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Post-natal clubs

Join our Postnatal Clubs forum to find parenting advice for newborns.

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Original poster

SUPPORT THREAD FOR MADMOUSE!

72 replies

toomanyshoes · 04/02/2008 16:34

Thought it would be good to have somewhere we can show a bit of support for Madmouse while her lovely new DS is poorly.

Thinking of you all xx

OP posts:

Are your children’s vaccines up to date?

Set a reminder

Amani · 04/02/2008 16:53

Just seen your msg on the post-natal thread and would just like to send you lots of hugs. Congratulations on the birth of your little boy and I really do hope that he get's better soon
xxxx

Lulumama · 04/02/2008 16:58

don;t know the story , but always happy to add positive vibes where necessary.

LuckySalem · 04/02/2008 17:00

MM - Hope Nathan gets home soon. Thinking of you.

barristermum · 04/02/2008 17:09

MM - so so sorry to read about the terrifying start to Nathan Isaiah's life - you, your DH and lo are in my thoughts and prayers and I do hope the professionals can discover what is wrong so quickly that this terrifying time becomes a distant memory. Hang on in there and let us all know if there is anything we can do.

pendulum · 04/02/2008 18:21

Madmouse- I have been visiting the Jan thread occasionally to look out for some old faces. Saw your post and had to send you my heartfelt good wishes although we have never 'spoken'. My DD1 was taken to SCBU hours after birth, for different reasons but also completely unexpected and it was a while before a diagnosis was forthcoming. Your post sent a chill through me as I remember the fear and the helplessness I felt during those few days.

I hope you are able to have contact with Nathan and, although it might be painful, take some pictures, videos etc if SCBU will let you. My DD is now 4 (and absolutely fine) and, although I still feel sad that her first days were spent away from me, it helps to be able to look at the pictures to feel that those days are not 'lost' to me.

Sending you hugs,

p x

Susiemj · 04/02/2008 19:02

madmouse - again just sending you all my sympathy. I will be praying that you all will be home safe and sound very soon.

AngeChica · 04/02/2008 19:16

Thinking of you madmouse. Babies even newborn ones, are stronger than many of us realise and can overcome so much. xxxxxxxxxxxx

laughalot · 04/02/2008 19:34

Thinking of you and sending get well wishes

MamaMaiasaura · 04/02/2008 22:00

Madmouse - posted on the Jan thread but wanted to post on here too as understand you will prob not want to trawl through all the messages. Also understand that it is unlikely you will be online very often.

Am thinking of you all and hoping little Nathan recovers very soon and is back in your arms. xxxxxxxxxxxxxxxxxxx

ayrshirelolo · 04/02/2008 22:16

Madmouse i just wanted to say that i am thinking of you, praying for you and hoping that baby Nathan is making good progress and that you can care for him as you've planned soon. You have been a constant source of support, friendship, positive energy and fun on the Jan thread, and if we can do anything to help you or support you or your family then please let us know. Take care of yourself too, you are a special person who has been through a very traumatic delivery by the sounds of it and Nathan needs you to be strong. with love, lolo xxxxxxxxxxx

fluffymummy · 04/02/2008 22:44

Madmouse - I posted on the Jan thread, but just in case you get a moment to check in here...I just want to echo what Lolo said (I couldn't possibly express it any better) - we're all really rooting for you and you are in our thoughts and prayers. Lots and lots of love and hugs, fluffy xxxx

madmouse · 05/02/2008 10:01

hi all

so touched by all your support it rreally helps

we changed nathan s nappy yesterday and even though he is sedated he does respond to touch.

no closer to a diagnosis it can take a while

am finding it hard to express as i remember what it was like to feed him for real plus he cannot have my milk as long as they do not know what causes the fits

still in hospital. suspected pre eclampsia.probably home tomorrow. luckily we live close to hospital.

xxx

Dotsie · 05/02/2008 10:43

Madmouse, not been on for a while, but saw your news and just wanted you to know am thinking of you, and praying that little Nathan makes a full recovery very soon. Keep thinking positive thoughts, and fingers crossed for a diagnosis very soon. Love, prayers and hugs to you, your DH and especially Nathan, Dot xxxx

BWMum · 05/02/2008 13:04

Madmouse - just wanted to let you know that I'm thinking of you, your DH and Nathan and praying all will be ok for Nathan. I can't begin to understand what you must be feeling, but you have all my thoughts and sympathy.

