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How can we manage financially as Universal Credit support reduces?

1000 replies

elliejjtiny · 26/05/2026 12:19

We have 5 dc aged between 19 and 11 all with disabilities. Dh was a manager up until youngest was born, then he became unwell and had to take a massive pay cut. I'm a Sahm and get carers allowance. We get UC. Dc1 in his first year at uni, dc2 about to start in September.

We are just about managing at the moment but barely. In September we are going to lose the child element of universal credit for dc2 and I'm worried how we are going to manage. When the dc were younger I thought I would be working by now but I'm only getting 4 hours sleep a night and my 11 year old needs constant supervision when not at school so I don't know how I could fit work in. Dh has to work away about 15 weekends a year (from friday morning until late Sunday night) which leaves me completely exhausted each time. We spend 9 weekends a year picking up/dropping off/visiting dc1 and I imagine spending the same amount of time with dc2. There is no childcare for children my dc age with SN and they have to be picked up and dropped off at school. The dc have appointments about once a week on average and dc4 stays in hospital about 1 night a year when I don't get any sleep at all.

Realistically I can't think of any employer who would employ me with the amount of time off I would need and on so little sleep. At the moment I spend the time dc are at school doing the housework, cooking the dinner and trying to catch up on a bit of sleep.

I'm trying to think of anywhere we could save money but I can't think of anything. Dc1 doesn't cost any less money while he is at uni.

OP posts:
Northermcharn · Yesterday 14:05

ForWittyTealOP · Yesterday 13:43

Well I did ask for evidence that you didn't provide, largely because it doesn't exist so you invented your own "facts". But as I say, you can't answer, fully understood.

No i didn't invent any facts. They are DWP facts. take it up with them if you have an issue with their facts..

AguNwaanyi · Yesterday 14:07

Popsnafflerock · Yesterday 10:16

It's only fairly recently that we've started to see one or two children as the norm, something that's reflected on our falling birth rate. The last thing we need is to encourage fewer children to be born, not if we want any kind of functioning society in the years to come.

I agree with you on a lot but I am not sure I’d agree with you on this particular point@ForWittyTealOP I understand there’s a strain of an ageing population etc, but I really don’t think people who aren’t fit or well suited to have more than two kids or any kids at all should be having them for the sake of the “economy” or “society”.

There are already too many adults who spend their life recovering from a shitty childhood. And I’m not necessarily talking about those from poor backgrounds, this applies to wide range of people including kids who grew up in affluent families.

I used to work in education and I’d say maybe half of parents were brilliant irrespective of social class , the other half not so much to varying degrees and this is where the issues arise.

There’s a growing number of parents - especially mothers - now talking openly about how they regret having kids. It’s sad but perhaps a necessary conversation.

Men have been voting with their feet by walking out on their families for decades so it’s no surprise there, but mothers have always been assumed to not regret their choice. It has almost been taboo to speak about the regret up until now.

Having large families or even having kids at all is really not for everyone and that’s ok. Even in countries where there is better social support like scandi nations the birth rate is still declining from what I understand.

Edited

I agree. Even from this forum you can see just how many parents hate kids in general, and even don't like their own very much. Despite being parents they care little for advocating for children's welfare.

MrsCompayson · Yesterday 14:09

Northermcharn · Yesterday 14:05

No i didn't invent any facts. They are DWP facts. take it up with them if you have an issue with their facts..

Show us the millions?

Millions of false claims or millions of pounds?

bafta16 · Yesterday 14:12

TigerRag · Yesterday 13:33

I've seen a few posts similar to the OP where they ask how they're going to manage when a child comes off their claim. Did they not realise this was going to happen and plan accordingly?

"off their claim". There is something really wrong here.

Northermcharn · Yesterday 14:13

MrsCompayson · Yesterday 14:09

Show us the millions?

Millions of false claims or millions of pounds?

Didn't you read the DWP facts I posted?

MrsCompayson · Yesterday 14:15

Northermcharn · Yesterday 14:13

Didn't you read the DWP facts I posted?

I am happy to read, post the original source, the govt link, copy and paste.

I must have missed it.

Northermcharn · Yesterday 14:17

MrsCompayson · Yesterday 14:15

I am happy to read, post the original source, the govt link, copy and paste.

