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Original poster

UnlikelyAmazonian's DS is gravely ill

507 replies

PiranhaMorgana · 17/05/2012 20:40

Please pray for UA's son,4yo ,who has just been diagnosed with Leukaemia and is on his way to Bristol Children's Hospital this evening.
UA is currently banned from MN after an altercation on Relationships,but she has continued lurking and really misses the support which helped keep her strong for her DS since her very abusive xh disappeared 4 years ago.
She is a very dear friend of mine and her DS is her entire life.She is absolutely devastated and has no family.

OP posts:
headfairy · 30/05/2012 21:16

Oh and it must have been so heartbreaking for you to have to chop ds's beautiful blonde locks off :(

giraffesCantFitInThePalace · 03/06/2012 00:03

Anyone know what ds name is so I can put it on my race for life sign?

Original poster
PiranhaMorgana · 03/06/2012 08:58

giraffes,have pm'd you.

OP posts:
KalSkirata · 07/06/2012 19:25

Been to visit UA. She is finding it very tough and her poor ds is very poorly now with the chemo and steroids. She isnt getting any support to get time to have a shower or go get food and ward is pretty manic Sad
Going in tomorrow to sit with him so she can get a shower but she says she says if any Bristol mumsnetters want to visit that would be great.

headfairy · 07/06/2012 19:38

Kal. I wish I could help, I know UA in RL, but I'm miles away in London so I can't manage to offer practical help. Is there anything else I can do?

TheCrackFox · 07/06/2012 19:41

I would love to help but I am in Edinburgh. Bumping in the hope that a Bristol mumsnetter will see this.

ChuckUFarley · 07/06/2012 19:52

Prayers and love.x

PacificDogwood · 07/06/2012 19:55

I am of no practical help either (in Scotland).

Anything we could send UA and her DS??

Kal, it is lovely that you can do that for UA - she will feel so much more human after a shower.

KalSkirata · 07/06/2012 20:01

I will ask her. I told her not to be embaressed to ask for help. anyoe know if she is entitled to respite help from anyone?

MrsRhettButler · 07/06/2012 20:21

Does she only want mumsnetters that she 'knows'? I'm in bristol and I would definitely visit and sit with her son so she can shower or do whatever she needs to but obviously if she's uncomfortable as she wouldn't know me then if there's anything else I can do let me know.
I do have a 9mo so would have to sort childcare (which isn't a problem just would need planning)

Is the clic sargeant in bristol also?

All the best UA x

mummylin2495 · 07/06/2012 20:24

Wishing your ds returns to being a healthy little boy as quickly as possible.Do take any help you are offered.

MrsSnaplegs · 07/06/2012 21:17

I'm sorry I'm too far away to offer to visit but if there is anything else we can do from a distance please let us know Smile

lisad123 · 07/06/2012 22:31

Can't get to Bristol but happy to help jn any other way.

Nyx · 07/06/2012 22:45

Just to say, you and your son are in my prayers, UA. I'm in Scotland so can't visit, otherwise I so would! Wishing you both all the best, and I'm glad you are back on here for help and support.

CardyMow · 07/06/2012 22:53

My thoughts are with you and your DS, UA. You won't remember me, as I have Namechanged, but four years or so ago, you helped me to extricate myself from an abusive relationship.

I wish your DS a speedy recovery. (((HUGS))). And I din't care if it's in-MN to give hugs!!

UnlikelyAmazonian · 08/06/2012 22:32

Mardycow, were you another name with cows in it? If so I remember you and your story well. but you're probably not.

Thanks for offers etc. I have no room to put anything as tiny room in Clic House which is horrible and i dont'want to go back, and certainly no room round the bed in hospital. I dont know what I'll be doing either. staying in or out. we are in this weekend as ds has infection.

Its all pretty shocking when you have no support. There really is nothing to help with just feeling human. I smell and I am eating a pot noodle. My darling son is three weeks into three years of treatment and I am so hungry and tired. But you know what? There are children much much sicker than mine on this ward. The mothers are amazing. They fight. Some have been here months. One chap has been here alone with his son since february so it's not only single mothers doing it.

A few babies in isolation with tumours and they may never go home. I am lucky. But it takes nerves of steel and most people dont have nerves of bloody steel.

If you want to do anything to help, think of a name for a charity that helps truly lone families and start throwing money at it.

I

Migsy1 · 08/06/2012 22:39

Praying for you and your son.

kissmyheathenass · 08/06/2012 22:53

UA, I have a friend 2 years into the 3 year journey that faces you. It gets easier. The treatment is so tough for you both but so effective.

The ds of another very close friend was diagnosed with a different type of cancer 2 years ago. The family went to hell and back but their ds is now so healthy and happy, doing well at school, etc etc. They have just returned from a "make a wish" holiday to florida disney and have had a wonderful time. Getting through the cancer treatment was gruelling and awful but they are past it now as you will be too one day. You sound remarkably strong.

UnlikelyAmazonian · 08/06/2012 23:05

Thankyou. I am sure these first few weeks are probably the worst. I wonder if the hsopital and key workers make sure they are doubly so in order to prepare us for what is to come.

If they make it very isolating and painful/sleepless, terrifying and debilitating to start with, it sort of prepares us all?

I don't know.

Any good news story is welcome.
Whopping pizza just been delivered. so so hungry. scoff scoff scoff

chocolatespiders · 08/06/2012 23:29

So sorry to hear your ds is poorly and undergoing treatment, I am a lone parent and cant begin to imagine what you are going through..

Could childrens social care offer you any help... A social work assistant to stay with DS while you shower and restock your pot noodle supply Grin

UA- I wish you strength to get through this with you DS who sounds amazing.

lisad123 · 08/06/2012 23:36

I think this is the best one for donations here

lisad123 · 08/06/2012 23:38

Or this one

KinkyDorito · 11/06/2012 21:27

I'm sorry to hear about your son.

If you would like some parents to chat to, then our thread is on Children's Health www.mumsnet.com/Talk/childrens_health/1368190-Children-with-cancer. My DD has leukaemia too: she is a year into treatment now.

Also, this group is very helpful: www.facebook.com/groups/213470895357205/

It was set up by a mum who goes to hospital with me. Her DS also has ALL.

Sending you love and best wishes. I know how shit the stays in hospital can be.

KinkyDorito · 11/06/2012 21:27

I'm sorry to hear about your son.

If you would like some parents to chat to, then our thread is on Children's Health www.mumsnet.com/Talk/childrens_health/1368190-Children-with-cancer. My DD has leukaemia too: she is a year into treatment now.

Also, this group is very helpful: www.facebook.com/groups/213470895357205/

It was set up by a mum who goes to hospital with me. Her DS also has ALL.

Sending you love and best wishes. I know how shit the stays in hospital can be.

Meglet · 11/06/2012 23:10

I don't know if anyone else has suggested it but could the hospital chaplain help? Someone to sit with your DS while you have a break for an hour or so?