Naetha · 05/02/2008 15:13

Madmouse - your post sent a chill down my spine, and I hope everything will be better as soon as possible so you can all go home together.

My thoughts are with you and your family, and great big hugs and positive vibes to you and Nathan

xxx

lilyloo · 05/02/2008 15:56

Madmouse posted on post natal thread but just wanted to send you , dh and Nathan lots of (((((((hugs)))))))))) hope they find diagnose him very soon and he can come home and you can join us all postnatal thread.
Take care LL x

sideways · 05/02/2008 22:59

Madmouse, just wanted to say I am thinking of you and hoping that Nathan makes a full recovery very soon and is able to be with you. Take care xx

ladylush · 06/02/2008 08:32

Madmouse - hope your little boy is home with you soon. Thinking of you and your family xx

Susiemj · 06/02/2008 11:17

MM - just checking in to say I'm thinking of you. I am praying for progress and strength for you.

Original poster

toomanyshoes · 06/02/2008 11:44

Hi Madmouse, still thinking of you and sending Nathan lots of get well vibes! Any more luck with the expressing? Are the staff in SCBU giving you lots of support? Great that you are able to change his nappy and have some physical contact. Let us know how you're getting on when you get a chance x

OP posts:

lilyloo · 06/02/2008 12:31

Hoping things are improving for Nathan and you and dh are getting to spend some time with him x

katyt1 · 06/02/2008 16:08

Just wanted to add my thoughts and prayers fro you madmouse.
May Nathan be strong and home with you soon.
And best of luck with expressing if you can but don't stress if you can't - looking after him and yourself & dh is most important now.

positive vibes.....

madmouse · 06/02/2008 22:54

Hi all

Am home from hospital, without my little boy and it is hard. It is also good to be home, as it is much more restful.Expressing lots of milk, which he now actually gets to drink (albeit down a tube in his stomach!)

We have had a diagnosis and it is pretty devastating. The good news is that he is not going to die and I am very grateful that I get to keep my beautiful boy. But he is brain damaged. The part of his brain that turns what his eyes see into images is especially damaged and it is very likely that he will never see . He is also likely to have epilepsy. Some other areas of his brain are also affected but as babies' brains have some capacity to rewire it is impossible to tell how things like mental ability will turn out.It may be fine, or he may have a specific problem like dyslexia. He is likely to talk, walk hear and be able to form relationships, which is very important. I swing between relief as I was so scared he would die and fear of what the future holds for him.

At the moment he is off the ventilator and slowly waking from sedation while they find the best way to control the epilepsy. It is good to see my gorgeous boy emerging again from under all the wires, but life is very tough.

The community at my husband's college is rallying round. Some were here to take us home from hospital and deliver a massive shop. Meals are being arranged for us. Hundreds of people are praying for Nathan. We are hanging in there.

Thanks so much for all your support!

LuckySalem · 06/02/2008 22:58

MM - I'm glad to hear your home. Sorry about the diagnosis and I hope he comes out the other side not too badly damaged.

If you need anything from us just ask, whether it's a shoulder to lean on (digitally) or if we can actually DO anything just ask and i'm sure we'll all find a way.

Try and keep your chin up and we're all thinking of you.

Susiemj · 07/02/2008 04:50

MM - So happy little Nathan has had a diagnosis and the future is a bit brighter. It must be lovely to see him waking up and taking your milk. Well done you for expressing so much!

I'm glad you've got lots of friends around to help - although I would have expected you to have lots of friends.

You have lots of friends on here too. If we can do anything, Let us know. For example, do you have enough baby grows etc?

Best wishes to you, dh and baby Nathan. xxx

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