HELP URGENT Hyperemesis SEVERE! TWINS

[Dalejones]

Right my partner is not about 8 weeks pregnant with our second, she has severe hyperemesis again (had it all through the pregnancy of our first child) but this time its alot worse they did a scan and found its twins which we are over the moon about, but my partner is at her lowest point she has ever been in her life she has constant nausea every minute of every day and she throws up approx 40 times a day, she is absolutly wiped out, she can hardly talk she cant move she has been to hospital on a drip twice, the anti sickness tablets are making no difference, I had to ring my work and take a few weeks off to be there for her as it's not easy with a 3 year old running riot, we have now moved my partner down to her parents so they can look after her properly and tonight they have said she cant go on and she wants to terminate the pregnancy, I just feel like it cant be the only option, I'd do anythin to take the pain from her, need urgent advice, wot can we do?

I've been there. Thinking about termination is very common during Hyperemesis. She must be in contact with the ward / MAU who treated her with fluid etc. She must ring them and tell them what she's thinking. It's a very dark time. It's awful and agonising. The next step if anti sickness drugs aren't working is to go onto steroids. She can get them in hospital and then on discharge, arrangements can be made for her to have them as an outpatient from nurses.
Is she in touch with the "pregnancy sickness support" (PSS) charity? They are great at info and will be able to support her next decisions. She must keep in contact with the hospital and must get readmitted again if the drugs aren't working.

It's awful.

Can someone else help look after your son for the next few months? Could you get a nanny? (Obviously everyone can't just click their fingers and have Mary Poppins arrive!)

Rest. Rest. Rest.

Talk to the GP about medication options, Ondansetron worked for me (I was still sick a lot, but no where near as much) but they won't give it to you until you've tried other options.

Have a bag packed in case of hospital admission for dehydration.

Practically: buy loads of cheapy washing up bowls and towels, have them everywhere

It's really tough mentally too, the Pregnancy Sickness Support forum used to be very good (not on it anymore as I will not be pregnant again) www.pregnancysicknesssupport.org.uk/

It isn't forever. It feels like it will be, but it isn't forever.

Thanks, shes adamant that she wants to make an appointment in the morning to terminate, 😫 theres nothing I can say as it's her health that's being affected, she says they have given her a new prescription and it's making a tightness in her lung, what ever that means I dont know but I dont think shes going to carry on

I get it, I really do but many women feel relief from steroids. It's definitely worth trying before terminating. She has to at least know that it's an option. Please get her to contact the pregnancy sickness support charity tomorrow. They'll be able to talk her through her options and also discuss the option of therapeutic termination. They are really experienced in this area.

You sound really supportive and sympathetic. This must be really hard for you too. Hyperemesis is the worst I've ever felt in my life. I wished for a miscarriage and definitely contemplated termination. She will be going through hell right now. There's more support and there are other options but some women find the only option is termination.

Which anti sickness is she on? Ondanestron is used for cancer patients and was a wonder drug for me with hyperemesis. They don’t like to give it as it’s expensive so trial all others first but if you ask for it they can give it and it may make a big difference.

Also, sounds weird but rhubarb and custard hard boiled sweets and fresh orange ice lollies were only thing that stopped me being sick and I was likewise being sick 40 times. That and closing doors so I couldn’t smell food or strong smells.

It is incredibly tough. Working out some ways she can still connect with your older kid whilst feeling so ill might also help her feel less low.

Do you know what the name of her anti-sickness tablets are?

There are quite a few different ones now and quite often the first ones to be prescribed seem to be ineffective.

Are you at your in laws now?

Are you OK as the whole situation sounds awful?

I am at home now with my son she has been taken into hospital again this morning after an awful night, the sickness tablets she is on are called cyclizine hydrochloride 50mg thanks for all your help I've asked her to ask the doctors about Ondanestron so see what they say about that, shes very very upset and really wants to terminate she says the only reason shes goin to hospital today is because of me which is terrible for me but I'm thinking there must be another way and one day she will thank the lord she didnt go through with it.

My sympathies to her and you. Hg is horrendous.

Cyclazine is a mild drug, so hopefully they will offer her something stronger now. If she gets to the point of being able to swallow tablets, look into vitamin b supplements.

Cyclizine is a first line drug. There are loads more drugs. Many of us sufferers need to take 3 or 4 different drugs daily. I take cyclizine and stemetil and ondansetron. I was also on metoclopramide on top of this when hospitalised and had the drugs intravenously. If these don't work, steroids is next step.

Please please get to her to ask for IV ondansatron and steroids and fluids as @thingymeboob has mentioned in hospital even if she has to be admitted. I went through this and wanted it all to end as it takes a massive toll mentally and physically. I was in hospital on a daily basis for months getting IV treatment as tablets didnt work. Cyclizine is only a very low anti sickness drug that doesnt work for many hyperemesis sufferers. She needs to be on a stronger IV medication to get the vomiting and nausea under control.
I hope she can get the help she needs. Definitely call Pregnancy Sickness Support charity on 024 7638 2020 for help and advice. They were fab in helping me and others. They also offer a peer support person which has been very beneficial to me.

And they have put her on Metroclopermide which hasn't worked and has caused her more discomfort

Definitely call Pregnancy Sickness Support charity on 024 7638 2020 for help and advice. They were fab in helping me and others. They also offer a peer support person which has been very beneficial to me.

Would she be willing to call these people OP? I've heard great things.

Bless her I can't imagine how desperate she must be feeling and how painful that must be for you too.

the sickness tablets she is on are called cyclizine hydrochloride 50mg thanks for all your help I've asked her to ask the doctors about Ondanestron so see what they say about that
I just knew that she was going to have been given cyclizine or metoclopramide first off.

