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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

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Original poster

waiting for amnio results

81 replies

cloud9 · 08/06/2007 09:33

dear all, i'm 17 weeks, my triple test results showed my baby had a 1:3 chance of having downs, had amnio on wednesday and waiting for his results. i just wondered if anyone else had been in this situation, and was willing to share with me what they did and how they coped with a positive result for downs. i've been in bits all week thinking about what to do. already have ds(4) and dd(2). thanks

OP posts:

Are your children’s vaccines up to date?

Set a reminder

Caroline1852 · 11/06/2007 12:49

Geekgirl, I am not sure your post is all that appropriate at this stage.

expatinscotland · 11/06/2007 12:54

How so, Caroline?

She's offering support and help.

I think your post was harsh and uncalled for.

geekgrrl · 11/06/2007 13:04

@ caroline

GooseyLoosey · 11/06/2007 13:09

was in a similar position to you with dd (now 2.9). Can't remember risk exactly but was around 1:20. I remember being told the risk and just thinking I had heard wrong. Deciding what to do was an agony and no one else can tell you what the right way to go is.

It is very hard - I would have said hands down I would have terminated the pregnancy if you asked me before it happened, but it was not nearly so easy when it came to it.

Can you remember what pushed the score up - was it the blood test results or the actual measurements of the baby's head?

FEP · 11/06/2007 13:20

geekgirl - I think your post is entirely appropriate, when I found myself in the same situation as cloud9 earlier this year, I would have loved someone to talk to in your situation. I felt the need to find as much information out as I possibly could. It perhaps wouldn't have swayed my decision either way but just having contact would have helped enormously.

cloud9 - I hope all goes well for you. I don't anyone can offer advise on how to cope it is just a case of doing whatever you can to get yourself through each day until you receive your results - Thinking of you.

Original poster

cloud9 · 11/06/2007 13:23

again, thank you all for you support, gl-all his measurments were fine, my papp-a was what threw the results, so had to have the amnio. all seems like a bad dream.trying to deal with kids lunch and it just hits me again. going to hospital today to talk to doctor, make some decision...

OP posts:

misdee · 11/06/2007 13:25

cloud9, you need to sit down and 'digest' this result, before you think about what to do next. I dont have a child with DS, but there are many people on the SN part of this site who can help. At the end of the day the decision is yours.

Blu · 11/06/2007 13:29

NB, to prevent further confusion, Cloud9 has had her results and the test showed that Down's syndrome is present.

Cloud9 - I am trying to remember the posting name of the MN-er who had a termination following amnio confirmation of DS - she received much kindness and helpful advice...can anyone remember?

When I was in the situation of waiting for results, I know that the research I did into DS dispelled many of the misunderstandings and out of date information I had. If this is a dilemma for you, then you will want to explore and research as widely as possible. If you are not sure what you want to do, take your time. Are the hospital offering any support or counselling?

Blu · 11/06/2007 13:30

You don't have to make a decision today, Cloud9, unless you are sure in your heart of hearts what your decision is.

Clary · 11/06/2007 13:31

Cliud9 I second what Geekgrrl says. Lots of people on here can give you a view of what having a child with DS is actually like.

Thomcat is expecting her 3rd child and her DS1 has Down's, eidsvold also has 3, oldest with DS, theheadgirl, to name but a few fantastic and supportive MNers.

Good luck with your decision whatever you do - seek all the advice you can but in the end it's your decision and you must do what's best for you and yr family.
Thinking of you.
Cxx

Clary · 11/06/2007 13:33

blu there was rosy andalso more recnetly myfairlady who both had helpful support and advice.

dinosaur · 11/06/2007 13:34

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

geekgrrl · 11/06/2007 13:35

eidsvold also had a prenatal diagnosis, if you search for threads she's been on you will find more on how it was for her.

Caroline1852 · 11/06/2007 13:40

I can only speak for myself. I am not sure I would want to hear all the stories about the DS babies (that were "easiest of all three") if I had decided that, on balance, at this stage a termination was the better option for me and my family.

misdee · 11/06/2007 13:41

it babies WITh Ds, not DS babies.

expatinscotland · 11/06/2007 13:42

The OP asked for members willing to share what they did and how they coped with a prenatal diagnosis, Caroline, and people are sharing their experiences.

What's inappropriate about that?

suedonim · 11/06/2007 13:43

Blu, was it someone called Rosie/Rosey? I do recall the thread.

Cloud9, I'm sorry you're going through this difficult time. I too have had an amnio, though we had a different result. Thinking of you.

Twiglett · 11/06/2007 13:49

Cloud9 I wish you strength to make the right decision for your family

Mrbatters · 11/06/2007 13:51

This reply has been deleted

Message withdrawn at poster's request.

Clary · 11/06/2007 13:54

here is myfairlady's thread

GooseyLoosey · 11/06/2007 13:56

I asked about the measurements as my GP said to me that in his experience it was "the nut score" (his words) rather than the bloods which was the most reliable indicator - bloods can be influenced by all kinds of factors.

Good luck - I will be thinking of you!

Chooster · 11/06/2007 14:13

I'm so so sorry cloud9 that you have this to deal with and consider. I'm sure your emotions are all over the place. As you'll know from my earlier post I had a termination at 21wks in Dec 2005. If you want to talk in any way then please do let me know. I wont go into any details now as I'm sure you just need time to think about what is best for you and your family.

Thinking of you and wishing you lots and lots of strength.
xx

tiredmumov3 · 11/06/2007 14:29

thinkin bout you and yours i have no advice at all as my amnio results were the one id hoped for.
but i know its a tough decision and were it me i would want as much knowledge from every angle so i could make the right decsision for me and my family. knowledge is power,thinkin of you best of luck what ever you decide.

Original poster

cloud9 · 11/06/2007 22:19

clary, thank you for myfairlady's thread- it really helped to read it, as did rosie's. dh really doesn't want to go ahead with ds baby, but would support me whatever i decide- he's been brilliant.went to hospital today to talk to the doctors and discuss my results, seems that ds isn't only factor- placenta not functioning properly to compound it all. decided on termination on thurs. will be able to hold my little boy and say good-bye properly.really want this to be a bad dream. you've all been so supportive, it makes me want to cry (again) except that's what i've been doing most of today...thank-you all again cloud9 x

OP posts:

Stargazing · 11/06/2007 22:53

I'm so sorry that you're going through this - as I posted earlier, I went through the same decision making process just 2 years ago - please feel free to contact me if you need to talk either before or after. The support of other people who have been there was invaluable to me. I did eventually make peace with my decision and am sure you will too - but that doesn't make it any easier in the interim. I hope that your living children will help you to heal - one of the hardest things, I found, was the awful emptiness, since the baby I terminated was my first. I suspect that if I had had a child of my own to hold it may have eased the pain somewhat. I had nothing to get out of bed for, no one to keep going for, if you know what I mean (apart from DH)
As I said, I took prints of baby's hands and feet and they are now among my most treasured possessions. You may wish to do the same. Sometimes I find her photos too upsetting to look at, but the prints are a tangible reminder that she was here, she was real.
I will be thinking of you. You are very brave.
xx

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