again. Am so worried esp as consultant said there was a faint nasal bone which again is a marker. Need a positive story xx

Hey! There absolutely no point in me saying try to stay positive, or try not to think about it, it’s just impossible especially with pregnancy hormones flying around, but what I can say is I totally get how your feeling. Mine is a positive story!! Apparently age is a factor for it to that flags you as high risk. Our results came back in less than a week after being told we’d have a full weeks wait. We came back low risk and everything was fine. With the low Papp levels I just have to take aspirin daily and I have growth scans of baby more regular. I’m at 30+2 and baby is doing amazing and growing brilliantly. I really hope you get the same results sweetie, you’ve got this! You’re stronger than you realise, take as much time for yourself as you need and be gentle on yourself. I cried everyday every second I was alone until I got the results I just couldn’t stop it, but you’ve got this!