Oh god that is really sad.
There are always solutions.
Like FlowerFlo said,there are excellent charities which will adapt things like cots, she has obviously had hers done and I got mine done through a charity called REMAP. These guys are great, I think they are old boy engineers, architects, technology designers etc. They are volunteers who do their best to adapt any item you have in your home to suit your needs for example heightening cots, when I was doing my a levels they even came into my biology lab and built me a turntable so I could reach a Bunsen burner, microscope and test samples even though I have no reach, now used in my kitchen for cooking haha! Maybe they can help?
Social Services are so strapped for cash at the moment they are really very poor in services and sadly most the staff agree they are struggling to keep heads above water, however there are charities they are linked to that are more useful and practical in help. There are even services that can even come in and help you carry out parenting tasks I believe, not used these but know of their existence. you. Remember when dealing with SS there is adult social services for your and husband needs so OTs can asess for your physical difficulties, then there is Children's SS for your children's needs as they are disabled and every disabled child has a right to as normal life as possible and really you should be getting key workers for them who can perhaps help you get them out to swimming pools etc. Always, always write to any SS team and ask for written response back. If they muck up to the point you are this unhappy then heads can roll and there is nothing harder for them to wriggle out off than when a letter of desperate need has been ignored and needs failed to be met sufficiently !
Disabled Parents Network are fantastic, they are on the web but also on Facebook. You are not alone, there are many disabled parents out there and they can offer a variety of support and ideas, they even offer staff members to act as a representative for you in the battle of Direct Payments for carers for you and or your children etc. You will find a lot of information on here.
Right am off to take no silliness from the Disabled Facilities Grant team about ramping an entrance to my home for me as a wheelchair using mum.
Please please don't feel that there is no one there, we are all here, in this group, all have lots of ideas to suggest and you are not alone.
X