Help- tolieting regression with suspected neurodivergence in a chils

[jimjam66616]

Help!!! my boy is 4 and was clean for 6 months the december last year hit and he started having poop accidents. We went to gp so many times (some where helpful and some were absolutely horrible) and contact health vistor etc, finally we started seeing progress this july with my little one not having so many accidents. During this time we had a roght to choose refferal places suspected mild neurodivergence. Fast forward to 3 weeks ago he starts school we have 2 clean weeks with very few accidents at home dueing that time, then for last 1 week to 10 days complete regression again and more accidents. Sometimes he says he doesnt feel it, sometimes he does, sometimes he asmits ro being lazy, but since december of last year he has not queued me he needs toliet. Its always me who ques him. Has anyone experienced this with neurodivergence in there children ita only poop not wees. Just looking for people experiences as we have tried and done everything suggested

Sounds like chronic constipation. HCPs should know about this and be able to treat it but ime it’s hit & miss.

I recommend looking at the ERIC website and UK Bladder & Bowel charity website. DC’s bowel is probably impacted and needs medication to clear it as once it’s impacted you get accidents as the body can no longer control it.

you need to ask the GP for help and for a referral to a specialist service. There is a set of NICE guidelines on this as well

it it is chronic constipation food alone won’t solve it it needs medical treatment

my recommendation to ask the charities for help is because we struggled for years with GP’s who basically failed my DC and it was only once I had attended a morning webinar where it was all explained by a specialist nurse that I realised exactly what was happening & could advocate for him properly and basically tell the GPs what he needed - and the nurse he had was amazing

it is more prevalent with ND children due to eating habits linked to sensory issues & I’ve also been told that low muscle tone is also more common in ND people which also contributes

It does sound like constipation. I found the guidance from ERIC to be invaluable.
We didn't need to go through the full impaction.

My child had no awareness of when they were going in their underwear. They are now on a movicol maintenance dose and mostly avoid dairy as this is a huge trigger for them. We have very few problems now. They are diagnosed adhd and awaiting an asd assessment.

At the time I found it so stressful. It felt like we had poo everywhere. Thankfully once I realised what the problem was, the movicol helped quite quickly.

I think there is a national shortage of movicol at the moment so you may have to use laxido instead.

thanks for this we have done 4 months of movicol and it made things worse. I spoke totally eric and they suggested senna but go reluctant as it is addictive for there bowl. Honestly its so hard

In what way did it make things worse? What dose are you on?

We only need one paed sachet a day any more than that and things are too liquid.

I found that what ERIC suggested was worse case scenario and we actually didn't need anything like their dosing amounts.

Their general guidance was very helpful though.

Yes. Overflow from chronic constipation
Looking back it was an early sign she was autistic.

We had help from the continence team and it took a long time to sort. But we did and she has never had it again.

Speak to school nurses and GP

Ps we decided with the specialists not to do a movicol full clear out. She responded really well to a bowel stimulant instead with lower doses of movicol. Lots of other things we did also like toilet sits, poo charts, monitoring drinking