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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

A complete nightmare!

122 replies

morrison1976 · 27/04/2011 20:46

This is me and my wifes first baby, and to be honest, it has been a complete nightmare for my wife. My wife is currently 20 weeks pregnant. For the first 15 weeks, she felt sick all the time, day and night, then about 4 weeks ago, she started to get pains in both hands and feet.

At first, her feet were worse, and she could only walk for 10 mins before her feet became so painful. Sometimes she will just sit there and her feet would start aching and sometimes this would last all day and night. At the time, my wifes hands would only hurt when she moved them, but the last two weeks, her hands have been so bad, even when she does not move them.She can't sleep at night because of the pain and the pain is there 24/7.

We went to our midwife and she said its most prob fluid, and she booked us to see a Physiotherapist. We went to see the physiotherapist and She asked loads of questions about the symptoms and check her hands and feet. She said it was worrying that my wifes feet and hands were really hot, and the fact that she couldn't straighten her hands or make a fist. She said my wife might have severe carpal tunnel syndrone, and said its quite rare for a woman who is only 18 weeks gone to have these symptons.

We told her that our doctor was going to make an appiontment to see rheumatologist. She went to check to see if they got my wifes information, and it turns out that our doctor did not even bother to tell them!!! So the woman said she will sort it out. She gave us some splinters for the hands but they did not work. She said that when we go home, i should get a bowl of hot water, and a bowl of cold water, and my wife should dip her hands in the cold for a while, and then the hot. We done this, and the symptoms did go for about 30 mins, but then they just come back stronger

we went to the hospital. We saw a doctor and she seemed to think that it was carpal tunnel syndrome. She took us to the anti natal department in the hospital. Another doctor came along and done some simple tests with my wifes hands and said he did not think it was carpal tunnel. He told her that she will have to stay there overnight and take a blood test. Also, he said he would get the Orthopedist doctor to check her out.

That night after i left, she was really bad. They gave her some sort of drink and she fell asleep for an hour, but woke up again in pain. In the end, they gave her an injection of Morphine that knocked her out all night.

The next day five Orthopedist doctors came over and done some simple tests. He said he did not believe it was carpal tunnel syndrome.The blood tests came back and they were fine, with no sign of arthritis. He said it was a complete mystery. He said he would get the Rheumatologist to come and see her.

He came and done some tests. He said he believed it was Rheumatoid Arthritis and they would need to do another blood test.

She was in so much pain they injected her with some sort of steroid and gave her 30mg codeine.

They said it will take a few days for the steroid to start working, so she should take the codeine, two every six hours. We have an appointment to see the Rheumatologist on the 5th may.

To be honest, the 15mg codeine did not work, and the 30mg is not working too and the steroid did not work either

I was very skeptical about the steroid because everything they have given my wife has not worked (apart from the morphine) but she can't take that everyday.

My wife was bad again, so i took her up the hospital.The midwife there said there is nothing they can do about it, and we really should not be in the marternity ward because its not pregnancy related, which is a load of rubbish. Anyways, another doctor came and could see she was in alot of pain, so he said she should stay the night.

She was in alot of pain that night and they gave her the drink again and the morphine, but they did not work as well as the first time she took them and the pain was there all night.

In the morning, a doctor came to see us and she said the blood tests came back fine, and she believed that the problem was fluid in the hands and sensitive nerves. She said there is not much they can do, and she will have to wait to see the Rheumatologist. Also, one of the drugs the midwife gave my wife was IBprofen. I asked if it was safe, and she said it was , but not after 24 weeks. Anyways, after two days of taking it, the doctor said we should not be taking it and stopped it straight away.

The sad thing about this, is they don't even know 100% what is causing this. I have had to stop work because my wife can't do anthing with her hands. She can't eat, wash, brush her teeth etc. She cries everyday because of the pain, and night time is the worst time. She said she has never felt pain like this before.

What i do to ease the pain in wrap a frozen bottle in a thin towel and she holds it at night so it numbs the hand and she can sleep. It the day time she has her hands in a bowl of cold water. But as soon at she takes her hands aways, they get so hot and the pain comes back again.

