Hyperemesis Support

[LucindaE]

We need a new thread.

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable.

I would like to thank MOH MOP Ovaltine Caramellokoalalover (I think she's changed her nickname) Fluffy, Horsey Kali and Everyone who has given such invaluable support and advice on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.

Just dashing on to say, Waves I'm horrified at this after yo've been so ill, I can't believe what they've done, no meds?!!!! . Are you back in hospital this morning? I am truly outraged.
Choccie How are those miserable ketones this morning? Are they down at all? As Wispa says, at a certain level of dehyration you become confused, sounds daft but try and remember you won't be thinking straight, best to go straight to A and E.
Back soon. Waves (sorry, Waves, no pun intended) to all.
Lucinda
xx

tell your gp (dont ask!) that you are bringing in a wee sample for her to check for ketones. tell her you have been vomiting non stop for over 24 hours and that you are unable to keep ANYTHING down. in my surgery if i need to see the doc urgently or speak to them i ring reception and duty doc rings back within the hour. they always have few appoints kept just for patients like you ringing in.
ive been very lucky that ive always been taken seriously and seen straight away. if you dont get anywhere with your gp go straight to a&e, do not wait and see how you go. my gp checked and mine was 3+, she could tell to look at me i was very dehydrated and even asked me to stick my tongue out, it was white, another indictation of dehydration, the letter she gave me for the hospital said i was clinically dehydrated. by the time the gynae doc had checked it i was 4+, when you are 4+ they admit you no question here.

Just spoke to the doctor. She said to come in at 2:30 and she would get another doctor to check my urine, blood pressure blah blah. That's about as good as I got. I feel like I'm a burden to them and like I'm wasting both their time and mine. Sigh. Sorry for the constant whining.

Oh goodness sounds like everyone is in the wars at the moment. Keep being persistant, you're not being a pain- the medical professionals should be looking after you all better! You pay your taxes, the NHS is "free" to you, use and abuse it until they help you get better!

Thanks for the welcome folks!

Feeling a bit more positive today. DH got the early train home last night so I just went to bed. The nausea makes it hard to sleep - I wake up a lot - but I actually feel pretty refreshed today and managed to keep down some cornflakes. DD is napping and I am going to rest on the sofa now and if I still feel ok when she wakes I think I will take her to the playground.

All the information about the NHS/GP side of things is really helpful. We were outside the UK on the last pregnancy and I'm still getting used to the different set up. My GP back in Ireland was very kind and sympathetic but not very active I guess you could say? He basically told me if it got to the stage where I went over 24 hours without being able to keep down water, I should call him and he would have me admitted to hospital, but otherwise I just had to tough it out at home.

Hi all

I've had my scan this morning, and the baby is perfect - and a little BOY! So it is a little man causing me all these problems. He seemed ever so happy and was waving and giving me the thumbs up.

I'm very poorly still, keeping nothing down but trying so hard to keep going. I have written a formal complaint letter to the chief officer of the hospital, copied to my consultant, my GP and the supervisor of midwives. I've asked for an urgent treatment plan, including anti emetics and all sorts of things, but not keen to go back to the maternity ward so holding on until I'm basically unable to do so any longer. Basically I have no meds as my scripts ran out, and I have been on daily IV anti emetics.

Life feels so hard to manage at the moment. At least I am now over half way through, 20 + 2 weeks today.

Waves Goodness- but are you not having IV until those ketones are horribly high again? They're probably high already, I don't understand this.Is this on the consultant's advice? I'm glad you've written that letter - but I wonder you felt able to.
Holdon I'm glad the advice is helpful.
Hope Everyone is coping. Wispa Sorry you had to be admitted.
Lucinda
xx

Not impressed with the gp. I took a urine sample to her which i tested just before i left and it was clearly 3+ (timed exactly too) She said it was only 1+. Didn't seem concerned that I haven't kept anything down the last 2 days. Took my weight and it was down another 2kg since nearly 2 weeks ago. She said you need to be putting weight on, not losing it. I'm going to scream or cry or something!

Find another doctor choccie. That one is clearly crap. If she doesn't even know how to read a ketostick then you are not going to get any help from her. And to tell you to put weight on?? Has she not been listening to you?????
Waves I can't believe they would be so cruel to do that to you but you are amazing to have managed to write a letter in your state. Good on you!

Hugs!!!

