Recurrent miscarriage 3+ miscarriages

[Kappi]

Hi all,

Just thought I’d create a space where I could document todays thoughts and hopefully its useful to someone else who is sadly experiencing similar..

Now on my 3rd missed miscarriage and I’m finding it harder and harder to accept this is just horrid bad luck.

I was under the recurrent miscarriage clinic at local hospital and have had the usual tests - bloods and physical scan. All fine! Nothing came back out of sorts.

We’re hopeful we can send this latest pregnancy for genetic testing - it just depends on whether there is anything to test and if results are gained.

Ive had all 3 miscarriages end before 8.5 weeks.
(8, 7 and 6) all 3 have seen heartbeats at 5.5.

I also took cyclogest progesterone from positive test and higher dose folic acid.

consultants and nurses have been very lovely and kind but keep explaining that none of my bloods indicate any problems. On one hand this is reassuring to hear - but equally it’s upsetting to think that we can be this unlucky.

just wondered if there’s anyone else out there who had 3 miscarriages and went on to carry full term.. or if there’s anyone in the same boat that can understand the dreadful uncertainty of the whole thing!

Hello, so sorry @Kappi that you're going through this. I have had 5 RMC and no answers just down to bad luck. It's so hard but keep going trying and hopefully it will work out for you ❤️ x

@vix_85 thank you for responding - I’m sorry for your losses.
It’s so so hard when everyone (or seems like everyone) around you is having things fall into place.

hopefully it goes our way one day soon! For now I’m going to keep going Xx

@Kappi I’m so sorry to hear you’re going through this. Today at my 8 week scan I found the pregnancy didn’t mature past 6 weeks. This will also be my third miscarriage. It’s such a trying time both mentally and physically. And really hard to imagine it will ever happen. But I think we need to be kind to ourselves. There are so many positives stories on here of many women going on to have success. We have to hang in there. Sending you positive thoughts ❤️

Sorry this has happened to you OP.

I had 3 miscarriages in a row followed by a successful pregnancy, followed by another miscarriage followed by a second successful pregnancy. I also had tests after the first 3 mc with nothing found. My fourth pregnancy was successful without any changes on my part (I did not take any medication or anything else).

I hope things get better for you. I know how horrible it is to keep stepping into the unknown with each pregnancy and feeling like you’re not getting anywhere. It is very difficult and hard for others who haven’t been in the same situation to understand. Best wishes.

@jjelisa im so sorry to hear that you’re in the same boat. Hope you are holding up okay- you have a really positive outlook and I think you’re right, we have to look forward with hope.

thank you for replying - it helps to know we aren’t the only ones. It can feel so lonely! I hope the next few days in terms of the physical side of things, are as straightforward as they can be. I’m sorry again, finding out at scans is my experience too and it’s so tough X

@Odile13 thank you for sharing your experiences - it’s given me hope that this is just what the consultants are saying, just awful bad luck. These boards have been such a support during each of my miscarriages and it’s because people stop by to offer that connection.

Its lovely to read that things worked out for you after 3, and with clear tests also. Hopefully I can pop by a post in the future and give someone that same story of hope.

one day at a time - some are easier than others x

Hi I am new to this! I had two still born daughters 10yrs apart different partners one young and naive and one planned with my husband. Cayleigh was my first child born at 28weeks perfect and Julia was born at 25 weeks also perfect. Last try was Luna and she is two this year. She is everything and now looking back everything happens for a reason at the time my life changed forever losing Cayleigh I was 19 and alone and spent 3yrs in bed now I'm 35 and wouldn't change a thing they're angels and too good for this world they made me who I am and I'm where I'm meant to be it's easy after to look back and be in this place. What's meant for u will be stay strong and remember how amazing u are to create perfection... love yourself it took me years and finally have it all. Thanks for listening ladies

Thanks @Kappi Checking in, how are you holding up?

@jjelisa not a good one today, misoprostol dose was brutal and so so painful. Just a long period of waiting now unfortunately.

How are you with things? ❤️

Been trawling the boards for others who are / have been in the awful 3 miscarriage situation. Feeling a little reassured but you know, comes and goes!!

@LunaJulia21 I'm sorry to hear of your experiences - you sound incredibly strong to be able to share your story. 💛

As you say, it's hard to stsy strong and keep going at the moment but I hope we can all get there in the end 💐

On my 4th miscarriage currently.. in bits. Was 5 weeks when it started Friday. 3 at 5-6 weeks one at 10 :(. I did have one full term but it was rocky, the placenta never functioned properly so she was born at 4lbs and I was very ill (kidney/liver problems) I'm guessing it looks like something goes wrong first trimester for me, given that my only success didn't develop properly early on which caused dangerous problems. I'm hoping to be referred to gyno next week. I haven't had much help yet :(

Sorry to hear this. You don't mention explicitly but if you've already been under the care of the clinic I assume you've already had a uterine/ovarian scan, FBC, thyroid, vitamin D and bloods checked, and your partner has had semen analysis?

Any evidence of Antitphospholipid syndrome (APS)?

What does the miscarriage clinic suggest could be checked next? Even if it's not covered on NHS?
Worth checking the Infertility board as there are posters there who've had private investigation for recurrent miscarriage and are v knowledgeable.

@lovesheart love to you at this horrible time 💐

Lots of people on here to connect with if that's your thing - I've found its reassuring to know I'm not the only person in the world in this situation - because sometimes it really feels like it! Everyone around you just plain sailing.

How are you feeling physically, you mentioned you're on your 4th, sending lots of virtual pain relief! X

Thank you 😊

Not very well, haven't stopped crying yet 😅 I kinda new it was coming as I had a major migraine beginning this week where I went blind, paralysed and couldn't talk. From the next day the tests were getting lighter and symptoms stopped 😭😭 each Miscarriage I have seems to get more intense and symptomatic.. so I worry I won't be able to have another.

