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Miscarriage/pregnancy loss

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4th missed miscarriage?

63 replies

ttcworriedmum93 · 18/04/2025 16:15

Hi all, firstly I’m sorry for the long post I am really hoping someone can help shed some light or meet anyone who has been in a similar situation.

I have had 3 missed miscarriages (2 in the last yaar) and am currently 4 weeks pregnant but not holding out much hope.

we have been ttc for 2.5 years. We have had 3 missed miscarriages presenting with the exact same story every time. Everything fine tests progressing, bar a bit of spotting here and there and a (dry stuck like sensation up there?!) and a lack of normal pregnancy symptoms each time. We get to the 6 week scan and there is nothing there, no usual sac no yolk and certainly no baby. Each time has shown a very mishapen sac or the last time just a thickened uterine lining. It is baffling everyone. I might add my levels are 15’000-19’000 hcg by this point and still rising. They were so concerned about the lack of anything and the high levels last time they did the ectopic surgery but it turned out to be nothing there. All 3 have ended in SMOM surgery as they don’t come away by themselves and my body still goes on as if it’s pregnant. I am just expecting the exact same thing to happen again in 2 weeks when we go for a scan just to be told ‘sorry we can’t see anything’ and I am so disheartened and frustrated.

I have been under the reccurent miscarriage clinic (NHS) they have sent the tissue off (the last 2 times) which has come back with no genetic abnormality, the last time nothing came back (was only November and think it takes a good few months?) I have had every blood test going both nhs and with a private clinic I.e lupus anticoagulant, thoromphollia, karotyping, thyroid etc all back normal. I have had a private scan - all normal and amh blood test which was also normal. I’m at the point I want them to spot something off so we can fix it. The only other query was with the GP a couple of years ago when I was (and still do) get quite classic endometriosis symptoms (heavy periods, dragging pain from belly button etc etc but decided not to take this further due to the tests being invasive when ttc.

the last pregnancy (in November) I was given high dose folic acid and progesterone to start when I fell pregnant, it didn’t help and ended in the same result. I must add I was diagnosed last year with sarcoidosis (which is an auto immune condition) and this time I have been given steroids (predisolone 25mg) to take daily when I fall pregnant as that was the only other idea the consultant had for this time (it could be that I am rejecting the baby with the auto immune condition?). I am also taking baby aspirin (on the advice on the private dr we saw for a consultation) and high dose vitamin d.

I suppose my question is has anyone else suffered anything so peculiar like this? We don’t ever get past the 6 week scan and I am wondering when and whether to give up. I do pray this time is different but with the lack of pregnancy symptoms I’m not so sure, but I am taking the steroids religiously none the less!

just to add I have 2 previous children from an ex husband 11 and 10 years old although sadly first born died when a baby. So I know I can be pregnant and carry pregnancies (albeit a decade ago!) I have my partner of 4 years now and I am worried in some way we are incompatible if that’s even a thing?! His sperm is better than average so we know it isn’t that too. I am 31 and he is 42.

if you have got this far thank you for reading and I really hope someone out there has been in a similar situation and I’m not the only one!!

Many thanks,

OP posts:
SureLook · 05/05/2025 19:57

@ttcworriedmum93 I'm sorry to hear you're being passed around like this. It's just not good enough. I think you're right to go to the EPAU tomorrow. Keep us posted x

Nosejug · 07/05/2025 10:47

@ttcworriedmum93 hope you get some clarity today on what’s going on. My epas also know me now, they’ve been such a help. I was in this morning for hopefully my final bloods for this mc. Are yours supportive? I don’t think they’d be happy with sending you home with such a high hcg and not knowing where the pregnancy is.. hope one of their specifically skilled scanners can see what’s what. My current one was ectopic, they think. They could see something in my uterus but also bleeding in my abdomen. It’s hard not having a solid answer, I hope you get one soon.

ttcworriedmum93 · 07/05/2025 15:34

Nosejug · 07/05/2025 10:47

@ttcworriedmum93 hope you get some clarity today on what’s going on. My epas also know me now, they’ve been such a help. I was in this morning for hopefully my final bloods for this mc. Are yours supportive? I don’t think they’d be happy with sending you home with such a high hcg and not knowing where the pregnancy is.. hope one of their specifically skilled scanners can see what’s what. My current one was ectopic, they think. They could see something in my uterus but also bleeding in my abdomen. It’s hard not having a solid answer, I hope you get one soon.

Hi @Nosejug aorry you are going through that :(. I was scanned again yesterday at EPAU and is it either a partial molar pregnancy or a collapsed sac with fluid bubbles around it (I am really hoping the latter) but the scan did look like a partial molar. Even though drs and nurses are in agreement this is a failing pregnancy, because the sac is below 25mm I have to wait another week to be scanned by the consultant and am on the surgery list for Wednesday morning (if that’s how sure they are I don’t know why I need to be left again, protocol I guess! ) they are pretty sure it’s not an ectopic now as they can see the collapsed sac in the womb. I have had an awful dragging pain from
my belly button all the way down since last night but I don’t think things are going to resolve naturally unfortunately. They have stopped doing bloods now although I’m sure if they did they would still be rising like previous losses. I have never felt more hopeless in my life. X