I rang the Rheumatologist today and managed to get an earlier appointment. We need to see him tomorrow, the same day we have our 20 week scan.

I am so stressed over this, and what makes it worse is, i have not come across one woman who went through, or is going through the same thing as my wife.

My wife is in a really bad way, and she is worried that there is nothing they can do about it, but she says she can't take the pain much longer. She said the pain feels like the time she trapped her finger in the car door, but this time its all over her hands and wrist 24/7. Also her hands are so hot and she has a burning pain feeling too. When i use the frozen bottle, the heat of her hands melts the ice quite quickly, thats how bad it is.

I hope we can get some answers tomorrow because there is only so much my wife can take. Im hoping someone here has gone through the same thing.

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morrison1976 · 10/05/2011 11:42

I don't think its scleroderma. Very different symptoms.

I think they are going to start my wife on spirin. I gave her some yesterday, but i gave her 3 300mg tablets, which i now know is a no go, and she should only take 75mg. It was just a one off, but it worried me :(

The Rheumatologist emailed me back, which suprised me. Here is what he said.

"I think the most likely diagnosis is Erythomelalgia, and have in fact sought advice from several colleagues. This can occur specifically in pregnancy, though I cannot in all honesty be totally confident that it will settle after the pregnancy is complete. Your wife ought to come again to rheumatology to have some more blood tests in a few weeks. Do you have an appointment? I also suggested aspirin therapy which can be effective. Was this started?"

Like i said before, i have not come across one single person who has this condition through pregnancy, and i have searched everywhere online. Also, the more i look into the disease, the more i think that my wife does not have this. My wifes hands are hot, but they are not burning, like they do with people with this condition. My wifes main pain is shooting pain and aching pain in the hands. The feets have not been that bad for the last few days. In alot of cases, the feet are always worse than the hands.

I am going to have a good disscussion with the Rheumatologist on thursday about this. Also, my wife thinks when she yold them about her stymptoms, she did say burning, but what she meant was they feel hot, but alot of flare up feel hot.

I would also like to add that my wifes hands and feet are not red, like you see in Erythomelalgia. Yes, she has red blotches on her palms and souls of her feet, but if you look at people with Erythomelalgia, their hands and feet are bright sunburn red.

I am really begining to think that this is a blood flow problem. The heart is pumping more blood around my wifes body, so the blood flow has increased. Her smaller limbs (hands and feet) are just struggling with the extra blood flow.

My wife has a accupuntre appointment on friday. We will se if they can help us.

OP posts:
moregranny · 10/05/2011 18:18

I have a condition called Fibromyalgia, that started with severe pain in my hands and feet, nothing has ever shown up in any of the tests that I have had except for some raised inflammation markers in the blood, have a look on the Fibromyalgia uk website, x

captainbarnacle · 10/05/2011 18:30

I have been following this thread too - thinking of you and your wife.

It occurs to me that using online resources can be very enlightening - but they often include the extremities of cases. For instance, the photos of the 'sunburnt red hands and feet' would be published online but might be the extreme scenario.

Really hope the symptoms can ease and that this is only temporary.

KatieMiddleton · 10/05/2011 18:50

May I ask what might be a daft question but did your wife start taking any supplements or medication in pregnancy? Or start any complementary therapies or beauty/pamper treatments?

I am no doctor or expert of any kind (and have probably watched too much House) but I'm wondering if this could be some sort of allergic reaction or secondary condition caused by heavy metal poisoning?? Particularly because it started when her sickness stopped? It could have been something she'd been taking all through the pregnancy but wasn't absorbed due to the sickness or something she started taking for a while before her symptoms started.

If your wife is taking anything that has not been prescribed by an NHS doctor you should tell the doctor. This includes herbal remedies and powdered/pill supplements or creams even if you trust the source and she has taken it before.

