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Original poster

UnlikelyAmazonian's DS is gravely ill

507 replies

PiranhaMorgana · 17/05/2012 20:40

Please pray for UA's son,4yo ,who has just been diagnosed with Leukaemia and is on his way to Bristol Children's Hospital this evening.
UA is currently banned from MN after an altercation on Relationships,but she has continued lurking and really misses the support which helped keep her strong for her DS since her very abusive xh disappeared 4 years ago.
She is a very dear friend of mine and her DS is her entire life.She is absolutely devastated and has no family.

OP posts:
BlueFergie · 29/06/2012 17:26

UA - you won't know me but i remember you very well. I remember in my early days on MN what an amazing support and source of advice and strength you were to women in abusive relationships. I also remember the terrible stories about your own relationship.
I know also that you are an incredibly generous and giving person. I know this because I recall a particular thread from years ago purporting to be from a scared woman in a terribly abusive relationship. I think it was later shown to ba a troll but I and many others followed it for a long time and it was very convincing and distressing. During it you offered a lot of advice and support and also offered this woman a place to stay in your home. I know after you were very annoyed (and rightly so) by this persons deceit. But I want you to know that it has stuck with me as the most generous and selfless offer I have seen here of anywhere else. I thought then and still think now that you were an amazing person, and I always remember you for it.
I am sending you and your gorgeous DS (whoses pictures I also remember) strength and love. If he has inherited his mummy's spirit he his half way there already. Xxx

MittzbethSalanderLovesJuice · 29/06/2012 18:13

Deeply sorry to hear this UA Sad thoughts and prayers are with you xx

Migsy1 · 29/06/2012 22:03

Saying prayers xx

giraffesCantFitInThePalace · 29/06/2012 22:12

Any chance of him needing/getting an NG tube? you can give meds through that and then takes away the pin down thing. That is horrid for you to have to do that.

I often think of you x

Jux · 29/06/2012 23:56

Thinking of you, UA. Hoping things are going well for you both.

Doobydoo · 30/06/2012 09:23

Thinking of you both.xx

MittzbethSalanderLovesJuice · 30/06/2012 10:35

Hi UA, hope you are doing as best you can in what v is a terrible time.

DS although now 14 still has some toys that he has yet to sort through. Would your Ds like a little selection of HotWheels cars to play with? I will disinfect them and they are in quite good condition?
No worries if not, just a thought xx

perceptionreality · 30/06/2012 10:37

Thinking of you and your ds, UA and sending prayers Xx

UnlikelyAmazonian · 30/06/2012 13:22

Lovely messages of support. Thankyou so much. Ds has had very good news in that his blood results this week mean he will be on what's called Regimen A, which is the 'least intensive' treatment process and which means his chances of relapse (ie the leukaemia coming back at a later stage) are slimmer.

He has had a week off the chemo this week as his counts are too low to begin the next gruelling phase. He starts that on Monday - another Lumbar puncture (General anaesthetic which is horrible as he passes out in my arms) and then fingers crossed begins the oral chemo.

But this week therefore he's been back to more his old self - fantastic to see, as he will dip and disappear again soon. He's lively, funny, throws his head back laughing, eating like a horse (national run on salami due any moment as he's eating it by the packet load, so stock up people) and has been able to have a couple of his little mates to play.

I too am thinking of expat and windy and the others who are going through this. You never think it will happen to you. Then it does. And since it has, we have come across so many other families going through it. You think you won't cope, but you do. I met Riven when we were in Bristol - she really is an amazing woman. She came and had coffee and helped me out. Thank goodness for Mumsnet as well as my RL friends.

Thumbwitch · 30/06/2012 13:24

That's hopeful news, UA! Glad to hear he's doing well and needs the least intensive course of treatment. Love and strength to you both xx

schobe · 30/06/2012 13:30

Great to hear an update and brilliant news about regimen A.

I think about you both often - keep on keeping on.

usualsuspect · 30/06/2012 13:30

Sending strength and love your way xx

DutchOma · 30/06/2012 13:54

Thank you so much for the update UA.

gingercurl · 30/06/2012 19:29

Thank you for update UA. Remembering you and your DS in my prayers.

gatheringlilac · 30/06/2012 23:43

Thinking of you both. Wishing the absolute best for you. All love to you.

Alibabaandthe40nappies · 01/07/2012 00:00

UA that is good to hear :) Sending your DS strength for this week.

NoComet · 01/07/2012 00:11

I've been sending healing vibes North to Alilidh.

I'll do my best to send some South for UA's DS.

Glad he's feeling better and hope he continues to. F

tribpot · 01/07/2012 00:19

Thinking of you, UA.

Rindercella · 01/07/2012 00:42

I have thought about you and DS often over the last few weeks UA. I am so pleased to hear things are more positive and that DS is regaining a little of his old self again.

I am so sorry you are both having to go through this. Your DS sounds amazing and I bet it fills you with joy to see him scoffing and playing with his friends.

I have everything crossed that DS continues to make such good progress. xxx

PS You're doing an amazing job x

Elephantscantdothemoonwalk · 01/07/2012 07:58

I often think of you UA. I don't often post on this thread.

I want to say I will post anything you need. Just pm me, I would come and see you but am too far away (manchester.)

I'm holding your Ds up in prayer.

Elephants

Vev · 01/07/2012 09:34

Glad your little one is doing well. Good luck for the next round.

Meglet · 01/07/2012 21:14

Glad to hear the treatment is going as planned. My cousin has just gone through the same thing with her (now) 6.6yo DD. Lots of treatment and very hard work getting her DD to take some of the medicine but with chances to catch their breath, and enjoy some 'normality' inbetween.

Hope your DS's treatment carries on going smoothly. Have you managed to get any more support?

CoffeeandChocolateplease · 01/07/2012 21:20

I'm keeping you and your DS in my prayers. Love to you both x

gingercurl · 03/07/2012 22:45

Still praying for healing and strength for UA and herds

SecretNutellaFix · 04/07/2012 23:55

Have been thinking of you UA on your journey. Hope everything continues positively for you.