Waves I'm outraged by how you are being treated. It's just wrong. Maybe phone pregnancy sickness support for backing too? Hope they get their act together

Waves As Lotta says, PSS might be able to help, the telephone number of Pregnancy sickness support is 024 7638 2020 but that's an answerphone checked daily (but they're good about ringing back). You have to ring the regional office on their link to get someone live and I don't know your area, save you are on an island but here's the link. ][http://www.pregnancysicknesssupport.org.uk/contact/address-telephone/]].
I had thought that attitudes were changing, it seems there 's a long way to go, this is amazing, when you are so ill. I don't understand; what does the consultant say to excuse this? Chocckie I'm shocked too about the dr not reading the kesostick properly and that nonsense about you should be putting weight on - she cannot have listened to a word you said! Can you book an appointment with an alternative one, as it is such a business changing surgeries? That 3+++ and the constant vomiting should have warranted an admission...
I hope Everyone else isn't doing as badly...
Lucinda
xx

Sorry, Waves my links never come out, here we are. www.pregnancysicknesssupport.org.uk/contact/address-telephone/
Lucinda
xx

Hey guys... Sorry to see that you are all still feeling poopy.

Wave- thats so sweet, a boy! How lovely:)

Im feeling better physically, with the exception of occassional waves of nausea i have no more sickness, its relief, but at a huge price. All the other MC symptoms are dying down now... Just a dull ache and that yucky brown discharge everyone talks a about. My hormones are still all over the place, and i am going between numb and being incandecent with anger. Luckily though that awful feeling on the day it happened is gone.

I am so grateful that you all gave me kind words and support on tuesday... Thank you so much...

Vicki, I'm sorry again. Been thinking of you and reminiscing about my own mmc last year. Again allow yourself to feel angry, upset...however it is you want to feel. I'm hoping you also have support in real life but don't forget the hG family are always here too to help you through this horrible period in your life. Hugs.

Lucinda, I'm feeling a little better. Back on the cyclizine unfortunately but it's feeling controlled again and able to continue working. My doc is as ass so won't give me anything else. Almost 22 weeks so hopefully this silly illness will do one soon enough!

Vicki I think it's normal for anyone with HG to feel some relief when it ends, however it ends, so try not to feel bad about the relief. You might be emotionally up and down for a while. Hope you've got good people around you.

Tip for all - my physio said that because of where your stomach is situated you might feel better lying on your left hand side than on your right, as on the right you will be stretching the stomach tissues more which might increase nausea. I did notice last week that it was a bit worse on my right. Anything that helps...

Also, I'm a big fan of natal hypnotherapy (used it in birth last time with great success), and vowed I would try their morning sickness CD next time. I have tried it and it's obviously not working on the HG BUT I found that some of the techniques could be used to delay vomiting long enough to try to absorb some of the anti-emetic drugs, even a 10 minute delay can help. Didn't work every time and obviously not foolproof as I still ended up in hospital.

Hi ladies, so sorry to hear how rough you've got it.

Congrats waves on your boy, always has to be a man that's the problem

I'm currently 9+3 on my 4th admission for HG.

Can I ask, when any of you have been admitted have they discussed possible thyroid problems? The doc who admitted me said there may be an issue with it causing the sickness to be worse. It came out on my last lot of bloods during my admission mon and tues of last week. Any experience of this?

I have a private scan booked for tomorrow morning for reassurance as I had mmc last year at 9wks. Been trying to get through all evening to reschedule .

Chocckie I managed to delete that bit of my response last night, saying if ketones are still the same today, do go straight to A and E, bypassing doctors surgeries...Sorry.
Hayley Fourth admission, poor you . Are you still in hospital?
Reebok Sorry about the relapse, I do hope you start to feel a bit better soon, it's so discouraging. I've known others who felt good (comparatively) then bad again, but then it lifted again, so I hope it does for you.
WavesHave you been readmitted? Did you give the Support Network a try?
I do so feel so feel for you, you shouldn't have to be fighting your corner like this.
Poll That is fascinating. Any little helps...
Vicki I smashed my collection of 'snowstorm' paperweights in a fit of hysteria, following my mmc. Try and find something to smash, it does help! The hormones make one totally irrational.
Apologies to anyone rudely overlooked.
Lucinda
xx

lucinda yes I'm still in as only started drip at 10pm last night.

Waiting on blood results on possible thyroid issues.

Waves hope you get the support you need today. I wondered whether your GP could advocate on your behalf? Thinking of you.

waves so glad your scan went well!!Well done for the stroppy letter too- maybe write to a few national papers too? And How about writing to Princess Kate?! She'd help be an advocate! ~(or she bloody should!)

