Partial molar pregnancy

[NphysT]

Found out at my scan on Monday baby has no heartbeat and it is a partial molar pregnancy so they booked me for surgical management yesterday morning and now have to have my hcg monitored on a weekly/fortnight basis till it drops to below 5 (currently 160000 even though I'm meant to be 8 weeks and baby stopped growing at 6 weeks) as it can turn cancerous. Has anyone had this before and shed some light into what I'm in for.

@Noideawhatshappening
i gave epu and have an appointment Tuesday for bloods to be taken. I think they are not hanging around as it already a medical negligence case ( long boring story, but I should not of fallen pregnant in the first place) x

Good luck!

@Noideawhatshappening definitely think you are on the right track with your period coming!
@McConkeysPlate I’m glad you’ve got your appointment

Have decided I’m going to ring the number the hospital gave me on Monday to try talk to someone about how I’m feeling. Been pushed over the edge by a friend telling me she is pregnant. I’m happy for her, but struggling with the pregnancy chat I am getting. Even though she knows my situation

I'm sorry @Figtree11 such a difficult situation because as much as you want to be supportive, it can really hurt too.

I hope they can offer you some help. Is it possible to distance yourself for a little while from this friend?

@Noideawhatshappening ive taken a step back from the chat & I feel better for doing so already.

Hope everyone is doing ok as can be. Still no period for me yet. Negative on some pregnancy tests now, but very faint positive still on another if I hold it at a certain light at the window! Praying for it to go negative soon

How's everyone doing?

I'm feeling a bit rubbish today. Not sure why. My HCG levels are dropping like they should be but I still feel almost-hormonal? Distracted, unable to get stuff done, then getting annoyed with myself and being irritable with everyone. I'm annoying myself! I'm assuming only the HCG levels hit zero, there's no more hormonal hijinks at play? I must be close now.

How are everyone else's levels?

@Noideawhatshappening im sorry you’ve had a rubbish day.
I feel similar. I think for me it’s the living in limbo. I’m fortunate that my levels are low enough that I’m now just waiting another week to do my final test & hope to god I get discharged. But I’m just waiting. Waiting for the test. Waiting for that result. Waiting for my period. Waiting to be able to ttc!
It all feels so out of my control. And finding it hard to get out of a negative mindset & worrying my future doesn’t involve being a mum.
It really does mess with you. I’m glad your levels are dropping, I hope you aren’t waiting too much longer to hit zero

Hi @everyone, hope you don’t mind me joining. I had my third MC in May and they said they would do genetic testing this time round. Unfortunately there was maternal tissue in with the pregnancy so they couldn’t do the testing but what they did say is that they suspected it to be a partial molar pregnancy. My mva was May 14th and the pregnancy tissue was sent off for investigation early June and the earliest I can expect to hear back is mid July. I’ve only just found this out on Wed so it’s been a lot to take in.
From what the consultant said, I would need to wait for 6 months until trying again from when hcg levels are at zero but from reading through the thread some have been signed off a bit earlier? I’ve had a period post mva so I’m taking that as a good sign that things have moved in the right direction but just wondering what to expect?
In a strange way it would be nice to have something that explains this mc but unfortunately wouldn’t explain the others or chemicals I have also had.

@xxcxdonxx so sorry you find yourself here. I hope you hear back earlier than July. It took 4 weeks for me to hear back from the hospital with the results that it was a partial molar.
My experience is that after I heard the news, I had the centre in Sheffield contact me a week later. I do fortnightly urine tests, and now that they are negative I then wait 4 weeks to do a final blood test. If that’s clear I’m discharged & can try again. I think the waiting 6 months is an old way, which they did a few years ago. But not now in the uk. Are you in the uk? If so perhaps the consultant doesn’t have the same up to date into that the specialist centres have?

This is my second loss and like you part of me thought well at least I have an answer and it’s meant to be rare. But doesn’t explain my first loss which still worries me.

