Hi,
Sorry for the length of this - I really would like to know if anyone has been in a similar position as I am very much stressing.
Last month, my daughter (then 9 months) started jerking her head to the left. At first, I assumed it was a sore ear but became more worried as the day went on. I rang the GP who sent us to A&E. The doctor (who was a neurologist) admitted us and wanted a video done overnight as she was worried about infantile spasms. As we were getting settled on the ward, I asked about the video and the nurse had no idea and the doctor had left. The next morning a new doctor came and said she wasn’t worried and to come back if she started regressing.
She continued jerking her head to the left in clusters and sometimes raising her arm. She was admitted back to hospital a few days later unrelated to the the head jerking (she had bronchitis and had to have oxygen). We mentioned the head jerking and both doctors that checked her agreed it was odd and we got an appointment with the neurologist for the 11th April.
On to today, she has continued to sporadically jerk her head and sometimes rub her head against her shoulder on the left side. Recently, she has began jerking in her sleep. I’ve spoken to a doctor who has forwarded the videos to the local paediatric neurologist. I’m just waiting for a response now.
I suppose I’m just wondering if anyone has had similar. The wait till the 11th now feels an age away and I’m desperately trying (and failing!) to stay calm.
Thank you!