Hyperemesis Support

[LucindaE]

A new thread needed here already! Lovely Grumblin who started the second one, may be actually having that baby at this minute!

I hope this will be a source of support for present sufferers and ex sufferers alike and also worried family members.

I want particularly to mention my favourite feline FluffyWhiteKittens, who has been so invaluable a source of support on the old threads, and MOH, who has slaved to produce articles full of useful information and links to useful websites, LaTrucha, lovely CaramelloKoalaLover, Grumblin, NitNat, La, Lottie, Grandmagain, MaryLou, Cocoanuts and so many that I cannot name everyone for fear that the current sufferer may became annoyed at the long list...

Never worry about tmi or moaning. When suffering one has to discuss things that would make most people go weak at the knees and to have a good moan can help enormously with an illness where there is still a lot of ignorance and sometimes insensitive treatment.

It might help to remember - when you are at your worst - the words in that Eastern story.
'This Too Shall Pass.'

LucindaE
xx

all the ladies with hg big cyber hugs and you will get there in the end! some days will be brill and other days you wont be able to get out of the bed but such is life. i think hg is genetic as my mum and gran suffer from it too. only zofran worked for me nothing else - also mcdonalds milkshakes when i couldnt keep anything down -ice cubes are good too. i remember my dd2 saying to my sister 'when will my mum be able to look after me? -that broke my heart. with my first one my dh actually cried when he looked at me in hospital.hg sufferers need support in all forms.

Oh dear NitNat, sounds like you're having a difficult time with Matilda - really hope she's OK and things settle down a bit. Everyone who's had an HG pregnancy should be guaranteed an easy time post-birth, IMO!
Assuming Luce has entered the pink castle now which means, I think, that theonly is next up? How you're feeling?
Thanks for words of support sadalot (hope you're not sad a lot any more?) It is always reassuring to hear from women who've been through it. I think the emotional impact of the condition is in a way even worse than the physical side of it. Like you say, it alters your whole personality - or that's how it feels to me some days when I'm especially glum.
Hope everyone's having a good week otherwise, and has not been affected by any of the riots!

NitNat I hope you have a better day today, poor Matilda...
MOH That sounded traumatic.
Pearl How are things generally, with you?
Grandma Come through the portals...Those suffering badly don't read this bit - have a Devonshire cream tea on me, the sort my mother used to do when we lived there with home made jam and scones . I'm glad we were all useful,and that you liked the motto from the Eastern story. Here's another one I like that you and Luce and Johnny and everyone on here will well understand, 'The Blow That Doesn't Kill You, Makes You Strong'...
Still waiting for a form from the Hyperemesis network to be sent re slowmail, as it wouldn't come out on my ?&&! pc, but will be in touch, I am sure you willl be very busy over the next few weeks anyway...
Sadalot You are so right about ice cubes, and Ifound ice cubes of coke (left to go flat) useful too, and dare I say it, as I gather Feekerry had rather too much of this suggestion from people outside this thread, ice lollies...
How is everyone? Carmen Seapie Feekerry Augbergine LilyRose?
Oh, TheOnly, wow, you at the top of the list...
LucindaE
xx

thank you lucinda
I"m sure Luce and Johnny will post soon!

Come on luce&johnny we need news!

nitnat DS had a heart murmur - they picked it up when he was ill. Said it could be something to do with high temp he had but he's a healthy happy strapping 8 yr old now. DS2 had jaundice & had to go to hosp & go under a biliblanket - collecting wee is a right job. Hope you & matilda are ok today. You are a beautiful mummy & daughter in your pics.

waves to la in one handed typers club!

theonly eeeeeeeeek. top of list. top of list.

babycarmen Builders tea wee is a strong sign of dehydration - have you got yourself admitted yet. Hope so. Big unmumsnetty hugs - the despair feeling is so common but frightening with HG. We're all here to listen.

Congrats grandmaagain bet you're ecstatic.

