Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.
On my image of a pink castle: that is an image I use because when I was little, my family had a Snakes and Ladders board with an image on the last square of a pink castle in the clouds. As Hyperemesis is so like a grotesque version of Snakes and Ladders - eat a meal, go up a ladder, first thing in the morning bile run, down a snake - I have used the image of that pink castle on the last square of that Snakes and Ladders board as a metaphor for the happy end of Hyperemesis.

reastie a drink suggestion (you may have tried already); high juice. I've found a lovely apple and mango high juice type drink, which fairly weak with loads of ice is really doing the trick for me. In fact, cos of the pretty constant dry mouth (which i think is steroid related) plus the sore tongue (2weeks and counting) I think I'm drinking more than I do when I'm not pregnant, and my urine output is healthier than it's ever been!! Silver linings, hey!

Non pg I’m usually a huge water drinker, as in I drink 4 litres a day!. Thanks for the recommendation eal, problem is I don’t tolerate sugar well, it makes me jittery and nauseous even in small amounts (and that’s non pg) so I’ve ordered some apple and mango and also apple squash with sweetener in to try. Cross fingers.

Fellow 3xdaily ondansetron users. How do you space your meds? I was told 8hrly but I want to be sleeping more than 8 hrs. I was managing relatively ok on 2 doses 6-7am and 4-5 pm. Can I do 6am, 1pm, 8pm? Does it matter?

I've just been told to take it 3x a day, so I do 6.30, 12.30 and 6.30. Your I yervals look fine Sasseh.

SassehMonsta Oh dear, poor you about tears. It must be so difficult working out a Hyperemesis diet taking into account diabeates. Gentle cyber pats on offer (and to all feeling down). I am glad you have been discharged, had the meds upped, and got the kestones down,and very brave to go to the soft play disco.
eallison I never heard of 'high juice': shows my ignorance! I hope the sweetner sort suits you, Reastie. eallison Much sympathy over hairy chin and sweating - but I am glad that the chiropractor will be able to help with the pain. Great advice from you, and from others.
MauisLeftNipple That is fascinating about nuts and electrolytes from you and fluids and electrolytes from SeaEagleFeather.
Reastie I am sure you have already tried cuppa soup, etc. It must be really difficult for those with Hyperemesis who can't eat sweet things as many find things like cheap ice cream and tinned fruit are bearable I think partly because they are so sweet, they other bearable extreme being salty foods.
Jimjamjem How sweet of OH to wash your hair.
KSjourney Glad that your back is less troublesome.
Waves to all. I must find the due dates list and update it.

God, sorry. Your INTERVALS look fine.

Must chop my nails, which are beautifully long and strong despite my malnourishment!

6am, 2pm, 10pm is what I do with my ondansetron and steroids. I mean, I'm awake cos of the insomnia. Maybe just have the last dose of the day as late as you can, then 1sr dose swoon as you wake?

JamjarJem Sorry, I missed that bit about your feeling very bad and your doctor refusing to prescribe an anti acid. Was this due to any particlar reason apart from prejudice about prescribing meds in pregnancy? I believe that you can get various ones like Ranitidine and Omprazole over the counter - ridiculously, no doubt having to hide that you are pregnant, though they are prescribed in pregnancy all the time.What anti emetics did you say she had you on? And how ridiculous about giving an sick note up to Christmas Eve...
To make people smile, I called in at the library today (it's under threat of closure) and they said that they had been advised not to have a smal fibre optic Christmas Tree on the counter by some council official because 'It's a waste of electricity'.
Here's the Due Dates list, minus lovely TwoDrifters. eallison Sorry, I am sure you were given a more precise date than that later - and I can't seem able to find it.

