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Original poster

SUPPORT THREAD FOR MADMOUSE!

72 replies

toomanyshoes · 04/02/2008 16:34

Thought it would be good to have somewhere we can show a bit of support for Madmouse while her lovely new DS is poorly.

Thinking of you all xx

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pendulum · 07/02/2008 07:15

oh madmouse (((((hugs)))))

You are being so brave. But this just isn't what you expect to happen when you pack your bags for labour, is it. I'm thankful you have a strong community supporting you, make sure you lean on them as much as you can.

thinking of you xx

ladylush · 07/02/2008 08:56

Hi madmouse, my heart goes out to you It must be such a relief to know that he will live. My close friend is a Paediatric Intensive Care nurse so if you have any questions I could pass them on to her. Sometimes, in a situation like this it's hard to process all the information you're given. I'm glad you're friends and family are giving you and your dh lots of support.

barristermum · 07/02/2008 09:33

Hi Madmouse - our hearts are going out to you. As pendulum says - this is not what you dream about in the months of pregnancy. So glad your little boy is safe and keeping fingers crossed and prayers being said that he battles as hard as he has so far to mend and flourish. Well done for expressing so much - these are hardly the best conditions for milk production ad you are clearly giving him every support you can. All good and heartfelt wishes go to you as you battle on and your dh as he supports you and your little boy. Keep us informed when you have chance. We appreciate there are many other more important things for you to be doing right now.

Dotsie · 07/02/2008 09:53

Hi Madmouse, glad to hear you're home, and the future for Nathan's not as grim as you first feared. Well done for expressing so much. i hope it won't be too long before you'll be able to feed him again properly iuswim. My thoughts and prayers are with you and your dh, and i pray that Nathan will be home with you soon. Please let us know if we can do anything to help. take care, don't forget to rest and keep strong. love and hugs, Dot xxxxx

lilyloo · 07/02/2008 13:55

hey mm glad your home and hope Nathan will be joining you soon. Have you been given names for any support groups as it may help to talk to other families with children with same condition r/e what the future may hold. Nathan sounds like a little fighter so take things one day at a time and i am sure he will surprise you. The good news being they waking him up so hopefully you will get more lovely cuddles today!
Take care and sending much love to you all and thanks so much for popping back we are all thinking of you.xx

mixedmama · 07/02/2008 14:41

Hi madmouse,

have not been on for ages and have just seen this. Glad you are home and your little boy seems to gettign better and is able to drink your milk now. Am thinking of you.

Mixedmama

BWMum · 07/02/2008 15:13

Madmouse - very glad to hear Nathan is more stable and you at least know what has happened to him. Will keep you and him in my prayers. I hope you are able to take him home soon.

bluebell82 · 07/02/2008 15:28

Hi madmouse- have prayed for your little Nathan and so happy that his future is looking brighter. He has a strong mommy that will always cuddle him better! Hopefully you will be holding him and feeding him very soon. Take care and sending you much love xxx

rockdoctor · 07/02/2008 18:02

Hi Madmouse - There's not much I feel I can add to all the messages that have gone before. Thinking of you and praying for you both. Hope little Nathan is able to come home and enjoy your cuddles soon.

mum2boys2girls · 07/02/2008 21:41

Hi madmouse wanted to add my postive vibes ,my brother was born brain damaged my parents were told he wouldn't walk ,talk ,see or be able to have much quality of life today he is Thirty Two and the most amazing person i know ,he reached all his milestones but at his pace he has proved them all wrong , he has special needs but he has the most fulfilling life he works ,has a girlfriend and is a joy to be around so i am a great believer in the doctors can only say what could be they are only following there own guidelines i am praying for little Nathan , my mum said she just knew when she held Justin as a newborn that he would prove them wrong as he was a fighterps he has also suffered from epilepsy from day one.

katyt1 · 07/02/2008 21:58

hi madmouse, would like to echo mum2boys2girls comments, friend of mine had twin girls 4 yrs ago and was told one wouldn't make it through pg, then through first few days, and so on. wouldn't walk, talk, etc. and tho she has done things at her own pace too, she is walking/running, talking/chattering, etc. now.

all the very best wishes, thoughts and prayers

ayrshirelolo · 07/02/2008 22:07

Hi madmouse, glad you are home and that at least Nathan appears to be off the danger list, just hope you can bring him home soon. I don't have anything to add to what everyone else has said, but i know you and your dh have a strong faith and good support and imagine that both will be valuable to you in the future. Thank you for letting us know how things are, tell that beautiful boy of yours that his mumsnet aunties are all rooting for him! Take care of yourself, lolo x

madmouse · 08/02/2008 10:43

Hi all

I can't believe all the messages of support that keep coming, you must all be so busy with your babies!