OP posts:
DCmum95 · 07/05/2025 22:43

I am so sorry you’re going through this OP. I know how it feels to be dragged along it’s so hard and just keeps that hope going. With my first MC they queried a partial molar pregnancy due to the look on the scan and HCG of about 20,000. They tested it and it was negative so I hope there is the same outcome for you xx

Rainbowchaser87 · 09/05/2025 15:44

@ttcworriedmum93 how are you holding up darling? Thinking of you 🫂

Nosejug · 09/05/2025 15:56

Jeez @ttcworriedmum93 i so hope it’s not molar at all. I only recently understood what this was as someone going through it was giving me advice on the ectopic. I don’t know you but I wish I could be there to support you. I so so know the hopelessness feeling, and you’ve been through so much already. Sometimes I think I’m ok then a stupid non-fertility life thing doesn’t go well and I completely lose my shit, so it’s clearly all just below the surface. I hope you know that, although there’s hopelessness right now, it’s part of what you’re going through, and despite it seeming impossible you’ll find a way to have hope again. It’s just stupidly unfair and shit right now. Sorry if this message is a bit much, I just spent the last hour crying and watering the garden simultaneously so am feeling pretty emotional!

ttcworriedmum93 · 09/05/2025 16:15

Hi @Nosejug @Rainbowchaser87 and @DCmum95 thank you for your messages. I’m ok-ish apart from the feeling I’m never going to have a baby and feeling tearful and envious every time I go out as there seems to be pregnant woman and babies everywhere I look! I am just holding out until Tuesday.. I rang epau on Wednesday and advised them I was having some tearing/dragging pain from belly button downwards (am still experiencing this on and off now but zero signs of cramping or bleeding) they didn’t seem concerned and said there wouldn’t be anything they could do until consultant has scanned Tuesday and surgery Wednesday (which I’m still baffled by they are all in agreement it’s a failing pregnancy or a partial molar yet they are making me wait another week) they didn’t do this the last few times I was in surgery a day or 2 later after scans etc.
I spoke to my GP this morning who has arranged for coeliac blood test (I’m sure I’m not but it’s another thing to rule out) and she is also going to refer me to Tommys reccurent miscarriage clinic at st Mary’s in London (which is our closest about an hour away) has anyone had any experience with the Tommys reccurent miscarriage clinics? I feel I’ve reached the end of the road with my hospital and they are out of ideas as to why this is happening. Is there anything I should be asking the consultant on Tuesday? I have a list of a few bits on my phone.
@Nosejug I know how you feel - it only takes something small to break at the moment, your message isn’t too much at all and life really does seem so unfair - sending you loads of love x
@DCmum95 that is reassuring thank you - a partial molar doesn’t particularly add up with the clinical picture of the others it seems very similar to the last 2 from last year rather than something different so I can only hope it isn’t this, they have stopped doing bloods now though so I’ve no idea what the numbers currently are. I’m sure with the luck I’ve had over the last couple of years though it could well be a partial molar! X

OP posts:
Objectiontime · 10/05/2025 09:21

@ttcworriedmum93 I have a gard job keeping up with threads I'm on so sorry for not commenting earlier.
The whole situation is really difficult, I know. I actually still have nightmares about my MMC almost two years ago and I cant believe I still havent been successful.
The whole thing stinks and i really dont understand why this particular fight appears to be sent giftwrapoed to some of us to live with.
I hope you are as okay as you can be. If someone said to me that we would definitely have a baby but it wouldn't be until the summer of 2028 I think I would be able to get on with my life and enjoy it but I think all of us with this struggle live in limbo and nothing helps.
There is light at tge end of the tunnel, we just need it to shine our way. Sending hugs x

ttcworriedmum93 · 10/05/2025 10:58

@Hi @Objectiontime i know it’s awful isn’t it, I’m still having nightmares most nights about the scans etc think the high levels of hormones don’t help. Ugh yes if someone said it’ll work next time or even the time after I’d feel like I could keep going but it just feels like it’ll never happen at the moment. Sending you loads of love x

OP posts:
ttcworriedmum93 · 12/05/2025 16:03

Hi all, just thought I’d do a final update I was scanned today by a consultant who said the sac hasn’t grown, pregnancy is breaking down and it’s classed now as retained products - I will be having surgical management on Wednesday and they will send the tissue off to Salisbury for genetic testing and some off to the lab to test for molar pregnancy. I have an appointment at the reccurent miscarriage clinic to see one of the consultants at my hospital in August (although they’ve done all the nhs testing I believe) and my GP is referring me to st Mary’s in London. I’m not sure if we will carry on from here but a break is certainly in order.

I wish you all the best with your pregnancies and ttc, sending you all love and thank you for all your support over the last few weeks. X

OP posts:
HesDeadBenYouCanStopNow · 12/05/2025 16:33

Thinking of you, no words will help but know that people care

I hope the referral is useful

SureLook · 12/05/2025 19:27

Hi @ttcworriedmum93 I'm so sorry you're going through this again. A good break might just be the best thing. But we'll all be here if you wanna come back. All the best and take care x

Rainbowchaser87 · 12/05/2025 23:00

@ttcworriedmum93 I am so sorry darling…I feel u….a break sounds just the right thing to do….take care of urself and if u wanna talk we are here ❤️🫂

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