Anyone else feeling sick waiting to see what the PIP cuts will be?

[Somethingthecatdraggedin7]

Wondering if I will still be able to pay for the numerous services and things my disabilities necessitate.
I think, given I have such severe issues, that I may be one of the “lucky” ones as from what I have read so far I would still have enough pip points plus I am older and have stage 4 cancer (separate to my other significant disability) but who knows.
Even if I escape the cull I am sad and scared for others who may lose their award.

That is your opinion. And it is one that I do not share. I highly doubt that the salon cares either, hth.

I would literally have to shave my head in order to manage it myself...

I don't like how other people are condemning this as just "beauty appointments". I would joyfully wash my own hair if I could, probably with far more gusto than an able-bodied person. But I can't. PIP allows me to live closer to a normal life than I could without it.

The clue is in the name - personal independence payment.

Reading these threads makes me wonder how many people are relying on PIP for services/support that social care should actually be supporting with. Where is the line drawn on what PIP is for and what social care should support with?

It may be worth asking for a social care assessment for some people? And carers assessments for their carer if relevant.

And that is what PIP is for. To enable people, as much as possible to lead an independent life. As you have highlighted, it is not just a beauty appointment, but a necessity for hygiene upkeep.

So you claim to know somebody who is playing the system, but you're not prepared to report them, in which case I suggest you get of that high horse and accept that by doing nothing you are, in fact, enabling what you think is a false claim to happen.

I assume you are typing these messages, thus have use of your hands. Think about those who genuinely have limb disabilities.

👏 exactly!

Why? what has that got to do with what is being discussed?

The genuine have nothing to fear (rightly so). The system is looking at eliminating claims from those with mild conditions.

Totally, I have OCD and due to the stress started cleaning. But the degenative discs, spine arthritis, fnd, knee arthritis are now playing up due to the stress. My hyper flexibility is flickering my pelvis when I walk to the post office on the roller. I have to take breaks even with that.

What is so cruel about this is the stress of it could paralysis me.

Never heard of assistive software?

Unfortunately this isn't true for everyone. I was downgraded with each pip assessment meaning now all 2s. The assessment isn't fit for purpose mine even contains what I assume is copy and paste evidence from another patient saying I set fire to the kitchen so cannot cook (but awarded 0 points) I never set fire to the kitchen.
Assessors always downplay need, even with reams of evidence, and award a fictional 0 or 2 when the score should have been higher now they'll have an even bigger incentive to give a 0 or 2 won't they? Now, what’s the betting that assessors will have a target or be otherwise pressured to award less than 4 to force people off PIP/save money.
I had a very indeph multiple occasion assessment (including independent doctors) unlike the 40 minute pip assessment and was awarded tier 2 nhs ill health pension (the highest they offer). This means they don't ever believe that I will be able to work in any job (in or out of the nhs). Yet the government are going to force me back to work. How am I meant to work/what job do they think I'll do? If I could work I would (I'd be on over double what I currently get from pension/benefits).
Yes the system needs to change but they are going about it all the wrong way. They need to sort the assessments out first, sort the nhs out (because we don't have supporting evidence when we can't access the care and some not all might not evenneed pip then). They need to have assessors who are trained to be fair and consistent, not downgrade to meet targets.
And most of all they need to stop the drip drip of disabled being a burden on our society/giving some information but not enough to understand what's happening because the mental health of the disabled is going to get worse with all this uncertainty.

All that any PIP changes that they make, will result in, is record numbers of appeals, and tribunals, which will likely negate any savings that they hope to make. I think that they are targeting the wrong people. They should be concentrating their efforts on overhauling the way the assessments are carried out, and who is carrying out the assessments.

You mean ask the council to provide the things that you need at even greater cost? The council that doesn't have any money anyway due to cuts over the last decade+? And in the main, what the council can provide is limited and not designed to enable independance. A wet room, for example, wouldn't have enabled me to work and pay taxes for the last decade - my mobility car and small aids did. I'd love a wet room, can't afford one, wouldn't get one on an assessment anyway, but if getting one is the trade for my independance then I'll forego the wet room.

The cuts we will result in people paying themselves.

I can type on my cellphone with just one working thumb. I cannot wash my hair with just one working thumb.

Source for these assertions: months of bilateral wrist tendonitis that took my ability to drive, cook, wash my own hair, hoover, change my bed linen, type...

At £28 a throw for a salon wash, many people won't be able to afford to.

Afraid you may have to adapt or do without. Ask for help, sell your house. The same as everyone else. Welcome to the real world

vanishingly small "healthy" workforce

The healthy workforce isn't vanishingly small. It's the overwhelming majority of working-age people, many of whom are out of work because there aren't enough jobs to go around. Employers aren't going to choose a disabled person over a non-disabled person at interview, no matter how much it's illegal to discriminate, because it's nearly impossible to prove discrimination.

Disabled people, just like other people will tighten their belts, where absolutely possible. Many, are already in poverty. The point that I am trying to make, is when people forgo spending, on absolute necessities, it all affects the economy, which then in turn affects us all.

You are on glue if you think that many disabled people own their homes. Most rent.

Asking for help with a hairwash, how's that actually going to work? The hair salon has that special reclining chair with the sink behind it, so I could go there and keep my clothes on. People don't have that kind of chair in their homes, so how are they going to have their hair washed other than by having someone do it whilst they are naked in the shower? So a disabled person is supposed to ask their next-door-neighbour to pop over once per week and see them naked? When you consider that disabled people are already over-represented as sexual abuse victims, it's outright irresponsible to suggest that unvetted people should come into a disabled person's home and assist them whilst showering.

It is astonishing the suggestions that some people come out with. It really highlights the fact that they have little, to no understanding of the difficulties some disabled people face. But they seem to be the loudest in the room! All they do is expose their ignorance.

Next time you are at the supermarket or on the bus and there's someone who smells so badly that you wish you didn't have to breathe, remember that you described a weekly hairwash as a "beauty appointment".

It's very clear that @Secretmeetings and others don't think disabled people deserve privacy, dignity, respect, or safety. Because that's what PIP is for.

But it shouldn't have to be the case for genuinely disabled people like those posting here! You say you don't mind the genuinely severely disabled people claiming then you have what seems to be an indifferent attitude to a genuinely severely disabled poster. 🙄