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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

so scared after scan!

89 replies

ooops33 · 19/12/2007 10:50

hi there, im new here and wondered if anyone had any experience of this before.
i went for my 12 week dating scan a couple of weeks ago, and was told my baby was very ill and i should consider terminating the pregnancy! the baby had fluid over the abdomen head and neck, i was sent to the quiet room which was horrendous waiting for the nurse to come and talk to me, she explained the unlikely hood of my baby surviving but told me i must see the specialist in a weeks time,
i cried solidly for that week! then when the specialist scanned me she said the fliud had gone and baby looked normal, she had the previous scan on the other monitor and said it was like looking at 2 different babies!!
however she advised me to have a cvs to check for chromosomes which i had done last week and so far the results are looking good,
i feel so confused!! did my baby recover ? or is there still something wrong but they cant find it??
why did the fluid go and why was it there to start with!
i have to wait now for the 20 week scan but im so worried please has anyone heard of anything like this before??

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beansprout · 19/12/2007 10:52

You poor thing, how frightening. I haven't heard of this before but it sounds like you need some sort of explanation from the hospital as you have a lot of unanswered questions. Just telling you to wait until 20 weeks is not good enough!
I would ring them and request an appointment and some sort of explanation as to what has happened here, even if it is the case that the sonographer made a mistake.

crokky · 19/12/2007 10:54

I do not think it is reasonable to wait til the 20 week scan.

My friend had a scan and they said some very bad things to her. She had another scan and they said the baby was fine. The baby was indeed born fine. I would request another appointment and another scan.

SquonkaClaus · 19/12/2007 10:55

poor you ooops! that sounds awful for you. But it does sound as though they don't think there is anything wrong with your baby now.

I agree with Beansprout - ring them up and request that someone sees you to talk you through what has happened.

Good luck

xx

ooops33 · 19/12/2007 10:59

Thanks beansprout, i asked the specialist why and what it could have been but she seemed clueless, it was like she thought its good news and probably recovered and i should just be grateful and stop asking questions!
but i feel so scared the fluid must have been there for a reason!

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beansprout · 19/12/2007 11:01

Of course you do. They can't possibly expect you to be ok about hearing that you may need to terminate followed up by a "oh no, it's fine" will be ok. I would be a wreck until the next scan. It's really ok for you to request this, and if the first person you speak to won't play ball, I would ask for a second opinion!!

nimnom · 19/12/2007 11:22

Hi ooops33,
Poor you. I had a very problematic first pregnancy and as a result had lots of questions to ask. I had a couple of extra appointments with my consultant at my request and that was fantastic for my peace of mind. I did the same during my second pregnancy which as a result was a lot less stressful for me.
If I were you I would make an appointment yourself and don't forget to write any questions down before you go.
Hope all goes ok

ooops33 · 19/12/2007 13:12

thanks so much everyone i will call the midwife and insist on another scan or follow up appointment, someone must have some answers!! xx

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SquonkaClaus · 19/12/2007 13:14

let us know what you manage to sort out

xx

margoandjerry · 19/12/2007 13:15

I had something similar (not the same problem but the same uncertainty) and I don't know if it was possible for you but I went for a private scan at the Fetal Medicine Centre in London. They were lovely and gave me all the time I needed. If you don't feel the NHS are interested in spending time reassuring you, maybe think about that.

Lots of love to you. It's really stressful but it really sounds like things are going better.

notmyrtle · 19/12/2007 13:29

I'd get a private scan at the FMC as margo has suggested. Worth every peeny - fantastic quality machines, you'll see a doctor & get everything explained properly.

ooops33 · 19/12/2007 13:34

that sounds like a good idea margo if the hosp wont check again i could try privately,i want this baby so much and just pray that shes healthy ( the cvs said girl) ill let you all know how the tests go and thankyou xxxxxxxxxx

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margoandjerry · 19/12/2007 14:16

Course you do. CVS rules out 95% of all the possible genetic problems so your chances are really good.

ooops33 · 29/12/2007 21:05

hi everyone,
i just wanted to let you all know, i had the final results back from the cvs and they found the problem my baby has a translocation of chromosome 8 they didnt tell me much on the phone other than it means mental retardation, i have to go on monday to discuss options, i just wanted to let u all know and thank you for your support

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poppy34 · 29/12/2007 21:08

ooops33 - so sorry to hear your news and hope the visit on monday gives you some support in discussing the options. Let us know how it goes (if you feel up to it) xx

poppy34 · 29/12/2007 21:09

and oops if you don't feel like talking online cat me - have been in similar position to you (problem at 20 weeks where we decided to terminate)xx

frostythesnowmum · 29/12/2007 21:11

to hear your news.

