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Chronic endometritis retained products

8 replies

sd8809 · 11/06/2024 11:51

Hi. So I had a MMC carriage in Jan 24 and had a d&c for that. I went back to hospital twice with pain / bleeding and pregnancy tests still very positive after it. I was scanned twice and told no retained products (once by a registrar and once by midwife). My hcg was still elevated so I went back weekly for blood test to make sure it was coming down. After 9 weeks of this I had enough as the hcg was barely coming down, I demanded to be seen by a consultant. I was then seen and scanned and lo and behold had retained products. Had another d&c (9 weeks after first d&c ), pathology came back and confirmed retained products and signs of chronic endometritis likely due to the retained tissue. I was given a doxycyline course to start before the second d&c and I finished two weeks of it. I had one period after the d&c and then next cycle had a chemical pregnancy (testing positive from 9dpo to 18dpo). Just had other negative cycle. My cycles are different in that only lasting 3 days and not bleeding very much. I am so worried I still have chronic endometritis or scarring which is causing issues such as implantation failures My two previous children I got pregnant first month trying and no issues and also with the MMC in January I got pregnant in Oct first go with that also . The hospital don’t seemed to bothered and keep fobbing me off saying they don’t think it could be chronic endometritis because I had antibiotics. Has anyone experienced similar? It has been the most stressful 6 months and I just feel something isn’t right. It’s all I have thought about for the last 6 months. I am going to a private appointment this week to be assessed but just hoping the don’t fob me off either.

OP posts:
AnxiousPoster · 20/08/2024 19:05

Hi @sd8809 how are things now. I also had a MMC and D&C in January and my periods now are so scant and light. Scarring has been ruled out and I’ve taken two weeks of doxy in May but things haven’t improved. Very worried and stressed.

sd8809 · 21/08/2024 18:34

I am just going through a second chemical pregnancy. I have contacted my doctors today and asked for a hysteroscopy to check if there is still evidence of chronic endometritis or scarring . Something is not right.

OP posts:
AnxiousPoster · 21/08/2024 18:51

@sd8809 so sorry to hear that. I’ve not had luck conceiving the past two months and am convinced something is wrong. My periods are so scant I think I have CE and the doxy hasn’t worked.

sd8809 · 21/08/2024 20:24

I had two course of doxycycline and I don’t think it has worked. My periods have been coming regularly but only lashing 2 days. I have never had a chemical pregnancy since this all started after the first d&c. I’m so cross for being left this long!

OP posts:
AnxiousPoster · 21/08/2024 20:59

@sd8809 I acctually had a chemical pregnancy in May as well and haven’t conceived since. I don’t know whether to ask for more antibiotics or what the next steps are. Would love to keep in touch and help eachother if you are open to it.

sd8809 · 21/08/2024 21:18

Yes definitely. Do you have a biopsy to confirm CE? That probably be best place to start

OP posts:
sd8809 · 21/08/2024 21:22

At my private appointment a few months ago they said they expected my CE to be treated with the removal of the retained products as that was probably the cause and I got antibiotics too so should have cleared. At that appointment in June they said to give it another three cycles- I gave it 4 and this most recent second chemical has confirmed to me there is definitely something wrong. They hope to do a hysteroscopy on me next month more waiting and god knows what the outcome of that will be. I feel like giving up with it all but then I want a baby so bad to complete our family .

OP posts:
NicePanda · 26/09/2024 11:41

Hi OP, I know this thread is a months old now. I was wondering how you got on?
I currently have endometritis after 11mm retained tissue was left after surgery for miscarriage on September 6.
It looking like another surgery with hysteroscopy. I got given antibiotics.
i am also so concerned about future fertility for ashermans as with endometritis and d and c I’m falling into the categories

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