Good morning all! Thanks for praying about the weekend, we had a lovely relaxing time, our friends had a beautiful wedding in the most amazing setting by the sea at the foot of Glencoe, and with careful arm holding and wee sits down, I managed all day without my wheelchair, though I was exhausted at the end and slept 12 hours straight!!
Something else has happened which I hope you'll understand, I've been bothered by this and I don't want this to come out wrong -I'll explain as I go along.
warning - the next bit is long, rambly, miserable and self indulgent. Feel free to pass over, or pass over if you are a fb friend where I have put similar
there may also be tmi in here as well
We got back on Sunday to a letter telling me I had got the DLA I applied for. In fact, I have been awarded higher rate mobility and intermediate level care indefinitely . Isn't that great! I didn't even have to have one of the ghastly ATOS assessments, let alone appeal then decision, as so many people, even in my support group, have had to.
And then it struck me
.
Just how disabled does this mean I am? I get the HR mobility because I can never go out unassisted, there are days I can hardly walk the 20 feet to the car. I'm basically housebound without help. I get middle rate care because I have "significant difficulties with self care requiring assistance". I'm not looking for sympathy, but yes, it is that bad. I can't ever have a bath. I can't shower alone, wash my own hair. I cant dress myself unassisted, find it almost impossible to put on shoes. I can't put in my contact lenses and some days can't hold the brush to do my own hair. Even toileting is usually ok, but my hands work so poorly and I have such poor levels of sensation in the area (with all the different issues you can imagine from that
) that all I can say is I'm glad I had an early menopause!
And that's before we get to the other cants - can't write or draw, knit or sew, cook, clean, hang washing, iron, play either of my instruments, stand up for long enough to sing in church, hold the little cup of wine at communion, tear off a little bit of bread. Luckily I can type fast with one finger.
So getting the award indefinitely with no independent medical assessment just made me go
right then, I really am disabled, and cry all evening.
I need to get my head round it. Sorry if I'm coming over self-indulgent or ungrateful for my DLA which will cover wages for my mothers help and 2 return taxi fares a week. I'm glad I got it. I just wish I didn't need it
.