Last night I got to cuddle Nathan properly, had him in my arms for about 20 minutes. When he was brand new and had not started fitting yet I was so confident with him, now I am a nervous wreck, constantly scared that he will have a fit while I am holding him. Luckily the nurses and my DH keep on reassuring me that that is very normal.

He had another scan yesterday (a CT scan) because basically his brain scan seems to be looking better than expected. Waiting for a result, the neuro-paediatric specialist wanted to see it first. Trying to hope but not too much.

Mum2boys2girls, your message gave us both hope. I so pray that Nathan can be like your brother!

Take care everyone

MamaMaiasaura · 08/02/2008 11:45

madmouse - just managed to catch up on all the news. Am so pleased that he will pull through this but sorry that he may have some problems. Have been thinking of you all and just so relived he is going to be ok. LOvely to see you have had a nice cuddle and well done on the expressing, the milk will help him so much. Am glad the scan looks more positive, keeping fingers crossed. love Awens family xx

Susiemj · 08/02/2008 15:22

wishing you well with results of scan. Im glad you got a cuddle.

Original poster
toomanyshoes · 08/02/2008 15:41

Madmouse, I'm so pleased things are looking a bit brighter and fabulous that you got to have a cuddle. Is Nathan more awake now? Have they given you any indication of how long he will be in for? Are you recovering from the birth ok? Don't forget to look after yourself too! It sounds like you have a good support network around you and like the others have said we're all here anytime you want to talk. Sending lots of positive vibes and thinking of you often x

OP posts:
Amani · 08/02/2008 16:17

Hi MM
Lovely to hear you had a cuddle. You are being so brave and good luck with the scan. Let us know how it goes.
xx

Naetha · 08/02/2008 18:58

Hi Madmouse, glad to see things are looking up a little, and you got a lovely cuddle

I'm thinking of you, and sending you all positive vibes, and just glad that Nathan has such loving caring parents - he's a very lucky boy in that respect

You're all in my thoughts.

mum2boys2girls · 08/02/2008 19:03

Oh Madmouse that sounds positive about Nathan's scan ,it sounds like he is getting fantastic careI am sure Nathan will go on to amaze you ,perfectly normal to be nervous my mum said she was terrified but she soon became very confident she learn't from Justin .You are in our families thoughts xxxxxx

lilyloo · 08/02/2008 20:05

ooh MM hoping you get some good news from the scan !
So glad you had a cuddle with Nathan here's to many more!

madmouse · 09/02/2008 10:31

Hi all

Nathan is out of intensive care in special care now, just being monitored. He has been weaned off one of two drugs and so far no fits. He is wide awake several hours a day including last night when we were with him and I got to spend ages looking at his wide open eyes and he even had a go at breastfeeding, although both of us are a bit clueless! His nurse said he might not latch on as he is fed hourly and has not sucked since the first day. He first held my nipple in his mouth for a while and then I felt some tentative sucks, which was amazing.

I am still terrified being with him, but am more confident in handling him than I was.

Still waiting for the result of the scan, but briefly saw his consultant yesterday and she seemed to be suppressing her optimism saying we had to wait for the final result.

ladylush · 09/02/2008 10:40

Madmouse - glad he is out of intensive care When will you get the final result? It's a good sign that he attempted bfeeding - even if it was tentative. Doctors do tend to hold back on optimism until they are pretty sure of the outcome, so try not to read too much into that.

susiemj · 09/02/2008 14:18

MM - so glad he's out of intensive care. was at bf group yesterday and they were talking about a lady who got going bfing weeks after birth. Hope it happens for you - sounds promising. Glad you're getting to enjoy your lovely boy a bit more.

katyt1 · 09/02/2008 16:16

oh madmouse, so glad he is out of intensive care and things are starting to look up for you all.
the feeding must have been wonderful for you.

hope you get results soon, the waiting must be awful, and that they are good.
i agree, docs don't like to be too optimistic but we can be for you

needmorecoffee · 09/02/2008 16:31

Hi Madmouse. My brain damaged dd sucked about 2 weeks after birth, about 10 mins after some nobby doctor said she would never develop a suck reflex. If she hadn't been connected to the NICU with tubes and stuff I'd of hunted him down with her at me boob and blown raspberries
They really can't make any predictions on how your LO will be, regardless of MRI scans. Brain damage seen on a scan doesn't correlate very well with function to be honest.
One thing they will tell you is the first 3 months are often a 'honeymoon' period and that is true. Its after that you see seizures and functional issues if there are going to be any.
Big hugs to you. Those days in NICU are bloody awful.
My dd has been left with quite severe cerebral palsy and does have epilepsy but she is as bright as a button and doing very well considering all the doom and gloom stuff.