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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

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Original poster

Scan: choroid plexus cysts, echogenic focus abdominal wall

96 replies

Arabica · 17/03/2006 14:01

Just had 20 wk scan. Apparently the brain cysts aren't anything worrying but if there are certain other symptoms can be an indicator of Edwardes syndrome (I researched that, not what told me at hospital). Sonographer also found a white area in the abdominal wall and said she didn't know what it was, however all the major organs seemed ok (although they couldn't do the heart assessment cos of where the baby was lying). I have appt in fetal medicine dept for further scan but wondered if anyone had similar results from an anomaly scan?

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SoupDragon · 20/03/2006 12:45

Arabica, had this with DDs 20 week scan (together with the "I've no idea what this is" comment from the sonographer). Like Wools said, the fetal medicine centre at St George's, Tooting said it was most likely swallowed blood from a bleed as, when they looked, there were similar spots in the amniotic fluid and the spot appeared to be in the intestines with smaller ones in the stomach. They were not worried at all.

DD seems to be completely fine.

dinosaur · 20/03/2006 12:52

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babylily · 20/03/2006 13:40

Arabica - I really feel for you at this uncertain time. I remember the wait I had for CVS result was over a weekend and I never thought I would get through it.

I'm keeping fingers crossed for you that the scan is reassuring and conclusive enough for you not to need to have the amnio.

take care
babylily x

Original poster

Arabica · 20/03/2006 14:14

Hi dinosaur, babylilly and soupdragon. I don't think I am coping very well, but time is passing--it's just 48hrs until the scan now. Am dreading picking up DS, there are 4 of us with kids in DS' class due in August and everyone has had a perfect scan except me.

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emkana · 20/03/2006 14:18

arabica, the waiting and the uncertainty is just awful, isn't it? Unfortunately it looks in my case now as if I won't have uncertainty until my baby is born, because they can't say for definite whether there is something wrong or not.

I'm keeping my fingers crossed for you that your wait will be over much, much sooner, and that everything turns out okay!

I'm due in June and I know lots and lots of other women who are due around that time - it's horrible when everybody else seems to have no problems whatsoever and you're the only one, isn't it?

Good luck!!!!!

Original poster

Arabica · 20/03/2006 14:51

Yes, at least on here I don't feel so isolated. Plenty of worried mums in cyberspace.

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cori · 20/03/2006 16:43

Hi Arabica, jsut caught up with this thread. You must be worried sick. Definetly not helpful to know real life mums who are having problem free scans.
WHen I was pregnant with DS I was given a high risk for Downs, despite not wanting an amnio I was convinced something would be wrong.
I always think the worst too.
However if you were really at that a high a risk for Edwards Syndrome then surely it would have shown up in the blood tests.

Blu · 20/03/2006 17:00

Arabica - I am so sorry. the waiting is awful. I remember the w/e inbetween amnio and the results, just becoming hysterical, and throwing myself down on our bed, screaming to DP 'even if this baby is fine, how can I ever look at him/her and not remember that we talked about termination (for a non-viable chromosomal condiotion)? We have contaminated our loyalty to our baby forever'. Whatever happens, the waiting and the uncertainlty, assume enormous proportions that cloud everything else out. No matter how tiney the risk.
Take it one muffin at a time. Wednesday will come.

SoupDragon · 20/03/2006 17:18

Arabica, I won't say "don't worry" because that's impossibl. Of course you're going to worry. I had to waqit 2 days for a scan at the fetal medical centre and that was long enough. Then I had to sit through the scan whilst they looked at everything in great detail, told me they thought it was fine, then went to get the consultant who did it all over again. It was the consultant who carefully explained what he thought it was, where he thought it was and showed the other things that led him to that conclusion. He offered us further tests if we wanted them but reassured us that in his opinion this was unnecessary.

On the plus side, we did find out at this scan we were expecting a DD after 2 DSs.

If you search for posts by "tadpole" you'll come across the thread I started about the scan.

Original poster

Arabica · 20/03/2006 17:37

Cori, I didn't have any screening blood tests done.

