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Use this forum to discuss neurodiverse parenting.

Does anyone have any experience of encephalocele/brain surgery for epilepsy?

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Epilepsy · 03/03/2024 11:06

Has anyone had any experience of this? I have adult onset epilepsy (started approx six years ago) and until now they couldn't find a cause. Recently it has got a lot worse and my latest MRI shows I have bilateral temporal encephalocele. I understand the only treatment option is surgical, I am waiting for further assessments etc but wondered if anyone has had this issue?

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