Looking for some advice - APS and the care I'm (not) receiving

[sillybillybee]

I'm just wondering if anyone could share their experiences of the care that they received during pregnancy if they have APS (antiphospholipid syndrome). I was not diagnosed until halfway through my pregnancy and have been told very limited information (that I needed to start aspirin as I am at higher risk of preeclampsia and then needed to start clexane to prevent blood clotting).
No one has explained to me that I am at risk of blood clots in the placenta which can affect the baby, I have found out much more from reading research papers myself.
I am concerned that no one actually knows about the condition because they haven't told me anything and that this may put mine and the babys life at risk. I am not having 4 weekly growth scans, they have not to my knowledge checked the blood flow in the placenta at any time, and I have no idea whether they are willing to let me go to term or want to induce me earlier. I am now 32 weeks and feel that decisions need to be made.
I guess my question is did others in the same situation have growth scans/doppler scans and if a plan was in place to induce/c-section then when was this decision made. I am hoping to see my consultant next week and feel the need to be armed with as much information as I can.
Sorry for rambling and thanks in advance.

The clexane should stop clots forming in the placenta.

I had lots of growth scans and a doppler scan of the blood flow through the placenta at 20 and 24 weeks.

The doctors don't always know a lot about APS and different consultants have different ideas about when to stop clexane, whether or not to induce early etc.

However you are on the drug treatment and this is the most important thing.

I was originally told induction at 38 weeks, then at about 34 weeks told as all scans were going well they would 'let' me go to 40 weeks but certainly not over. In the end I didn't get as far as the first induction so it wasn't necessary. Clexane only stays in your system for 24 hours so they carry that on as far as possible, aspirin I finished at 32 weeks to make sure it was gone.

You may find they also have lots of diverse and interesting opinions as to whether epidural for pain relief or spinal for c-section are safe.

I think the problem is there are no definitive answers to most of the questions and if you have had a previous late pregnancy loss you may be treated more defensively than otherwise (e.g. growth scans, early induction).

Best of luck with the pregnancy and hope your consultant is helpful.