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Infantile spasms?

3 replies

Lolawillow2022 · 30/08/2022 05:31

My 6 month old a week ago today started eye rolling every few seconds for about two minutes. After the second time in two days I took him to the emergency room where they sent me home saying it looked “behavioural”. The next day it happened again this time he started dropping his head. I took him back to ED and they admitted us. From then on they started coming about 4 times a day. On day 3 of being in that hospital we were flown to a childrens hospital as the paediatrician was concerned it could be infantile spasms. His episodes now include throwing his head back involuntarily over and over, arching back, folding himself in half and weird jaw movement leading up to it. Sometimes they are so subtle but as days go by I can tell he is getting annoyed by them and sometimes is so tired after he wants to go to sleep even if it’s only 45 mins since his last sleep. The neurologist here has made me feel like I am being crazy, saying they’re probably tics, but wouldn’t they stay the same rather than evolving over a matter of days? I KNOW there is something wrong. EEG came back clear which is a relief but also frustrating as I know there is something going on. We are waiting on an MRI. Wondering if anyone else has had something similar?

OP posts:
Michelleflee · 14/05/2023 11:39

Hi, my little her one is 3 months and she has those symptoms as you described. Did you manage to get the MRI on the end? What is the result?

carillonstore · 14/06/2023 10:01

My baby also has the same symptoms, I have not taken him to the doctor. Can you give me some advice?

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