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Original poster

Edwards and Patau further screening..

11 replies

Eden1990 · 08/09/2021 16:25

Hi,

Had a call today to say my downs risk was very low but my Edwards and Patau risk is 1 in 400, I’ve been invited in for further screening. Has anyone else had similar results? What was the outcome? I can’t help but worry. I’m 31 and I know age can make a difference.
Thanks

OP posts:
Sleeplessem · 08/09/2021 17:06

What further screening have you been invited for? I’m surprised they’ve invited you for more as anything less than 1/150 is considered low risk so by that metric you are clearly low risk. Xx

Original poster
Eden1990 · 08/09/2021 18:06

They said a blood test which is sent off to America, she didn’t say much else other than the appointment will take half an hour. That’s reassuring to know, I’m not sure why I have to have more tests then I will ask questions tomorrow x

OP posts:
TakeYourFinalPosition · 08/09/2021 18:23

Yeah; I’d be asking more questions too - typically you’re not referred unless your risk is higher than 1/150. Yours is a way away from that.

toadstool32 · 08/09/2021 18:44

Some hospitals (mine included) are taking part in a screening trial whereby they automatically move to the next stage of screening for any result less than 1 in 500.

Sleeplessem · 08/09/2021 19:40

@Eden1990

They said a blood test which is sent off to America, she didn’t say much else other than the appointment will take half an hour. That’s reassuring to know, I’m not sure why I have to have more tests then I will ask questions tomorrow x
That’s a NIPT test then, it’s way more accurate than the standard nhs screening. Sounds worrisome but I’d be pretty sure your risk will come back v low risk from the NIPT test
Original poster
Eden1990 · 08/09/2021 19:57

That makes sense x

OP posts:
NFFC1992 · 22/10/2024 21:51

Eden1990 · 08/09/2021 19:57

That makes sense x

Hi, what was the outcome of your NIPT? I have just received the same odds.

Catopia · 23/10/2024 08:15

Are you sure the scores are not as part of a research study? I was invited back for further testing with scores over the normal NHS limits for further testing as part of a study which was looking at whether they should be extending the screening parameters - so they were looking to see if they screened more people, they caught more cases. I took it up to put my mind at rest as I was only narrowly over the Downs parameters and I'm of the view that more data is a good thing and the results came back super low risk which really reduced my anxiety overall. Take up the testing if you want to, but do be reassured that those are not scores in the super-worrying bracket.

Original poster
Eden1990 · 23/10/2024 13:07

NFFC1992 · 22/10/2024 21:51

Hi, what was the outcome of your NIPT? I have just received the same odds.

Show quote history

It came back low risk

OP posts:
Original poster
Eden1990 · 23/10/2024 13:08

Catopia · 23/10/2024 08:15

Are you sure the scores are not as part of a research study? I was invited back for further testing with scores over the normal NHS limits for further testing as part of a study which was looking at whether they should be extending the screening parameters - so they were looking to see if they screened more people, they caught more cases. I took it up to put my mind at rest as I was only narrowly over the Downs parameters and I'm of the view that more data is a good thing and the results came back super low risk which really reduced my anxiety overall. Take up the testing if you want to, but do be reassured that those are not scores in the super-worrying bracket.

Thanks but this post was 3 years ago

OP posts:
Catopia · 30/10/2024 12:29

Oh gosh, sorry, it came to the top because of the previous poster!

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