Ramsay Hunt syndrome

[BeGoldLeader]

I had been having pain in my ear for about a week (along with a nasty cold) and assumed this was all interlinked and would sort itself out. My dd also currently has chicken pox. On Sunday morning I woke up with the right side of my face totally paralysed! I can’t smile, close my eye, and can only eat and drink on the left side of my mouth. I went to A&E immediately in case it was stroke related, but they quickly agreed I had sores in my ear and don’t must be RH.

I’m on prednisolone and acyclivore (plus omeprazole and anti-vertigo tables) for a fortnight, hopefully that clears the virus.

Has anyone had Ramsay Hunt who has some good news stories about the paralysis clearing? I’m terrified it will be permanent, and it’s so disheartening.

TIA

I’ve not had RH but have had Bell’s Palsy while pregnant. 9 months on now and isn’t exactly the same as it was but barely noticeable. The eye was the worst part but that was the first thing to come back. Exciting when your mouth moves for the first time!

I had it 20 years ago. Was deaf for over a year. It’s come back to about 50% on that side.

I also lost taste for a few months but that’s back to normal.

My eye has completely recovered (I couldn’t close it at all for a few months when I first had the attack).

My mouth is still very slightly droopy on one side but only really notices when I’m knackered.

I feel for you OP, I’ve never had pain like it.