I hope you get some answers soon so you can start to move on as best as you can

@Figtree11 thanks so much for your reply, that’s all really useful info. Yes I’m in Scotland and there’s one specialist centre here but I’m hoping I do hear back a bit quicker than expected.
We had decided to give TTC one last shot so hearing that it would possibly take 6 months before we could try again wasn’t great but it’s good to know that that’s unlikely. Every month that passes by feels like a wasted opportunity which I know is not a particularly healthy outlook.
Hoping that your next blood test is clear for you and you can move forward xx

@xxcxdonxx my surgery was 2nd May so only a couple of weeks before yours & I have been classed as being negative with just the follow up blood test to go. So hopefully if yours does turn out to be a partial molar, by the time the place in Scotland get in touch your levels will be low already. Especially if you have had a period. I still haven’t had mine yet.
I know what you mean, I feel like I am living in limbo waiting to be able to try again.
Let us know how you get on x

Hello again. I hope you are all doing ok?
the consultant rang me this morning and confirmed I had a molar pregnancy so my care is handed over to Charing Cross. I am so exhausted with it all now x

@McConkeysPlate i’m sorry, it really knocks you when you get the news. It shouldn’t be too long until charings cross are in touch to get the ball rolling. I hope the process goes relatively quickly for you

@Figtree11 Thank you. Sickness and heavier bleeding today. It all sucks! How are you doing?

@McConkeysPlate I’m sorry, it’s so rubbish 😞 How many weeks post d&c are you? And has yours been confirmed as complete or partial molar?
I’m ok thanks - still living in limbo. Have a blood test Friday to see if my levels are low enough to be discharged or not. And still awaiting my period

@Figtree11 I am almost 4 weeks post D&C. I believe it’s complete as there has never been any signs of an embryo on scans and none in the biopsy. The waiting for anything to happen is dreadful. I am hoping just a few weeks and I will be testing negative. But it’s niggling that it’s going to not go that smoothly. I have so many plans in the next few months. Are you working and just getting on with life? X

@McConkeysPlate its such a horrible thing to go through. Not only dealing with the loss of a much wanted baby, but then to have this hanging over you too with sending off samples etc and having to wait to TTC again.

Yeah I’m just trying to get on with life as normal but it’s difficult. I went back to work just a few days after my d&c as that’s just the way I cope, I just have to keep busy. It’s been almost 9 weeks for me now, and I’m feeling pretty overwhelmed with the thought of TTC again & worrying about the future

I feel dreadful for all of you whose pregnancies were planned. It must be heartbreaking. I am so sorry for you. Even though this was far from planned, another baby would be far less stressful than how I feel now

@McConkeysPlate gosh yes I can imagine how tough this all is for a pregnancy that wasn’t planned. I bet you just want to move on instead of having this to deal with.
This is now my second loss & not yet a mum so definitely stressing about what my future holds

Just had a call to say that mine wasn’t actually a molar pregnancy as initially suspected. So back to being at a loss again as to why it actually happened.

Feels like at the moment the thought of having a successful pregnancy is getting further out of reach.

@xxcxdonxx I’m sorry you don’t have any answers. The positive is that it isn’t molar so you don’t have the uncertainty of the complications that can come from it. And you don’t have to delay TTC. But I totally get that knowing what caused the MC can give some closure. I don’t know what caused my first & it bothers me. And I feel the same about the thought of a successful pregnancy being out of reach

Thanks @Figtree11 appreciate that and letting me ask what might have been ahead of me.

Sorry to hear it's been a bumpy week for quite a few.

@xxcxdonxx I'm sorry you're left without answers. I'm also really pleased for you that it isn't molar, the follow up is really quite scary. I hope they get to the bottom of it for you soon.

@McConkeysPlate I'm sorry, the diagnosis can be rough. Have you heard from Charing Cross yet? Good luck!

@Figtree11 how are you doing? How long left until your blood test now? Hope you're feeling okay

@Noideawhatshappening thsnk you for asking. I hope you are doing well. It was confirmed it was a CMP and my first pack from Charing Cross arrived yesterday. So will arrange bloods to be taken this week and go from there x

Mine was also complete - it's a very odd, almost scary position isn't it?

I'm up North so I'm under Sheffield but they've been great so far, hoping CC is similar.