I must have missed it.

No - you quoted the actual post and said I wasn't providing facts. Take some responsibility. You owe it to yourself and society.

HobGobblynne · Yesterday 14:18

Northermcharn · Yesterday 14:05

No i didn't invent any facts. They are DWP facts. take it up with them if you have an issue with their facts..

I'd be interested in this too. DWP measures fraud by the monetary value lost, rather than the number of people affected. So I'm hard pushed to know how you it's millions of people. It might well be, but I don't know that we have any evidence for that.

As far as I can see, you haven't quoted the facts. I found this quote from you:

(DWP estimates benefits fraud and error cost approximately £8.3 billion per year — approximately 2.7% of total benefits expenditure. Fraud accounts for approximately £6.4 billion and official error approximately £1.9 billion. Universal Credit has higher fraud rates than legacy benefits due to the complexity of real-time income assessment. The DWP spends approximately £2 billion per year on counter-fraud activity. And that's just the fraud they know about).

Which is the AI summary produced by Google when you ask it about benefit fraud (I did a reverse search of your text) and isn't necessairly accurate. RTI actually makes UC more reliable than the self reporting on some legacy benefits. The actual link to the Gov.uk page on fraud doesn't have any mention of numbers of people.

Northermcharn · Yesterday 14:23

HobGobblynne · Yesterday 14:18

I'd be interested in this too. DWP measures fraud by the monetary value lost, rather than the number of people affected. So I'm hard pushed to know how you it's millions of people. It might well be, but I don't know that we have any evidence for that.

As far as I can see, you haven't quoted the facts. I found this quote from you:

(DWP estimates benefits fraud and error cost approximately £8.3 billion per year — approximately 2.7% of total benefits expenditure. Fraud accounts for approximately £6.4 billion and official error approximately £1.9 billion. Universal Credit has higher fraud rates than legacy benefits due to the complexity of real-time income assessment. The DWP spends approximately £2 billion per year on counter-fraud activity. And that's just the fraud they know about).

Which is the AI summary produced by Google when you ask it about benefit fraud (I did a reverse search of your text) and isn't necessairly accurate. RTI actually makes UC more reliable than the self reporting on some legacy benefits. The actual link to the Gov.uk page on fraud doesn't have any mention of numbers of people.

Edited

8.3 GBP billion per year (including errors) . Sounds like quite a few people - don't you think? I'm playing chess with pigeons. I need to do some work now. Make sure I get paid, a lot of money. On which I'll pay a lot of tax.

And no it's not an AI summary - well not one I used. The website I used may have given AI that info sure.

And as I said - that's what they know about.

Glowingup · Yesterday 14:25

feistyoneyouare · Yesterday 13:59

I don't think many people living with the realities of caring for disabled offspring are going to be glamorising it. (I speak as someone with disability in the family, albeit not a mum to disabled kids myself.) What you're seeing, if you mean social media, is far more likely imo to be them trying to throw some focus on the things they love about their disabled offspring, because God knows the day-to-day difficulties can be such that people need to find their joys where they can.

Regarding your last sentence, which lives do you consider to have less value?

Yeah, I should have clarified that a bit more. I think my point refers to often wealthy parents whose kids also have milder versions of particular disabilities who then show only the good side of it on social media.
In terms of value of people's lives, I think during the pandemic, it became clear that many people were not prepared to put themselves out to protect the vulnerable. We even had Jonathan Sumption explicitly saying that he did not think when it came to public policy, a young healthy life could be said to be of equal worth to that of someone who was elderly or had illness or disabilities. It's all well and good to say everyone is equal until it impacts on your own life or you have to pay. Then people change their tune.

I was also going to say that the parents I know with disabled kids live through literal hell a lot of the time. And they have told me that the sympathy and understanding and support disappears as their child grows. Once the cute autistic boy is a six-foot man with uncontrollable anger outbursts, people stay the hell away. And I can understand that but it's a hellish existence for the parents.

HobGobblynne · Yesterday 14:27

Northermcharn · Yesterday 14:23

8.3 GBP billion per year (including errors) . Sounds like quite a few people - don't you think? I'm playing chess with pigeons. I need to do some work now. Make sure I get paid, a lot of money. On which I'll pay a lot of tax.