I wish you all the best.

morrison1976 · 10/05/2011 20:23

moregranny

I don't think its this condition. I am really begining to think that this is just a pregnancy related condition. It just happens to be rare. Her feet and hands have been quite ok today. We went out for a walk and had something to eat. There was pain there, but not half as bad as it has been. I am keeping my fingers crossed that my diagnosis is right.

captainbarnacle

I have spent the last week researching this condition. I have read people who have the condition, and i and begining to believe that she does not have this. The reason i belive this is because

1- she had no symptoms before she was pregnant
2- this started to happen in the 2nd trimester. 1st trimester she felt sick constently. That stopped, and this started.
3- She does not feel a burning sensation, it just feels hot, and many people feel the same when a part of there body is inflammed
4- Her hands and feet are not red. Yes, she has red blotches on her palms and souls of the feet, but i believe this has to do with the extra blood flow.
5-I just find it hard to believe that at the start of the second trimester, she so happened to get a disease that is so rare that many doctors don't know what it is.

Now, i could be wrong, but im sick of feeling negitive about all this. I need to start being positive, for me and my wife.

KatieMiddleton

The only thing she uses is hand cream (vaseline) and a brand called "simple" facial tonner andhydrating light moisturiser. Apart from that, nothing.

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memphis83 · 10/05/2011 20:48

morrison, how awful for you both. I had a lot of problems during my pregnancy (due to an illness that ive had a few years) I was in hospital a lot and was on morphine, tramadol and the other pain relief you said during this time, I also had general anesthetic and anti clotting drugs, i just wanted to reassure you my baby was fine when born eventhough i took most until 30 weeks. I hope hearing that someone else took pain relief they say you shouldnt while pregnant reassures you a small amount. I had symptoms of pain never realised before and had to be restrained as i was delerious with pain at times and would scream in agony. I hope they get to the bottom of this or as you hope the next trimester she will feel better. You truesly are an inspirational man helping your wife as much as you do, good luck for the future with your baby girl

morrison1976 · 10/05/2011 20:57

memphis83

Thank you for that post. Yes, i have been worrying alot about the drugs my wife is taking. But i know she has no choice at the moment. Like i said before, every night i pray before i go to sleep, and im not even a religous person. My wife has been ok today, the best i have seen her in a long time, so i am going to stay positive about this.

One thing i would like to mention. My wife got a letter the other day. It was an appointment for her 24 week scan. I thought this was odd because as far as i know, and what people have told me, you don't have another one after the 20 week one, unless they think they need too.

My wife rang them up concerned, and that said its routine, and she will have one on the 28th,32nd and 36 week. They said its nothing to do with my wifes condition.

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SuperheroYuki · 10/05/2011 21:23

Maybe it's not condition related but IS because she's a 'problem case' - I'm certainly only getting 2 scans, I've had both - one at 12 weeks and one at 20 and they said there weren't any more, I am in Yorkshire however and every hospital seems to be different! Good luck

KatieMiddleton · 10/05/2011 23:01

Was your wife not taking a supplement with folic acid or anything like that at any stage in her pregnancy? A multi-vitamin? This is quite usual in pregnancy so I'd be surprised if she's not taken anything at all.

Any way I am probably going off on a tangent. I think you're right to try to be positive. Good luck Smile

ChunkyChick · 11/05/2011 10:50

It's great news to hear that your wife is feeling a bit better Morrison. That must buoy you both up so much. Hope it continues.

eurochick · 11/05/2011 11:15

It's a long shot, but a friend of mine has this condition and the level of pain sounds similar, although hers started gradually rather than suddenly. It took ages for her to be diagnosed as it is not common, so i am just flagging it as something you could suggest the doctors look at.

It's called rsd (reflex sympatetic dystrophy) and crps (can't remember what this one stands for, sorry!).

morrison1976 · 11/05/2011 12:14

My wife took folic acid like she was told. She has also taken vitamin d calcium tablet, which the doctor told us was fine.

As for complex regional pain syndrome. Thats what they thought she had at first, but my wife has had no accident, or operation to cause this, plus its in both hands and feet, so this condition was ruled out by the rheumatologist.

