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9 month old and Hypotonia

3 replies

Bunnysarah · 18/06/2022 14:07

Hi. REALLY could do with advice from anyone thats been in a similar situation. My son has recently been diagnosed with hypotonia. He is currently going through countless tests and scans (no results yet) he is very small for his age. He cqnt feed properly. He can only have milk, yogurts and porriage and has to be syringe fed most of the time!
he cant hold his head, isnt rolling or sitting. He also doesnt grab anything.
Has anyone been through anything similar.
Ive attached a picture of my little boy too.

9 month old and Hypotonia
OP posts:
Juhw · 29/01/2023 09:03

@Bunnysarah Hi! Stumbled on your post and just wanted to say how beautiful your boy is! How is he doing?

Bunnysarah · 29/01/2023 09:45

@Juhw He is doing ok. Finally got results back that he has a genetic condition called kabuki syndrome. He has mastered rolling but still cannot sit up or crawl. The also goes to alder hey at the end of feb for his peg!

OP posts:
LBB2020 · 29/01/2023 09:57

Hi, my eldest son has hypotonia (he also has Down syndrome so they kind of go hand in hand!). He rolled for the first time at 9 months and was sitting unaided at 10 months. He then started commando crawling at about 21 months, cruising the furniture at 2.5yrs and then walking a couple of months before he turned 3. He saw physiotherapists regularly (until Covid happened!) and has recently been discharged at the age of 5

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