And no it's not an AI summary - well not one I used. The website I used may have given AI that info sure.

And as I said - that's what they know about.

Edited

Of course it sounds like a few people. That doesn't negate the point that you don't actually have any evidence for the number of people committing fraud and that it isn't 'the DWPs own evidence' as you claimed.

Thanks for the entirely irrelavant update about your work schedule. I also work - want my working hours and tax code 🙄

Northermcharn · Yesterday 14:29

HobGobblynne · Yesterday 14:27

Of course it sounds like a few people. That doesn't negate the point that you don't actually have any evidence for the number of people committing fraud and that it isn't 'the DWPs own evidence' as you claimed.

Thanks for the entirely irrelavant update about your work schedule. I also work - want my working hours and tax code 🙄

Why are you talking about your working hours and tax code?

All information I posted is actual data. I know you and others don't like it, cos its facts innit. But here we are.

Source: DWP Benefit Expenditure and Caseload Tables / HM Treasury · Data year: 2024/25 · All figures are statistical estimates calculated from official annual publications

Eta - Bizzarely you and wittyteal aren't included in the data references!

nearlylovemyusername · Yesterday 14:32

Northermcharn · Yesterday 13:42

? Do you always deny factual evidence as I provided in my posts (that you're ignoring cos you're hurt about being wrong and laughed at) - the data from the DWP tells you. Honestly it's like trying to discuss with a gibbon.

This poster feels obliged to confront every single post not following their narrative. They are simply rude when they can't support their argument by facts

ForWittyTealOP · Yesterday 14:34

HobGobblynne · Yesterday 14:18

I'd be interested in this too. DWP measures fraud by the monetary value lost, rather than the number of people affected. So I'm hard pushed to know how you it's millions of people. It might well be, but I don't know that we have any evidence for that.

As far as I can see, you haven't quoted the facts. I found this quote from you:

(DWP estimates benefits fraud and error cost approximately £8.3 billion per year — approximately 2.7% of total benefits expenditure. Fraud accounts for approximately £6.4 billion and official error approximately £1.9 billion. Universal Credit has higher fraud rates than legacy benefits due to the complexity of real-time income assessment. The DWP spends approximately £2 billion per year on counter-fraud activity. And that's just the fraud they know about).

Which is the AI summary produced by Google when you ask it about benefit fraud (I did a reverse search of your text) and isn't necessairly accurate. RTI actually makes UC more reliable than the self reporting on some legacy benefits. The actual link to the Gov.uk page on fraud doesn't have any mention of numbers of people.

Edited

Also I've not heard the DWP talk about non genuine claims. That's not the kind of language they'd use. It would save a lot of time if the pp acknowledged they'd made that part up for effect.

Northermcharn · Yesterday 14:34

nearlylovemyusername · Yesterday 14:32

This poster feels obliged to confront every single post not following their narrative. They are simply rude when they can't support their argument by facts

Yes.. DARVO I suppose!

Northermcharn · Yesterday 14:35

ForWittyTealOP · Yesterday 14:34

Also I've not heard the DWP talk about non genuine claims. That's not the kind of language they'd use. It would save a lot of time if the pp acknowledged they'd made that part up for effect.

Non genuine claims - fraud - you take your pick honey bun

ExpectMore · Yesterday 14:37

ChunkyMonkey36 · Yesterday 12:44

It will not be possible for me to provide the level of care my son needs for the remainder of his life.

There will reach a point where we are physically unable to meet his needs. We age, just like everyone else, and if his behavioural and care needs are still as high in adulthood as they are now - we will not be able to physically care for him or keep him safe.

We also will not have family available to care for him, as many of them already can’t - he’s 10.

Unfortunately, that will have to fall to the state.

Our plan is for him to be in supported living, or residential of some sort, before we either become unable to care for him, or we’re dead.

Call me sentimental, but I’d like him settled and comfortable somewhere before we reach that point, as I’d like him transitioned before it becomes an emergency.

I understand and admire your future planning, I hope it all works out as best it can and as you want it to.

ForWittyTealOP · Yesterday 14:37

nearlylovemyusername · Yesterday 14:32

This poster feels obliged to confront every single post not following their narrative. They are simply rude when they can't support their argument by facts

Well I'm direct. Do you want me to apologise for being autistic?