I have had a long week, which has cumulated in me waking up with some kind of throat infection and a puffy face, and am so tired and nauseaous that I've just had a long vomiting session. Feeling like utter crap- got one meeting at 2pm to get out of bed and attend then I'm spending all weekend in bed. Husband can bring me bacon and cuddles, but I ain't moving. Probably.

Thyroid - my fertility/gynae consultant said that thyroid issues can cause HG, or make it worse. Mine was measured and I was just within normal, but right on the border between normal and overactive. They're not treating.

I think it's overactive thyroid that causes the HG.

Hi ladies

Sorry to hear everyone is still having a miserable time, would be so nice to see people logging on to say their HG had vanished

I myself am having a really bad day. Since my trip to hospital I've felt a lot better and been able to keep things down but today I seem to have reverted straight back and no idea why! Haven't kept any food or fluid down which is disappointing as I'm really hoping not to be admitted again

princess that sounds like me. I get discharge and have a good few days. Anything from 2-8 days before I start vomiting again. Only way to stop it is to be re admitted and given anti sickness intravenously.

Hello, I feel like a bit of a cheat posting here because i am only a few weeks in but i am desperate for some support. I am only 7+5 but i've just had my first week of severe MS. Not sure what differentiates MS from HG. I've only had one day where i couldn't keep anything down but no day has been puke free except today and that's only because i am now on Cyclazine. (I rang my docs and she amazingly had the chemist deliver me some) I have horrific nausea and am still retching.

The reason i am feeling so desperate so early on is that I had horrific nausea, heartburn and sickness in my first pregnancy all the way thru. Along with a million other things including cholestasis/spd etc. But it was the sickness that made my life a living hell. I couldn't stand the smell of ANYTHING but especially onions and garlic. (normally i am a garlic fiend). and i could smell it on someone at 20 paces even if they'd eaten it up to 3 days beforehand...i am not joking! It was horrendous. And i was devastated because i couldn't wait to be pregnant. I thought i would of been one of those women who pranced about in floaty dresses and did yoga and swimming and ate nothing but fruit and veg! ;) UGH. Not a hope.

And i was SICK of people telling me that at such and such a point (eg 12 weeks, 15 weeks, 20 weeks etc|) i would get over it and it would stop. IT NEVER DID. And that's what i am so scared of now. My MS started a week later in this PG and i naively thought i might be spared this time around! what a joke! I can barely get off the sofa. I have no energy, everything is disgusting. All i can eat IF i can eat is white bread and butter/cheese/heinz tomato soup. (Random with the soup eh?!). I can't even have squash to drink because even a tiny amount of citric acid makes me vom. I am floored. My poor husband is doing everything and my mum is helping out when he's at work (with my DS who is nearly 3). Obviously I haven't been in work all this week but i can't imagine not being able to go in at least after next week. I have to do payroll year end and no one else knows how! :O

I am so depressed, i am worried my anxiety attacks will return (i am on anti depressants for anxiety) because i am so scared i will feel like this for the next 8 months. I don't think i can cope. I actually have seriously thought about ending it which i know is a horrifically selfish thing to think.

Has anyone else's severe sickness in this thread actually stopped at any point???? Is there ANY hope????

Jess Welcome, sorry you're suffering, I think only the unlucky minority suffer badly throughout, with most people it gets a lot better sometime between fourteen and twenty weeks, but to be frank a lot of people still suffer from residual heartburn, some sickness, etc. You are at the worst stage,as I am sure you know from before. If the meds don't work shortly, do make sure you get some kesosticks as it sounds bad enough for you to be dehydrated at this rate. Just because you suffered throughout last time doesn't mean you will this time - some women get off much more lightly with a different preganncy.
I think there is a grey area between really bad MS and Hyperemesis - specialists used to use various criteria, including weight loss, but I suspect that a large number of women have undiagnoised Hyeremesis and probably should have been in hospital for rehydration at some points and weren't.
I think everyone has dark thoughts, especially when they are frightened as it begins again and they hoped it wouldn't - I regret not going for it a second time. There's lots of support from the women on here.

Flo Sorry about bad day and puking session. Have a good rest, you deserve a medal for going in to work feeling like this.
Poll This is interesting about the thyroid - it seems odd, as various women on here have said they started off a bit overweight. Can one have both an overactive thyroid and be overweight? Glad your results have come back as normal.
Hayley I hope feeling better. What meds have they put you on?
Waves Any news?
Princess How are you doing for fluids today?
Hope everyone is coping.
Lucinda
xx