Praying the doctor does the referrals and we can finally get to the bottom of it, I feel I don't want to try again just to go through loss x

@lovesheart That sounds so tough - hopefully the physical side of things resolves itself soon for you. Ive not had one naturally happen - I've always had to use medical.

Hopefully the referral is quick also - @Whataretheodds is giving really good advice - there are tests that can be run and avenues to explore and hopefully they offer you some clarity!

I've had physical scan, all the standard NHS bloods (that I'm aware of) nothing coming back as out of range. Considering a referral to Coventry but hoping some genetic testing might offer something in the meantime

@lovesheart I’m so sorry to hear this is happening to you. I’m also waiting for my third miscarriage to start :(. Have also had two chemicals. Same as you I don’t want to keep trying again until we have more of a plan. Sending you positive thoughts.

@Kappi ugh I can imagine that is really tough. Sending you a virtual hug. I’m doing ok. No bleeding has started yet. Have another scan on the 31st to 100% confirm again no growth, at which point I’ll think about options. Doesn’t help I still have all the pregnancy symptoms. Yes, still scrolling through boards looking for positive stories all day. Like you I have had all the NHS tests but now we’re going private. We had a meeting with a consultant at Imperial who has recommended more tests and will help us build a plan next time we try. Feeling a bit more hopeful. Let’s see ❤️

@jjelisa I was the same with symptoms right up until today really, still nauseous and tender it was so hard. If you were given cyclogest that might be why the symptoms are still present. So unfair!

That's great you can explore private options. And the fact the consultant will plan with you together is a real positive. Got everything crossed for you that the new tests can provide some answers! ❤️

Hi, I'm so sorry and I can relate to your feelings. I lost all three of mine around the eight week mark. The first I had no pregnancy symptoms, the second I had some more hope but it wasn't meant to be and the third I thought would work as it was through IUI fertility treatment but I also lost that one and that was my most painful one. I was due to have another round of IUI after having the full tests etc. but then I got pregnant naturally and I now have a healthy four year old. I have never forgotten my miscarriages and the feelings that came with them. I was on folic acid and aspirin throughout the pregnancy. I hope that helps a bit and I have everything crossed that you have some happy news soon.

Sorry to hear about your losses. I had a MC in between my 2 sons at 10 weeks then 3 in a row. NHS testing all normal, early scans had HB then would fail around 7-8 weeks and miscarry 9-10. Genetic testing on the 4th one was normal and at that point we went to Coventry to see Prof Quenby who diagnosed high uNK cells on a biopsy. Successful pregnancy first time on her protocol (steroids, progesterone, heparin) resulting in my daughter who is now 9. I’ll never forget what an awful time it was, so sorry you are going through it too.

Hi @Kappi I'm so so sorry for your losses. Hope you are getting the love and support that you deserve.

Yes, I had three miscarriages all very similar in gestation to you. We do have a 1 year old healthy boy now solely because of the work of Professor Quenby and her team at Tommys Coventry. We had previously been fobbed off by the recurrent miscarriage team in Birmingham when my blood results looked normal.

Professor Quenby enrolled us on the CERM medical trial, I also kept banging on and on about my thyroid and when they tested it at 6+6 with my successful pregnancy it was high so I was immediately out on thyroxine, I also had progesterone pessaries.

I felt totally helpless and understand exactly where you are now but there is hope and support. Tommys Coventry are incredible; like a small caring team of people that truly care how you are; it transformed our experience.

I'm not sure if it's an option for you but I also had 6/8 sessions of private counselling after the third loss that despite my scepticism was so helpful and really helped me to process what had happened.

Oh and I also took a high strength vitamin D supplement and co-q10 bioquinone for three months before trying again (it's meant to help improve egg quality) but who knows which of those things or combination of things worked!

@Flo84 thank you for sharing your journey! Its such a help to know others out there have been in these same positions and gone on to be successful.

It's the fact mine are ending around the same time which concerns me - even though bloods are normal. I'm worried it'll be genetic and something we can't 'fix'

I've yet to try aspirin but the consultant wanted to wait until 9 weeks - but I never make it that far :(

Thank you again for sharing - it's a comfort
Hopefully next time, whenever that might be xx

@Patchworksack that must have been so hard!

I'm thinking we should go to see Prof Quenby like you did - I've read good things and have heard that the team really get it.

Thank you for taking the time to share your story, I'm sure there are more than a few people who read posts from those who have been in our shoes and find it reassuring. I know I do! Xx

Hi @Kappi

sending so much love.

I have had 4 miscarriages - one 5 weeks, one at 8, one at 12 and a mmc discovered at 6 weeks (2 weeks before my wedding). I had so many tests, they tested the baby on the last one and was trisomy 16. We had genetic tests and those came back normal too.

2 years later and I am now 31 weeks pregnant naturally! I took cyclogest for the first 16 weeks under the recurrent miscarriage clinic and all been smooth so far.

I know it can feel such a lonely position to be in but you are not alone.

keeping thinking positively - it will happen for you ❤️

@showmethegin the more I read from kind people like yourselves makes me feel more determined to carry on the journey.

I think we could afford the NK cells tests over at Coventry, I read that they are with Prof Brosens. But I think I need to peruse a referral to the clinic soon - everyone I've read is having positive experiences there and thank god there are places like that available!

It's so scary - overwhelming and exhausting. Equally its only been a year and I think there are more stones to turn like you did.

Thank you for taking the time to post - I'll certainly be looking into getting those supplements for when I've finished this miscarriage. Im glad to hear your son arrived safely ❤️

what a journey we've all had / having xx