Hope everyone else is ok - cocnuts, elliottsmummy, MOP etc

xx

Funny you should say that about the cream teas Luce, I got myself some clotted cream and have had 3 one today :)

Doing a lot better today, felt really sick this morning and was sure i was going to vomit but ive managed to avoid it so far, dosed up on meds and feel better now that im keeping something down. Still feel really dizzy, sometimes thats harder to cope with then nausea!
Got to get through weekly food shop tomorrow morning then a visit from the ILs and then SIL staying over with her daughter. SIL i can only cope with in very, very small doses, so thats going to be fun.
Feel very irritable today, how i love pregnancy.
Oh and to make things worse, DP is convinced something is wrong with baby because of how ill i am... i know this isnt true but try telling him that :(

Meant to say Lucinda but obviously thinking of Luce, oops.

hello again everyone [wave]
I'm still looking at the different treatments for hg and saw on a post that someone managed to get suppositories when the tablets or buccal tablets didn't work? That was my problem last time, i couldn't keep the tablets down and the buccal ones just didn't work with me and made me sick so I threw them up too :(

I'm not keen on suppositories but I know i'll be desperate for something to stay long enough in my system so if anyone has any idea which drug may be prescribed this way let me know!!!!

Hope everyone feels better soon

Nemo, what about IV drugs? I know cyclizine can be administered via IV & is said to work well that way. And I'm sure I've read somewhere (maybe on MOH's site?) that in the US it's possible to get a canula IV thingy fitted so that you can have the drip administered at home any time without having to go to hospital. Someone said that this is possible in the UK too if you make enough fuss? Hope I have my facts straight on this.

I had suppositories the first time but when the GP looked them up in his little book of drugs he said they weren't available in that form anymore.
There seem to be a few more day clinics that will admit for iv, so it may be possible to have iv administered drugs without hospitalisation in some places.

Grandma, could you possibly give your son in law a bit of a nudge :) I know he's probably busy and all but.....

the"ve gone home today so it won"t be long now
not teasing you all on purpose just want them to tell you its their story although I really want to!!!

I got an ondandsetron suppository though I didn't need it because the oral ondansetron was such a wonder drug for me that I never threw up again (till I was in labour but I blame that on gas and air). I've heard that if you shout loud enough you can get a nurse to give you IV treatment at home, but I think that would depend on local care arrangements, some places will be more progressive than others. So far the only HG day clinic I know of is in Birmingham, and there's a 'hospital at home' service in Oxford which will treat HG in some circumstances. See the news section on the homepage of www.pregnancysicknesssos.co.uk for details on those.

motherofpearl how far into your pregnancy have u got ? have hope because the minute you deliver that precious bundle you will feel fantastic (maybe a bit sore!!) and the next day you will lose that metallic taste in your mouth also (throughout my pg had to brush my teeth 3 times a day) also you can ask your gp wheather a district nurse can come out and give u iv fluids and cyclzine injections - i had this done for me
sorry lucindaE for the repetitive advice - i know hg sufferers rarely find solace in the usual cures for simple morning sickness
babycarmen i lost loads of weight in my previous pg but gave birth to a baby boy weighing 7 pounds 4 oz !!-the baby willl never be deprived of nutrients etc
also any hg sufferers have strange aversions to smells - i couldnt stand persil biological powder and onions
hope everyone feels better soon

Sadalot No need to apologise for repetitive advice, I am guilty of that here all the time;-'Ice lollies, ice cubes maybe made of flat coke, jelly, sips of flat coke, sips of water nibbles of Crisps, tinned fruit...This Too Shall Pass...Change the CD, Lucinda...' Unlike those who are advising in terms of ordinary ms, though, you know stuff will always come mostly up again, but it's a question of what is least foul on the way up and at least some of it goes through, though it seems not to...I still can't get over that three stone?! That is so awful...I thought it bad enough I lost a stone over a month, but the surgery insisted their scales said otherwise, I think being defensive... How old is LO now?
Nemo MOH Fluffy Last year someone who had a support thread in the US couldn't cope (it was on CafeMom) and pleaded with me to take over, which I did, but reluctantly, as I'd only had alternative treatment and the treatment there under health plans is usually far more aggressive. Then lovely PheonixFirecame on and was brilliant, and I handed it over to her as a US resident and far more suitable, but anyway, I noted that home IV was taken for granted there, but only if you had private insurance. Usually they get what's called Zofran there that way if they can't ingest it. What happens to people without health insurance, though, I dread to think and I suppose it's an expense thing, I know PheonixFire went untreated through her first bout...I suppose that must apply here, just as they try and prescribe cheaper drugs if possible?
Grumblin I know I had a message for you, thickhead has forgotten it.
Carmen I'm glad things are still bearable, if not good...
Looking forwrd to news of Luce's baby boy...
LucindaE
xx