ExpectMore · Yesterday 14:40

StartingFreshFor2026 · Yesterday 13:22

"think that parents can absolve themselves from the responsibilities of looking after their own children just because “it’s too hard”"

That is ridiculously offensive. For many of us, it's not just going to be "too hard" it's going to be impossible.

I don't really need to invent a new solution, although not perfect there's already "solutions" in the form of care homes, supported living, direct payments for Personal Assistant and NHS at home nursing care / continuing healthcare commissioning.

My point is: those solutions need considered in the round, with the round including a cost consideration.

Whilst I agree that they are solutions and are likely appropriate in many cases, we still, somewhere and somehow, need to find a way to balance the books as the country is running at a deficit….

ChunkyMonkey36 · Yesterday 14:41

@Northermcharn

Make sure I get paid, a lot of money. On which I'll pay a lot of tax.

That was some nauseating humble bragging you did there. Almost laughably so. Almost.

nearlylovemyusername · Yesterday 14:42

ForWittyTealOP · Yesterday 14:37

Well I'm direct. Do you want me to apologise for being autistic?

The point is not that you are direct. You are rude and argumentative. Autism is not an excuse for it.

ForWittyTealOP · Yesterday 14:45

nearlylovemyusername · Yesterday 14:42

The point is not that you are direct. You are rude and argumentative. Autism is not an excuse for it.

Please do not police or try to shame me. You are not obliged to respond to or interact with me. Stop harassing me now. You can have your final word, then you can completely ignore me and I'll do likewise.

Viviennemary · Yesterday 14:46

Northermcharn · Yesterday 07:58

I wrote this post yesterday:

Northermcharn · Yesterday 15:05
'I'm so fed up of paying taxes which then pay for other people to e.g. have more children (and not pay tax). Absolutely sick of it. As are millions of others.

Taxes are supposed to help pay for a safety net in benefits, old age, illness etc. This makes sense. We all agree about this (I think).

Benefits are not meant to be there as an assumed way of life.'

This morning I see it has 25+ reactions in agreement. A small sample but a telling one.

The politicians need to wake up - this is why they are practically giving the likes of Reform (whom I don't support, I'll be a Conservative voter in 2029, for the first time. Kemi is excellent) a key to Downing Street.

I agree with some of your points. I won't be voting Labour since they ducked out of benefits reform. Not sure about Conservatives. I like Kemi but the Tories seem to have had their day.

HobGobblynne · Yesterday 14:49

ChunkyMonkey36 · Yesterday 14:41

@Northermcharn

Make sure I get paid, a lot of money. On which I'll pay a lot of tax.

That was some nauseating humble bragging you did there. Almost laughably so. Almost.

@Northermcharn this is why i mentioned my working hours and tax code, as you well know.

converseandjeans · Yesterday 14:50

PoeticLicense6 · Yesterday 12:27

Some of the replies on this post scare me! Are we living in the 1930s?!?! It’s gone from a Mum asking for some financial advise, to a debate about eugenics!!

Some of these responses are horrific. Do you truly believe that people are only of value if they are healthy and can earn money!!

I have 3 disabled children and am disabled myself. Let me tell you it’s not easy. I’m able to work, but only certain hours because childcare is almost impossible to find.

The DLA doesn’t go very far, and goes directly to the children to pay for services not available on the NHS such as private OT, physio and counselling.

I think the saddest thing is that women are turning on women in this post. This poor lady didn’t choose to have disabled children, she didn’t choose for her husband to lose his job. She has said she would like to work, but struggles to find childcare.

Not everyone has a nice easy life, with 2 healthy children and 2 good incomes. They get ill, they lose jobs, and they have unexpected pregnancies. Stop judging and start supporting

@PoeticLicense6 I think a lot of us stopped at 1 or 2 children as that was all we could afford. That’s definitely the case for us. I was back at work when first baby was 4 months as DH was newly trained in his career & earning very little. We couldn’t afford a third maternity leave or childminder fees (we got no free hours in those days). So I think it can be difficult to be empathetic when someone chooses to have more than 1 or 2 children knowing they will never be able to support them fully. I would have loved to stay home with mine when they were babies, but would not expect other working people to finance that.

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