BibiThree · 29/12/2007 21:12

Ooops33, we're all thinking of you. x

snooks · 29/12/2007 21:14

Ooops, thinking of you, how stressful for you, am sending you all the luck in the world xxxx

ooops33 · 29/12/2007 21:40

thanyou all so much, its a relief to talk to people who understand,ill let you know on monday what they say.

poppy it would be helpful to hear what u went through if i do have a termination i have no idea what the procedure is and im really scared! im over 15 weeks now

if u can talk about it id be greatful
(dont want to bring painful memories back for you)

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asur · 29/12/2007 21:47

ooops - just thought you might find ARC useful. Good luck.

poppy34 · 30/12/2007 11:47

oops -I'm happy to talk abut it (for what its worth - I found counselling afterwards hugely helpful as I was in a right mess at time - just look at any of my old posts at the time if you want a flavour of how mad it sent me.). I know that you haven't decided on your options yet, but below is my experience of what happened (and I do totally undrestand as I needed to know what happened to beforehand when I was waiting).

What they do is give you 2 tablets about 2 days before you go in to help seperate placenta etc (I may be hazy here on details but basically it helps to start off the birth process and the termination). Apart from emotional issues, it can make you feel a bit sick so they keep you in for observation for an hour or so to make sure you're ok (I wasn't sick).

Then two days later you go back to hospital where they start to give you a series of pessaries (just like putting a tampon in - to be honest after a while you do stop caring about the indignity of it all and I was always very prudish about that ). I think that you have about 4 of these at 2/3 hour intervals.

About an hour or so after the first one I started to get period type cramps, which carried on getting worse (they do give you paracetamol which helps initially). After about /7 hours I had quite a temperature and was feeling quite fluy (I think this was more stress than anything). Pain /contractions got gradually more intense (and had quite severe sickness/diarrhea which I think is quite a normal thing ....) - eventually gave birth after about 16 hours . Birth was awkward as baby was breach so ended up with both doctor and midwife having to try and manoeuvre my little on out.

We were allowed to see our little boy (and could hold him) - he was lovely. I think one of my biggest fears was he was some gory monster. If you feel up to it, you may want to hold him but I would strongly suggest a photo of the little one . I was very anti this before the termination but someone who had been through similar suggested I do it and I'm glad I did as I have found the photos very comforting in the months since.

Re pain - I wont deny it got quite painful in last hour and I had morphine -it was more sore for the couple of hours afterwards. I ended up having an epidural as not all the placenta had been removed so needed some intervention to do it.

Re recovery - I was very weak physically and run down for about a week (we went away about a week afterwards which looking back was too soon as I was still in the bewildered state). but physically I did stop bleeding qutie soon (they say up to 2 weeks but it took me about a week) and after about a month I'd say I was more of less ready for normal physical life (ie doing exercise etc).

I am of course ignoring the emotional aftermath which is seismic and obviously everyones experience is different-
ARC was very helpful as has already been mentioned as was counselling.

poppy34 · 30/12/2007 11:49

and also mumsnet - loads of people on here just wonderful (Tamum, kerrymum, londonbird to mention a few).

BibiThree · 30/12/2007 12:07

ooops - I don't know if this will help, but my experience of a missed m/c at 16 weeks being induced was quite similar to Poppy's story above.

I had a tablet to induce labour (Thursday)and was told to come back to hospital (prob Sat morning) when things got started. By tea time Friday I was in having regular contractions, at this point worse than period pains, but manageable. When they got worse I had some gas and air and that saw me through to the end, although I was offered something stronger. By 8pm I had given birth to my boy and to be honest, it was painful but the physical pain was nothing compared to the emotional side of things.

I know my situation differs to you in that I didn't have the very hard decision to make, but I just wanted to say don't worry about the physical side of things, just make sure you have the support and conselling you may need afterwards if you decide to terminate.

Thinking of oyu. xxx

PeachyHasAFiggyPudInTheOven · 30/12/2007 12:33

OOps do remember you can post on the SN board if you want to know the other side- what its like to have a baby with disability. My youngest was suspected DS (doesnt have it, has ASD instead) and we decided to ski tests etc- as we are doing with this one. I won't post much on thsi thread as I respect the decisions of Poppy etc too much, but please feel free to CAT me or post on SN.

ooops33 · 30/12/2007 14:19

Oh my god i cant believe what you both went through poppy and bibi!!
i couldnt stop crying reading that, what a heartbreaking ordeal!
life is so cruel, thankyou so much for sharing that it must have been so hard i respect you so much,
this is such a difficult desicion.
peachy thankyou too i do know what its like to be a mum to special needs children i have two autistic angels myself one boy one girl, and i love them to bits and would never be without them, i just dont know if i can cope with more this pregnancy wasnt planned but i was pleased when i found out even though i knew the baby would probably be autistic again, i didnt care autistic children are wonderful arent they! there my angels but i do get a little tired sometimes because i teach them myself at home,
but with this dissability its the fear of the unknown the specialist said they can have severe deformities,with the heart, skeleton organs face etc and the mental retardation, i just dont want by baby to suffer

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