Supporting disbaled people unsustainable?

[SantasMooningArse]

here

I hate this sort of uncertainty. I have trained part and full time for seven years now alongside two disabled kids to get to the point where I was hoping to train in social work in 2013- but if DLA vaniushes it will be unaffordable. I feel we have lived up to every Tory ideal, battling redundancy, my DH's illness and the boy's SN with constant battles to get back on line, and now I think I might just give up after all- can;t train until thenas no childcare means DH must be working from home to care and he dosn;t qualify until then, and we will need to move and cannot do so with the SNU realistically until 2013 (a SW trained where we are in Wales cannot practice in England but we need to get back to family badly for support and help, both for them as they age and us as we try and fit in work).

Working in tesco woudln't ever cover the huge costs of disability childcare.

I acknowledge that this is a left wing article, there's a thread on this in SN with a less reactionary letter from teh NAS C&P's to it, but is this how big society was meant to work? Sorry disabled people, there's no money- saldy when it comes to ds3 there's no cure either- can I never afford to die then? Will there be any care left for him?

There has (unsurpriingly ) been little coverage in the press (the DM hasn't cottoned on yet....) but here is a Guardian article. The comments are worth a read - GermanicusRex seems to have a view or two.

Guardian article here

Riven - too true about some disabled people being healthy. Until I got my MS I was a 'rarely off work' type and still I only get a minor cold a year if that and not much else. Can't get life insurance though........

I've used private healthcare for DS who has ASD, when the NHS queues were too long and my GP was unhelpful with referrals. I found the way we were treated astounding compared to the NHS, I felt my concerns were taken far more seriously and the reports we received were detailed and full of specific recommendations.

I won't hesitate to use private healthcare again, even though we'd struggle to afford it (I put his first assessment on my credit card and am still paying it off). To link it to the thread topic, I think the private reports helped us get DLA without having to appeal as they were so detailed. When his DLA/PIP renewal comes up, I will probably get reports done again if I feel any DWP tests don't take his needs fully into account.

The truth is Health care and education are the only things worth paying for and what most people could afford but refuse to on the basis that the state should cover it, maybe they should be they don't so since there are no pockets in shrouds I'll pay for both happily.

What a load of rubbish

*maybe they should BUT they don't, so since there are no pockets in shrouds i'll pay for both happily.

healthcare and education are the only things worth paying for? Erm, food? shelter? bills that do not mean you lose your shelter?

And whkilst I neleive in education for soem kids like ds3 it ain;t going to solve anything: it's bringing him on yes but couldn't to the level of work.

but yes- nowt to do with DLA.

Oh not going to read the links on the guardian page linked to; tend to try and avoid the views of people called things like germanicrex in an attempt to beleive humanity still is worth saving.

SantasMooningArse. I agree you perhaps shouldn't read them - I read them last night and this morning worse ones have been added......

Just remember Poppy people like that are a minimum: there's a few bastards everywhere but you would be unlikely to meet one or two in a lifetime- and if you did they'd either keep their gobs shut becuase theya re the sort of ineffective twat that can only admit to such things on websites, genuinely beleive they didn't mean you but some random and DM inspired 'other' sort of person or be so obviously in possession of their own SN or MH issues that you would feel sympathy for them.

Most people might not know to speak up but would not want the disabled people of the UK to face any difficulties. most people are decent, you only ahve to see how shcoked people are when they enter the system and find that the help is so hard to access.

Even your average tory of lib dem would be shocked if the harshest options were taken to replace DLA, would help a constituent whose ESA had been wrongly removed.

is there a link anywhere to where members of the public can contribute views to the consultation?

We all eat too much and blow money on crap, we are all guilty of that. I pay £8 per month in health insurance, £2 a week, i'm sure most people could find that if they had to.

thanks Riven for the useful link.

I don;t eat too much i an assure.

Lost 2 stone since September, me

But even then people still have to eat

I could find that amount yes, bt how long do you think ds1 would last on a private ward when his asd means he may well bite anyone who comes near him unless he is sedayted (££££) or they ahve some knowledge of ASD (it's all I can mange to touch him enough to bath him once a week, let along anything much else). it's really not uncommon for people with similar behaviours to be denied NHS help*, let alone private.

*Based on the case of my 39 year old friend who was denied effectvie cancer treatment becuase the ward could not handle ehr early onset dementia. A few eyars ago now mind. The cancer killed her although obv the dementia would have as well.

Thanks again SantasMooningArse. I know that the vast majority are decent and not like the harsh Commenters.

I have been coming across a lot of things because I am trying to do a bit of research on what has been said by ministers about DLA (describing it as an out-of-work benefit etc) before I fill in my responses to the PIP (I hate the name alredy) consultation document. I will have to get DH to find some references for me. His skin is thicker than mine although I am not sure he would be happy going on the DM website......

Private healthcare isn't an option for everyone for various reasons eg financial/medical but the argument earlier was whether it should be banned or not.

It isn't for everyone but if more people took it up there would be an argument that more money would be freed up for those who aren't going to be accepted by private insurers.

Out of the mouths... In this case Maria Miller, Minister for Diasabled People.

There is an audio clip here

Now I am REALLY depressed. She doesn't seem to have a clue.......... Presumably the the count of recipients of DLA ("the second greatest working age benefit") includes those not of working age such as children and older people.

Objective! Robust! That's OK then.

I am getting all knotted up with figures at the moment. MM mentions that 3 million or so receive DLA. That number includes the non working age recipients., so why does she go on to say that it is the second most claimed working age benefit?

Well we know why.

Here is a concise summary
here

I can't get private health insurance - too many pre-existing conditions. Most people with uncontrolled epilepsy can't even get travel insurance (not that I'd know, I couldn't afford to go abroad unless I robbed a bank). And Poppyknot - that figure doesn't even include people like me that should be getting DLA but aren't!

Exactly. How can they say they want to cut 20% before they even know who is getting it and who not?

The fact that DLA is so difficult to get in the first place seems to have escaped them.