Hi,
The charity FND Hope UK is running a parliamentary awareness day, and we need MPs to go to it. If you can write to your MP to ask them to go, it would be much appreciated.
There's more information about FND in the link, but basically it's a debilitating illness with next to no treatment options in the UK. When I got diagnosed, I was basically just told to learn to live with it - which in my case means not being able to work, walk, look after myself, having seizures and drop attacks and being in constant pain.
www.fndhope.org.uk/we-need-your-help-in-writing-to-your-mp-to-request-attendance-to-our-inaugural-fnd-parliamentary-awareness-day/