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See all MNHQ comments on this thread

Original poster

Stop the Abolition of DLA

874 replies

Glitterknickaz · 16/01/2011 13:19

The government are proposing to get rid of DLA in favour of PIP. full consultation here

Riven started a fantastic thread in Chat with the very pertinent point that this applies to everyone, that every one of us could be just one step from disability themselves.

There is NOTHING in the media about this. These proposals could mean poverty for the disabled and their families in this country. It could leave some in residential care completely isolated from their families and support networks through the removal of the mobility component.

My family has already been hit three times through the NHS, education and aiming high, via the cuts, if they now remove the money from our pockets we are going to be in a heat or eat situation.

Please MNHQ do something, as many are oblivious to these proposals and what they will mean, including those who themselves already claim DLA.

OP posts:
Mouseface · 20/01/2011 20:38

Oh, on the other hand, if you don't want to pay for all these pesky disabled children, why not go cut your own leg off?

Throw yourself under a slowly moving car?

Starve yourself of oxygen for a while?

That way, you can claim the benfits you'll be entitled to as a disabled person and ensure that not one penny of your hard earned cash goes towards the upkeep of a life support machine, a little boy who needs a walking frame to get around his house, an elderly lady with mental health issues who requires round the clock care to make sure she doesn't burn her mortgage free house down?

Seriously?

I payed tax all of my life before I had to give up my full time job to care for my son.

I don't begrudge him or others a single penny of that. And nor would I if he had been born with no Complex Needs at all.

KalokiMallow · 20/01/2011 20:38

So you don't use any of these things then? God forbid our taxes should fund you in any way!

To prove you disapprove of anyone putting money towards things used by others from now on you must desist from using
-roads
-pavements
-rubbish collections
-tips
-public transport
-libraries
-parks
-etc.

LaWeaselMys · 20/01/2011 20:40

Thanks for that Justine.

Will add their campaign to the blog.

StartingAfresh · 20/01/2011 20:40

doc, unfortnately for most disabilities private medical insurance only covers you as far as the diagnostics, not the care.

Mouseface · 20/01/2011 20:41

Excellent news Justine

Thanks for posting that Smile

docfunk · 20/01/2011 20:42

We all pay for public utility's through our income tax and the tax on the goods we buy.

YeButerfleogeEffete · 20/01/2011 20:43

This reply has been deleted

Message withdrawn at poster's request.

LaWeaselMys · 20/01/2011 20:43

Or I would if it would open.

Will try later when there's less traffic.

confuddledDOTcom · 20/01/2011 20:44

Bet this will upset you, I turned down testing in all of my pregnancies. I will have approx 30 scans this pregnancy but I will not get any testing done. They are going to do a heart echo because of heart conditions in the family and will be doing growth scans and placental echo because I have a condition that causes IUGR which happened last time. But all of those are to keep informed.

I'm sure if there's anything to see there's plenty of chance to see it. If there is anything to see then I will be keeping my child because it is my child and they're irreplaceable and not interchangeable. (deja vu anyone?)

My mum was in her late 20s and a doctor asked how her spina bifida affects her. Her answer? "What spina bifida?" As far as Mum was concerned until that moment she didn't have it. There weren't scans when she born so no one until that moment had reason to pick it up. What if her mother had known and aborted her? It's never affected her, she was a hurdler at school, but how would her mother know that? She could have been a massive burden on the NHS...

Then there's my daughter. Spontaneous labour at 31 weeks, she had to be put on a ventilator and had loads of expensive treatments. For the first two years she was in hospital once a month with complications from her birth. Now they have her on massive amounts of medication, more than most adults but it barely touches her. We're seeing the paediatrician tomorrow and I'm expecting it to be increased.

You can't guess who will be a "drain" and who won't be. What looks serious on a scan could be fine when the baby is here, what's a healthy baby in the womb could suffer complications at birth and need expensive treatments. If you're really worried, maybe you should try out American sick care.

KalokiMallow · 20/01/2011 20:46

"We all pay for public utility's through our income tax and the tax on the goods we buy."

Wow.. really? Do you think that maybe, just maybe, that was the bloody point?

Tell you what, you pretend that all your taxes go to only the things you use, and the rest of us can have our taxes go to people who really need them.

docfunk · 20/01/2011 20:47

I work with normal working class blokes,all of us earning less than 20 grand a year,its strange how all of them have the same opinion?