I know off people who have felt like your wife and Ondansetron made all the difference.

Please please get some advice from the charity PP have suggesteed.

I'm currently in the same position 8.5 weeks pregnant. I have 2 older children 10&14 and my partner has left me. I'm so so poorly I have an appointment booked for early next week for a termination. It's not what I really want but my children need me and I am no good at all at the moment. No amount of anti sickness medication or sleeping tablets are making any difference. I'm devestated but nothing I can do.

@rainbowdashsneeze

I'm currently in the same position 8.5 weeks pregnant. I have 2 older children 10&14 and my partner has left me. I'm so so poorly I have an appointment booked for early next week for a termination. It's not what I really want but my children need me and I am no good at all at the moment. No amount of anti sickness medication or sleeping tablets are making any difference. I'm devestated but nothing I can do.

Oh wow that's not ideal and I'm really sorry to hear about this, I just cant believe that there is nothing that can be done about this situation it's really opened my eyes to just how many women actually suffer with this, I thought the hardest part of pregnancy is giving birth but obviously I was very wrong!

I really appreciate everyone's messages and support, you all have no idea how much its helped when I genuinely didnt think there was any light at the end of the tunnel to hear other women in the same situation has made it evidently clear that this is quite a common illness and there is a way through it without the obvious! Thank you all

One of you must contact the Pregnancy Sickness Support charity. They have got me through my pregnancy (I’m still only 16 weeks).

Cyclizine is a mild mild first drug. She cannot feel that there’s no solution after only trying cyclizine.

A lot of people swear by Xonvea. It’s expensive so the NHS don’t like to give it out easily. You can do private prescriptions though if needed.

Suppositories are also key in a lot of cases. If your wife cannot keep medication down, it won’t be helping.

www.pregnancysicknesssupport.org.uk/get-help/treatments/

www.mumsnet.com/Talk/pregnancy/4322558-Hyperemesis-Support

Here’s the specific link to the HG support thread, @Dalejones

When the meds started to work it was incredible - not totally back to normal at all, I felt very fuzzy headed and tired on them, and I did start to feel nausea return as I approached my next dose and had to up the dose a number of times. But absolutely nothing like how bad it was in between, it really felt like dying.

It would be totally heart-breaking and a travesty if she has to terminate a much-wanted pregnancy because she isn't being properly supported to get the right medication. I totally understand how awful it is, and I know for some people there isn't a proper solution with medication, but she is nowhere near having exhausted the medication that is available to her. You really, really need to be her advocate, and to help her understand you're on her side, not trying to 'force' her into continuing the pregnancy. Is there any way you can call the helpline, speak to her doctors and speak to her about a timeline for trying stronger meds, and seeing if they work, but with a back up plan for a termination if needed and with the focus being on her regretting the decision rather than you now wanting her to make it? This is all based on the assumption that what you say about her being initially delighted with the pregnancy is right. But it sounds like she feels she doesn't have a choice when she isn't really being given the options she should be.

I definitely 2nd Xonvea. I forgot to say that im on my 2nd HG pregnancy after a horrendous first one that needed IV steroids to control the vomitting and Xonvea has been a lifesaver. Its helped me so much. Im 18 weeks and have a toddler at home. Some hg sufferers take it alongside ondansatron and cyclizine. She really needs the IV fluids and medication to get on top of the vomitting and sickness otherwise tablets wont work as she keeps vomitting them out.

Please come and join the hyperemesis support page on here also under the pregnancy section. So many women on there all going through hg and the support on there got me through my first pregnancy and is helping with this one as well.

I really hope you can get all the support you and your partner need.

Ok so she was taken into hosp for the 3rd time and she requested to go on Ondanestron which they did and now shes been home for 4 days on Ondanestron tablets, she hasn't been sick now for 5 days but shes still got really bad nausea and she says shes fighting being sick shes really struggled today not eating food because she feels so sick and she says she could easily run into the toilet and spew 🥴 think it's another call to the hospital, really hoped that these tablets would work.

Hi @Dalejones lots of us need to take ondansetron AND 2, 3 or 4 other drugs daily. Ondansetron alone didn't work for me, but in combination with cyclizine and stemetil it helped a lot.

I second that - I needed cyclizine and stemetil alongside ondansetron and if I forgot a dose of any one of them the nausea would become unbearable again. They won’t take it away completely even then but it should make it more bearable. I remained bedridden after being put on the right cocktail of drugs but they made it far far better. Instead of vomiting thirty times a day, I was vomiting maybe twice every other day although the nausea was constant (but to a more manageable degree). My doctors said the most important thing is fluids, whatever I could manage, even wetting lips little and often is better than nothing. I got by having tiny sips of Dr Pepper which had to be freezing cold. Eventually I managed to eat peas and plain rice - nothing else.
Also, it might be worth asking if there’s a hyperemesis unit attached to a hospital in your area. There was one an hours drive from me which wasn’t the hospital I was giving birth at but they took drop ins for drips and day treatment for HG. It might be worth looking into if she can manage the drive (I never could).
It is an awful awful sickness and I wouldn’t wish it on anybody. I still struggle to find the words to actually describe what it is like other than it really is hell on earth.
Fwiw mine did improve enough by 20 weeks that I could Potter around the house a bit and eventually halved my medication but I didn’t feel well until about an hour after having DD.

Sometimes the nausea is as bad. Poor love. She needs to go back to the hospital and they need to try her on something else.