babycarmen how are you today?
what about doing shopping online? may be more bearable than going into the shops???
got my scan today at 12+2
so far so good today, not eaten but not vomited my water up although did take stemetil this morning :)

Thanks Grumblin and Lucinda for asking after me. I'm doing OK thanks, much the same, still stuck on 1-2 voms a day but it is bearable. Burst blood vessels in face from Sunday's mega-vom have started to fade, thankfully!

Sadalot, thanks for your message. This is my 2nd pregnancy. Had severe N&V with 1st but not full-blown HG, so I know you're right that when the baby is born the sickness vanishes and it is all worth it! I'm 26 weeks gone today, 14 (and counting) to go. No matter how bad it is I always remind myself that it can never go back to being as bad as it was at 7 weeks!

Hope everyone is having a reasonably good day :)

P.S. How did your scan go LilyRose?

MNHQ have changed their hyperemesis page to add the stuff that we wrote. www.mumsnet.com/pregnancy/hyperemesis and added a page on coping strategies www.mumsnet.com/pregnancy/coping-with-hyperemesis. Hurrah!!!

well done moh

Yay! Great work MOH :) :)

:)

thanks everyone and well done on the new information page! It's great!!!!!

I know I'm being very dumb here but what is the pink castle?

a quick post from my hospital bed :) our daughter Harper arrived yesterday within 3 hrs of arriving at hospital! We don't hang about ha ha. Shame the same can't be said for my womb which wouldn't contract after meaning i lost 3.5 litres of blood and ended up in emergency surgery. Had 4 transfusions now and hopefully be home tomoro! I refuse to stay longer! 6lb 1oz so i keep having feeding charts waved at me as she isn't feeding a massive amount. But she is getting some she just sleepy! And i think she picking up on my stressed out vibe (plus its ridic hot and they don't feed you proper food as still in delivery suite) which isn't helping matters.

But, i still say birth was the easy part! Its amazing not being pregnant. Today i have not puked and i brushed my teeth with proper toothpaste for 2 mins followed by a minute of tongue scrubbing with not even a slight gag. If this is not bliss.....;)

Harper is actually gorgeous :) and not named in copying the Beckhams. Damn them! All i have got is "Oh copying posh spice" Pfft as if! She copying me :)

also can i moan about midwife feeding charts? Who even knew they kept them no one has explained this to me and now its all Oh if baby not fed by 3am then the paediatricion needs to see her....hang on. No one has explained to either of us about these charts, maybe if they had we would have taken more notice! I had extra scans and at no point were they worried about my size or baby's yet since yesterday they freaked as map measuring 31Wks (not possible! Def 37 last week). 6lb 1oz is not that small based on my size and the fact i have had HG. Then they said i Didnt have a lot of fluid round baby yet 36 week scan fluid was fine? I am getting so stressed and angry! She only a day old for god's sake she is feeding some! I don't care about yr charts just let me go home! Poor midwife who came in tonight got it in the neck. I did apologise as i know it not her fault but explain to us what you want from us and don't use my blood loss as an excuse for not doing so now getting me stressed. Am i wrong to feel like this? Its not like she hasnt fed its just not every 3 hrs like they seem to think she should! Even when syringe fed she couldnt be bothered she just slept then when it came to do again no one was around as busy (and i had to wait 5hrs for my next transfusion which was apparently urgent too). She has filled about 5 nappies with both Marmite (Yuck!) and wee but no one asked us about those! I am so frustrated. And don't give me the Oh if anything happened i would feel guilty. Its my bloody baby if i thought she was getting nothing then of course i would be in agreement!

Sorry rant over :) someone pass me the pink cake and where the hell is luce and johnny? Hee hee