ThisIsANiceCage · 20/01/2011 20:47

Hmm, DF may not be a troll, but should we stop feeding it anyway? This particular thread has a job to do, DF can go and be vile on contribute to one of the many threads on which NHS funding is discussed. Or start one of his very own on which to sit and juggle his bollocks make valid and well-informed points.

LaWeaselMys · 20/01/2011 20:50

So campaign.

I know you guys started this last week (or earlier?) what is the plan/aim to get message across?

Is it aiming for as many signatures as possible?

Mouseface · 20/01/2011 20:50

Agreed Cage

ThisIsANiceCage · 20/01/2011 20:52

docfunk, you may find this thread more to your liking (and with mildly less danger of getting lynched).

docfunk · 20/01/2011 20:52

No I am not a Troll,I was just trying to get an answer for my first post?

KalokiMallow · 20/01/2011 20:53

I believe the plan was to raise media awareness of the proposed cuts to DLA rather than have it brushed under the rug, which is what seemed to be happening.

From the thread that influenced this one, I believe it was hoped the MNHQ would run an official campaign.

LaWeaselMys · 20/01/2011 20:57

Okay.

Will keep plodding away with blog and twitter etc. (Have an ace friend who is nothing to do with MN or disabled causes pimping like mad)

LaWeaselMys · 20/01/2011 20:58

Does anyone think it is worth contacting people who wrote articles yesterday and seeing if they'll do a follow up on the DLA cuts?

Mouseface · 20/01/2011 21:00

Weasel - I think it is, especially as the two are kind of linked in terms of money in the pot IYSWIM?

ThisIsANiceCage · 20/01/2011 21:05

LaWeaselMys

Not a correction for tonights blog entry, but perhaps a thought for anon. It struck me that you said: "After all anyone could have a disabled child, a disabled parent, a disabled partner."

Yep. Or be disabled themselves.

That wasn't strictly a Does He Take Sugar moment, as you were talking in the context of carers, but us carees have opinions on the matter too!

This thread has some interesting comments, although the level of care discussed varies greatly.

Superb work with the blog!

KalokiMallow · 20/01/2011 21:05

Worth a try isn't it?

ThisIsANiceCage · 20/01/2011 21:07

Oh yes please! For the DLA cuts follow up articles.

lisauk72 · 20/01/2011 21:10

I had to say something on this thread because one comment has made me fume a little I'm afraid.
"You only have to phone up and they dish out DLA" Um..no they dont.
I had to fight for over 6years to get it for my daughter, and that was in the knowledge that in another part of the country another child with EXACTLY the same disabilty was getting it, and had been so since she'd been old enough.
Disabilty benefits are okay if you have the right disabilty. My husband is visually impaired, he only has about 40% eyesight, so too much to be registered blind. He's only entitled to lower rate mobilty and lower rate care. Only totally blind people are entitled to higher rate mobilty even though my husband still needs the same amount of assistance that a blind person does. Yes he works but is on a very low wage because as we all know disabled people dont get well paid jobs.
Our daughter is also visually impaired, has aspergers syndrome, and suffers with anxiety so bad she's not attended school for a year and can't go anywhere without me. She gets lower rate mobilty and middle rate care, again I had to fight for that. They get nothing else apart from the disabilty coponant of Tax credits.

As for that lady complaining that she only gets 6hours respite or so from her daughter. I'm sorry but lucky her. As I said my daughter has been out of school for a year and in that time I've had NO time away from her. I've been with her 24/7. She can't cope if I go out without her, and she's certainly not able to cope going out without me. I've lost most of my friends, my marriage is non existant anymore, all the hobbies I've had i've had to give up because I'm living around my daughter, as for time for me? forget it, thats a thing of the past.
The last time I had 6 hours respite from my daughter was probably sometime in late 2009.

LaWeaselMys · 20/01/2011 21:11

Oh yes! Of course.

No I'm happy for corrections. I'm not disabled, I'm not a carer. I just think all this is a bag of shit and I want to do something to help.

I also keep having to go back and change cute to cuts, so any typos also please report!

I think getting in touch with the reporters would be a good idea - but I am going to have to be crappy now and say I can't do it because I won't be around to field any responses etc (I have to cook for 100people tomorrow host an event at the weekend and won't be online again until monday probably)

If you go to the online version of each article there is usually a way to contact the author.

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