Morning all, thanks for the thoughts this morning. Sorry it was a bit of dramatic post-and-run last night; was knackered after explaining it all to MrM, then my mum, then prompting MrM while he told his folks, and then my brother.
As I said, she's been diagnosed with a type of epilepsy I had found when looking into it. It's an infantile form, with characteristic spasms and a characteristic EEG pattern; I was surprised to get the results of the EEG immediately, but it was so clear that it confirmed the diagnosis along with the other symptoms. She has "chaotic brain activity" which interferes with her normal brain activity - this is all the time, not just when she is having spasms - so this obviously has implications for her development. The "majority" of children with this go onto have further problems (i couldn't get a % for what majority meant) but doctor is as optimistic as it is possible to be that she could be in the "some don't" category. Things in our favour are an early diagnosis, and the fact she's already on anti-epileptic drugs, and good parents :)
Learning difficulties can mean a whole range of things, and if we can find an underlying cause, then prognosis and treatment is easier, but this isn't always possible.
She's been prescribed a steroid and if she responds within the first two weeks on that, that is good news, but they aren't without their side-effects, especially if she is on them long term.