Hi,
My name is Sarah, I am a Mommy to my 2 year old little boy born with the Congenital Heart Defect - Tetralogy of Fallot (TOF) We found out at our 20 week scan, and from there on in till he had his open heart surgery we were in a whirlwind!!
I have set up a face book page - www.facebook.com/pages/Tetralogy-of-Fallot-Ireland/1053805034635019
I've put this out there for other families, as I felt and I know my husband was the same, that there was noone normal to talk/share our ups and downs with. I know we are past it now, but there are days when it comes back and hits you again.
I'd love to talk to other who have experienced the same, I am going to post this on a few sites, as the group I have created in facebook is private.
Thanks for taking the time to read.