Glut 1 ds

[cazza361]

Hi I’m totally new to this, I’m 45 and I’ve been diagnosed with Glut-1 ds and exercise induced dyskenisia and my daughter who’s 9 has also just been diagnosed is there anyone else out there?

Hi don’t know if there’s any more parents out there who has a child with Glut 1 ds? I am 45 and was also diagnosed with this 2 years ago, I understand this is rare just wanted to talk to someone who is going through this?