Active discussions

Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Talk
Philosophy/religion

Join our Philosophy forum to discuss religion and spirituality.

See all MNHQ comments on this thread

Original poster

UnlikelyAmazonian's DS is gravely ill

507 replies

PiranhaMorgana · 17/05/2012 20:40

Please pray for UA's son,4yo ,who has just been diagnosed with Leukaemia and is on his way to Bristol Children's Hospital this evening.
UA is currently banned from MN after an altercation on Relationships,but she has continued lurking and really misses the support which helped keep her strong for her DS since her very abusive xh disappeared 4 years ago.
She is a very dear friend of mine and her DS is her entire life.She is absolutely devastated and has no family.

OP posts:
KinkyDorito · 12/06/2012 07:08

Do you have a social worker? We got one automatically through CLIC (based at hospital). CLIC also have volunteers who are CRB checked who can give you respite, just to get out and get some air. However, I realise it isn't easy to leave hospital as you want to keep a handle on everything.

windywendy · 12/06/2012 22:22

I'm very sorry to read this UA. My 3 year old DS was diagnosed with ALL and transferred to Bristol in January so it feels very familiar reading your posts. You will get through this though, I promise. It is never as bad as the first few weeks and you will have happy times and laugh again soon.

I think I read that you travelled 'up' to Bristol? If so, that is the same for us and I am wondering if you will be having the rest of his treatment in the same hospital as is? If you want to pm me or anything I'd be glad to help with anything. If you are at the same hospital they are all wonderful and I will do what I can to help you out too x

Thumbwitch · 13/06/2012 04:40

Lost you for a bit, so sorry! Blush

Wish I could help more but I'm way to far away to be of practical use. Aren't there any voluntary workers left in hospitals, Friends who do visits and so on, who could sit with your DS for a bit while you have a little break, wash etc.?

I hope the treatment is going well, even though it's horrible to go through - and that DS is coping ok. Breaks my heart just to think of it :(

(((((hugs))))) for you both, you're in my thoughts and prayers all the time. xxx

Elephantscantdothemoonwalk · 14/06/2012 15:28

Just found thia thread. I am so sorry. You are both in my thoughts and prayers. I am too far away to.be of any help but pm me if I can post anything for either of you

Madsometimes · 14/06/2012 21:22

Thinking and praying for you and your ds. How is he coping with the treatment?

ReindeerBollocks · 14/06/2012 21:30

I'm too far away but happy to send food parcels or gifts to help. I hope that your DS is tolerating the treatment and I hope you've managed to get a shower /some food x

Birnamwood · 15/06/2012 13:14

Thinking of you all UA and sending healing thoughts.

For everyone who is feeling helpless, please can I direct you to this thread? I'm running 10k in aid of Clic sergeant and any donations will be greatfully appreciated :)

mathanxiety · 17/06/2012 00:35

Have just seen this Shock

UA I wish you and your DS the very best. They say nobody is asked to carry more than they are capable of carrying, but sheeeesh. This is a biggie.

Will pray for you both.

Patienceobtainsallthings · 20/06/2012 11:22

Thinking of you and DS ,UA .
Sending you both love ,strength and peace for your journey x

thegreylady · 21/06/2012 21:48

Sending love and prayers-hope you are getting some rl support x

UnlikelyAmazonian · 26/06/2012 10:03

Thanks for messages. Ds has now finished first phase of treatment, called 'induction'. He is waiting to see if he well enough to start the next phase, which is more chemo - administered orally by me. He has had a very torrid time. There is a chemo called Vincristine which has given him terrible pain all over his body and constipation. We have had many sleepless nights. Lots of tears. making him take all the medicines is awful. have had to pin him down sometimes. he's sicked them up etc.

All these things are very normal but that doesn't make it any easier to deal with sadly. There is a support page on FB for families with children with ALL and we share our experiences - many are going through exactly the same traumas.

main point is, he seems to be responding well so far to the treatment. But ikt's a long and rather dark road ahead. Still more months of chemo and drugs and lumbar punctures to get through. He has been incredibly brave. he's inspirational really. I am proud of him and love him more and more if that';s possible!

Alibabaandthe40nappies · 26/06/2012 10:06

UA that is a lovely post :) You are an amazing woman, very easy to see where your son gets his fight from. Wishing you both lots of love and support x

pageturner · 26/06/2012 23:11

Keep hanging in there, UA. You, and your beautiful boy, are doing amazingly. x

seaofyou · 27/06/2012 00:45

UA you are the bravest mum I have come across on MN and your DS is starting to respond which is totally amazing! Please hold on in their every day for your beautiful boy...side effects awful but the drugs so important. Remember each day is another step towards recovery and just focus on that end day...keep positive and strong for your DS...you are an amazing mum UA and your DS is such an example of the bravest little man who like his mum is a fighter through and through (((hugs)))

Thumbwitch · 27/06/2012 15:12

UA, so glad you have more support from people going through the same process as you and your DS. It sounds horrendous, truly it does - but he is an amazing little boy and he WILL come through it, fighting every inch of the way. As will you - you're a battler, and let's hope this is the battle to end all battles for you and your DS - you've had enough to contend with!

Take care of you both, lovely - always thinking of you xxx

lizbee156 · 27/06/2012 15:52

Sorry I've come to this so late and you may know all of this already...

I know others have mentioned CLIC but Bristol Children's Hospital has a family fund you can apply to.

Sending you my best wishes.

BrainSurgeon · 27/06/2012 16:36

Best possible wishes from a humbled mum of a 4 yo DS - the light of my life... I can't even begin to imagine how hard it must be for you both, I've been crying my eyes out reading what you and DS are going through.
Will be thinking of you, I hope that treatment works really quickly so things get a bit easier.

mathanxiety · 29/06/2012 15:31

Keeping up the prayers, UA.

BCBG · 29/06/2012 15:44

Thinking of you all going through this process x

MaryBS · 29/06/2012 15:48

Prayers

Quenelle · 29/06/2012 15:54

I'm so sorry to read about your son UnlikelyAmazonian. My brother had leukaemia at the same age as your DD nearly 40 years ago. I was only 6 years old but I remember him being so poorly, and so incredibly stoic for such a young child. It was a dark, frightening time for the family but thankfully he recovered.

I remember DB could only chew tablets and I remember him having to eat the many pills he was given every day with toffees.

I will be thinking of you and your brave, inspirational boy and wishing you the very best for the coming months. And also expatinscotland, kinkydorito, windywendy and any others going through this.

FranticBanana · 29/06/2012 16:01

Prayers and best wishes for you and your brave little DS x

SucksToBeMe · 29/06/2012 16:02

Keep fighting kiddo xxxxxxx

whiteandyelloworchid · 29/06/2012 16:03

thinking of you and your son ua.
really hoping he can fight this thing off.

AnyoneForTennis · 29/06/2012 16:51

Ave just read this. UA I used to be on lots if threads with you. Lone parents threads particularly.

So sorry you are both going through this. Hope you are getting some support. What you said about lone parents having little support is so so true.