I have just got an email back from the Erythomelalgia association

" I wish I knew the answer to your question about your wife's EM going awayafter she gives birth, However, we are all volunteers and have no medicaltraining. I know a lot of people who had EM and gave birth, but all hadEM for years before becoming pregnant and I'm not personally familiar withany who's EM went away.Hopefully, her doctor is correct and her's does. "

Well, i still have to come across one person who got this condition while pregnant.

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RJRabbit · 11/05/2011 14:42

Could it be severe carpal tunnel?

I had Morton's Neuroma which made my foot sting like hell, and I hate to say it, but it has come back during this pregnancy. But I don't think it's likely your wife has this. Morton's Neuroma are tumours growing on the nerves between your feet/hand bones, but would normally just be one hand/foot and would probably take a bit more time to develop into a severe case like she has. Has anyone scanned her hands and feet though? There may be something to see there.

morrison1976 · 11/05/2011 15:15

We have an ultra scan appontment this monday for the hands and feet. I really don't know if this will tell us anything. The more i read, the more i find out about rare pregnancy condition cases, the more i find that most of these conditions go after birth.

Also, another thing is the fact that some pregnant woman get Diabetes and Rheumatoid Arthritis. These two examples have no cure as such, but vanish after the pregnant woman gives birth. So, even if she has Erythomelalgia, does not mean that the condition will go after she gives birth.

Also, im looking into Peripheral neuropathy, which some pregnant women get while pregnant, and some symptoms some like my wifes. Symptoms vary, but normally go after giving birth.

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Renaissance227 · 11/05/2011 15:31

I'm glad your wife had a good day the other day and could actually go out for something to eat with you. Hopefully she will start to have more days like this and things will gradually get better.

How is your wife's blood pressure?

morrison1976 · 11/05/2011 15:36

My wifes blood pressure is good. When she was in hospital for 5 days, they checked it every hour, or something like that.

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Renaissance227 · 11/05/2011 15:41

How is she today? x

morrison1976 · 11/05/2011 16:00

Today she is not that bad. Over the last couple of days, her feet have improved a great deal. She gets pain in them every so often, but they are not as bad as they was before. Her hands are always hurting, but the last two days the pain has been bearable.

This could be down to the meds kicking in. After more research, i have realised that this could be down to a Hormonal imbalance condition.

The more i research, the the confident i become that this is not Erythomelalgia. I have spent days and night researching this stuff, and i hope my conclusions are right.

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Renaissance227 · 11/05/2011 16:13

Hopefully things will continue to settle, meds or not, and then after she has had the baby will go as the consultant suggested. Keeping my fingers crossed for you.
Chin up. xx

tavish · 11/05/2011 16:17

Just wanted to say I've been following your thread and although I have no words of advice or knowledge of this just wanted to say so glad that your wife is beginning to feel better and hopefully will continue to do so best of luck and that she's really lucky to have you.

RJRabbit · 11/05/2011 16:46

I suppose there is also the option that she see a Chinese doctor here if things don't drastically improve once our European medics have exhausted their options?

morrison1976 · 11/05/2011 16:53

well, we are going to see an accupuntre this friday. Someone on here recommended them to me. So we have to go and see them and see what they can do

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PoppysMom · 12/05/2011 08:26

Good luck Morrison and DW!
I am very happy that your wife seems to be having much better days lately.

Continuing to keep my fingers crossed

morrison1976 · 12/05/2011 17:06

Well, we went to see the Rheumatologist today. He knows whats has been happening, and knows my wife spent last week in hospital. I told him i disagreed with the other Rheumatologist that this was Erythomelalgia, and he agreed with me. He also agreed that this could be something to do with the nerves brought on by pregnancy.

We have an appointment on monday to have a hand ultra scan, and another appointment later that day to have a vascular assessment. I also asked him to take another blood test to check her vitimin d, which we should get back next week.

My wife has her first accupuntre appointment tomorrow, and i hope this helps.

She has also been told to take baby aspirin, once a day. Has anyone else taken this, and is it safe in pregnancy?

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moregranny · 12/05/2011 17:38

Good luck for tomorrow, x