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melsbabe · 20/03/2006 21:09

hiya im, new hear and was just having looko through messages when i saw yours,

my ds jake will be 3 yers old on 31st march and he was diagnosed with an arachnoid cyst on brain at 20 weeks. i hadb loads of scans throughout pg at st georges in tooting but he was born safe and fairly healthy by c/s.

hes now a strapping lad and doing really well, he's had 3 operations so far at 3weeks, 3 mths and 2years and we are waiting for another one at the moment.

just wanted to wish you the best of luck and hope it all clear in the end! its a tough time but you will get through it!!!

take care, mel jake and blob 9weeks + 6 days!

tamum · 20/03/2006 21:12

Arabice, I am so sorry you are going through all this. I do hope they have got it all wrong.
xxx

cori · 20/03/2006 21:28

Sorry Arabica, I thought I remember you saying that you had a low risk for Downs. Was that from a Nuchal scan?
What time is your appointment on Wednesday? I will be thinking of you til then.

Original poster

Arabica · 20/03/2006 21:53

Scan's at 2pm on Weds, which is going to come around really, really slowly,so have planned lots of things to keep me busy. At 12 wks I had a nuchal scan which gave an encouraging result, but of course, nuchal scans can't definitely tell you if everything is OK.
Melsbabe, glad to hear your DS is doing well. The cysts they've seen on my baby never cause trouble by themselves, it's just that they are an indicator ('soft marker') of a possible severe, usually fatal chromosome problem especially when mum is (a) old and (b) there is another soft marker present. Hence my panic.

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dinosaur · 21/03/2006 13:30

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wishingchair · 21/03/2006 13:37

Hi Arabica - so sorry you're going through this. I'm 20 weeks and had a scan at 18 weeks and they found echogenic foci on the baby's heart. I also had a good nuchal scan result and I was told that was a better indicator. We've been told not to worry (yeah right) and got next scan in a week's time. Not got anything else to add other than that I'm thinking of you xxx

Original poster

Arabica · 21/03/2006 15:13

Thanks wishingchair, it's really scary waiting for the scans though, isn't it?
Thanks Dinosaur xxxx Can we go out for another curry if all is OK??

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dinosaur · 21/03/2006 17:00

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Loulou14 · 21/03/2006 17:02

Just read all these posts, so sorry to hear what you are going through. At my 21 wk scan a heart problem was detected, I was referred to a fetal medicine unit. After a v. low risk nuchel I was faced with a 1 in 5 chance of a chromosome problem and a consultant telling us it was more likely than unilkely that our baby would be affected by downs, patou, edwards or most likely digeorge. Went ahead with amnio straight away - felt that thinking about it over the weekend would be like torture. Had to then wait 2 weeks for full results as they needed to clear 22q deletion (digeorge) which requires cultures to be grown. You ask how to cope with waiting - be around people who love you and cry when you need to, I did, constantly. It was a difficult time but the results eventually came back clear. Since then the heart condition has been downgraded in severity too.

The best advice I can give you is to try really hard not to research on the internet. I did it and always felt a million times worse afterwards and if you are offered an amnio don't be scared of it - weigh up the risk of m/c (less than 1 in 100) against the risk you have been given of a problem.

I'll be thinking of you.

PiccadillyCircus · 21/03/2006 17:06

Thinking of you Arabica

Original poster

Arabica · 21/03/2006 19:18

Loulou, thanks so much for explaining what happened to you. In some ways I wish I hadn't done so much research, but I'd much rather feel prepared. I just hope I don't have to make a choice about amnio tomorrow as I really don't know what I'd do.

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hoxtonchick · 21/03/2006 19:21

i'll be thinking of you tomorrow. xxx

noddyholder · 21/03/2006 19:22

Arabica I am crossing everything for you and sending you reiki vibes to help you stay as calm as possible in this situatuion.I have always watched your threads with interest as you have always shown such positivity as an older mother and several of your posts made me think there may be another chance for me to get pregnant again.So sorry to see you going through all this Best wishes for tomorrow xx

Original poster

Arabica · 21/03/2006 19:22

Hi PC, we met on the Sept 05 thread, didn't we? How's your little one?

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Original poster

Arabica · 21/03/2006 19:24

Thanks for the reiki vibes, noddyholder, I am feeling more positive at the moment so they must be doing their job.
I don't feel like an older mum at all at the moment, hospitals always make me feel v young and vulnerable. Have definitely got scary older mum hair today though!

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