Due Dates
EveJackXXX 21 December
rotavixsucks 15 January
Olivecake 23 January
elpreggo27 20 March
silversplodge 4 April
Beanhunter 17 April
8DaysAWeek 1st May
tinyradish 1 May
foreverblues 5 May
Plasticgiraffe 10 May
Mamabear13 18 May
bumblebee 20 May
SashaMonsta 31 May
eallison June

I'm on 4mg of ondansetron twice a day, which I have asked her to increase but she also refused to do that. Feel like I'm banging my head against a brick wall at the minute. The anti acid she just said there was nothing I could have apart from gaviscon, which I had already told her didn't work x

jamjar both omeprazole and ranitidine are used commonly in pregnancy outside of hyperemesis! How ridiculous.

lucinda I do have a more specific date, but it's not one we are using. We decided not to focus on dates/deadlines this time, see if it makes things any easier. So we're simply going with "beginning of June".

Jam jar, send dh to a pharmacy to buy Ranatadine over the counter - you can buy 75mg dose without a prescription and just take 2 if 1 doesn't cut it!

While the disco was lovely the food on offer wasn't as they messed up the last jacket potato and put cheese on it - we don't eat dairy. Booo. This meant that by the time we got home at 7.45pm I wasn't awake.enough to cook or wait for dh to cook, so only had the few chips and beans I scrounged off DD at the disco. This has stupidly led to ketones again, as haven't eaten enough. So I drank flat lemonade over night to try and combat it..... and now my fasting glucose is well above the level it should be. I haven't written it down as I dont want to admit to it, buy my dehydration has to come first.

So this morning I'm back up to 4+ again and trying to drink more. I'm struggling to balance everything - I have tried a plain breakfast and about to check my bloods. I seem to have diahorrea but only around the constipation - like it's squeezing around the side of the constipated bits! Bleurgh.

I just want to cry, I might drop DD off at my parents and see if I can go to a different hospital for a walk-in appointment or back to our local For fluids again, as apparently I can't manage it myself at the.moment. I feel like such a failure.

Oh sasseh what a miserable evening/night/morning you've had. In terms of ketones, carbs are your friend (tho less so your friend in terms of diabetes.... what a horrible balancing act you are playing). Can you get some crisps in? Some toast would also be good. Honestly, try not to stress too much about ketones - hyperemesis is the only condition that doctors rely on ketones yo diagnose dehydration. I completely ignore ketones in my pee cos they are completely unreliable for me. Scotch pancakes might be a good thing as well, and tinned fruit. Just do what you can, you are doing so wonderfully well

Sass you’re not a failure! I’m always looking at your lists admiring you for continuing so many normal life things with this whilst I just waft from sofa to bed all day every day incapable of more. Hope this doesn’t come out wrong but can you cut back on life a bit for a couple of weeks to see if that helps? Hope you get seen at the hospital ok.

Btw re medication times, I take mine almost exactly the same as mauis!

Lucinda I can’t believe that about the library. They are lo9kimg at cutting back hours and closing some smaller libraries near me and it’s such a shame. We use libraries a lot and find them fantastic.

Sasseh the presence of ketones mainly indicates that your body is in starvation mode and is burning body fat for energy rather than glucose. I wouldn't drink more to combat it, unless you want to. As eallison says, get some carbs into yourself. (Dairy-free) buttery crumpet? Buttery bagel? (I suddenly love heavily buttered breadstuffs after being a mere smear-er for years!).

Lucinda I can’t do cup a soup as I’m gluten free and all the cup a soups I’ve found aren’t. I am having sugar free tinned tomato soup but it’s very salty.

I mean no added sugar (let’s get the term right!)

Mauis me too, it’s so random, I usually have bare minimum of butter but now I can only eat if it’s dripping in it!

I’m so sorry you are all having such a crappy time. Now 21 weeks and although I was still vomiting every day this week felt manageable. Until yesterday turned into an epic heaving and vomiting day just as I thought there was a light at the end of the tunnel. Fed up of people telling me I’m well because I have a bump - still have gained no weight so the parasite is clearly feeding off me! - and that I’m half way. Screw that if I have to feel like this for another 20 weeks.

