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Down's Syndrome Pregnancy Screening (Scotland)

18 replies

BelliniButterfly · 07/05/2016 11:42

I've been reading lots of posts where people have been describing their level of risk on letters they have received. I received my screening letter this morning which just states 'low chance' however there is no ratio mentioned.

Is this just the normal practice in Scotland?

Thanks

OP posts:
MrsJayy · 07/05/2016 11:45

Yes its standard when i got my last test 19 yrs ago there was just low risk (I think) on the test results

MrsJayy · 07/05/2016 11:45

Might differ from trust to trust iyswim

iamdivergent · 07/05/2016 12:43

Yes totally normal in Scotland. Mine is the same.

Down's Syndrome Pregnancy Screening (Scotland)
FantasticMax · 07/05/2016 13:04

I was given a number in both pregnancies - first was nearly one in 10,000 and second (currently pg) was one in 27,000.

FantasticMax · 07/05/2016 13:05

I'm in Scotland I should add!

JessieMcJessie · 07/05/2016 13:14

I'm in England but my letter also just said "low". However the midwife had the figures and discussed with me at my next appointment.

Aftertheharvest · 07/05/2016 14:55

I'm in Glasgow and letter was as yours but midwife told me actual numerical risk at next appointment.

MrsPickwick · 07/05/2016 15:02

I'm in Scotland and was given the actual, very specific ratio with my result. I'm sure if you specifically ask, it will be on file.

ItsLikeRainOnYourWeddingDay · 07/05/2016 15:15

In scotland and given a ratio ie 1in 90000 chance.

BelliniButterfly · 07/05/2016 16:11

Thanks everyone

My midwife appointment is not until the end of May so I think I will phone the number on the letter and see if they can give me any more information.

OP posts:
pulpi · 07/05/2016 21:49

I'm in Fife and my low risk letter was the same.

Feeches · 07/05/2016 21:56

Lothians here. I was given a ratio in my letter. Something like 1 in 27,000 or similar.

socktastic · 07/05/2016 21:57

I'm in Fife too and was given a ratio on my letter.

MrsPickwick · 08/05/2016 16:03

Woah, I thought my risk was was nice and low until I saw all these extremely low ones on here. I wish they could be sure, but without the need for risky amnio or pricey Harmony.

JessieMcJessie · 08/05/2016 17:46

MrsPickwick you can drive yourself mad worrying about figures, which I think is behind many NHS trusts not giving them out in the letters. If I recall correctly the NHS won't recommend amnio/CVS for risk below 1:150 and I think we just have to trust that this is based on solid medical data and research.

My own risk is 1:1200, which is nothing like any of the figures mentioned above but the midwife told me it was "nice and low for your age". I am 42 so was fully expecting to be high risk and have further testing. I suprised myself with how comfortable I was with the figure they gave me and having had serious fears about trisomy before the screening I really haven't given it a second thought since the result.

kiki22 · 08/05/2016 21:05

Glasgow here mine just said low risk but I didn't receive the original letter when I had called to ask why I didn't hear mw said I was low and asked if I wanted figures I said no, I reasoned if I'm low the figures don't mean much to me.

GruffaloPants · 08/05/2016 23:46

In greater Glasgow they just say high or low risk. I got low risk downs, high risk neural tube defects but baby is OK.

KayTee87 · 09/05/2016 12:12

My letter said low risk then I asked the mw what it was at my next appointment.

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