Private London consultants for possible PoTS and EDS assessment?

[housden1]

hi, my young adult has hypermobility and has been on a waiting list for a referral for possible PoTs and EDS for over 2 years but we are now told they are no longer taking referrals to these NHS clinics in London and so should go private. I was wondering if any one has gone to private Hypermobility / EDS clinic before in London and if they would recommend a particular consultant - lots shown on the internet but not sure where to go and would prefer to go by those who have actually used them. TIA

I have heard that Dr Gayatri Mittal is good. DD got an appointment fairly recently but unfortunately we had to cancel due to
illness - ah the irony….. Will reschedule and feedback here.

@glamapple thank you for your post and hope DD feeling better

There’s a UK EDS group on Facebook that will have lots of info on consultants etc