Crispy crumpets with my new dairy free spread is one of my absolute favourites at the moment!! Had a full on strop at hubby ywsterday morning cos he'd drunken midnight eaten the last of my crumpets. I later realised that I hadn't actually told him about the crumpet thing, so that had been perhaps a little unfair. Bless him tho, he just took it. And came home from work with 2 x 9pack of crumpets.

Sorry to those suffering today and more than not! I'm afraid I have just popped on for a good moan and cyber encouragement.

This week has been awful as hubby has worked a 40 hour week during the days, plus 3 evenings including last night and is working 10 hours today and won't be back until after bedtime! It isn't normally like this but it has all come at once and is killing me with all the mealtimes, bedtimes and extra stuff I have had to juggle. Sickness is horrendous today but with 2 smalls there's not a lot I can do. Thank goodness for telly - I have snuck upstairs for 10 mins lay down. Can't even think how to get through the whole day...what I wouldn't give to be a normal functioning adult!

I'm feeling better physically after a nap this morning. I was also feeling extremely rough and dry mouthed and headachey with the high ketones this morning, so water drinking upped. Post-breakfast reading still high, but first full day of testing so May just not note down today's numbers and do tomorrow's as my first.proper day. Just trying to plan a shopping list as now I have a list of things I love but can't eat - bagels are on it, as are mashed potatoes, crackers, white bread, white sticky rice, and parsnips. So my diet is switching to basmati rice, daahl, sweet potatoes, porridge. I need to swap my sweetened soya milk for unsweetened too, and add in all sorts of fast sugar things like fruit.

I want an English muffin smothered in salty vegan marg. I don't have any muffins. I'm going out today because I'm fed up of being stuck indoors between.hospital, home and work. Though probably only to my parents so I can go shopping with my mum. She's been sent to diabetes clinic herself for type 2 investigations so I'm taking her on my first diabetes shop. Ha.

Oh mamma that sounds tough. Be gentle to yourself and don't set high standards -If the kids end up in bed,fed, no broken bones and happy at the end of the day then you've nailed it! Feed them what you can, do what you can, and remember a little but of telly/boredom ain't gonna harm them! I hope you'll get a really restful day tomorrow yo recover?

sasseh maybe try oat milk with your porridge? That's what I'm using and it's really nice (I cannot stand soya!). I'll have a think if I can think of another, nice swaps.

Gosh mumma, that's a lot of working!I hope he has some holiday off soon to give you a break!!

I am off to buy muffins. They are on my suggested list of things I can eat with low fat cheese spread so that's me sold!!

So sorry a lot of you are having a bad time at the moment!
I’m now 9 weeks I’ve started to have a day or two off from throwing up however on the second or third day I then throw up more violently and more often than before and I’m not sure if I’d rather just throw up everyday or this.
Sounds so stupid but I miss my husband a lot as by the time he’s home from work I’m usually in bed asleep and he’s sleeping in the spare room as I just can’t be around him. Poor man is taking it all so well but I just can’t wait to be able to have a hug again and actually talk to him properly face to face and not through a wall!
Time is so so slow but I never even thought I’d make it to this point so that’s a positive.

lostnames I'm glad you're starting yo have better days :) I totally get you on the missing your husband thing. By the time my hubby has fed us all, got our son to sleep and sat down it's 8.15/8.30. He then goes to bed at 9/9.30 so that he actually gets sleep (I don't go up til midnight ish cos of the insomnia). He's so tired from being busy at work and keeping our family going that he doesn't have the energy to talk to me much. He has a very profound stammer, which always gets bad when tired/stressed etc, which makes talking physically exhausting and painful. So we haven't really spoken in weeks. We decided last night to try and have the evening together, and went to bed together at 10. I didn't sleep. He didn't sleep. Neither of us slept all night. So tonight we'll be back yo him in bed 9ish, and me midnight. It's so hard.