Recurrent miscarriage 3+ miscarriages

[Kappi]

Hi all,

Just thought I’d create a space where I could document todays thoughts and hopefully its useful to someone else who is sadly experiencing similar..

Now on my 3rd missed miscarriage and I’m finding it harder and harder to accept this is just horrid bad luck.

I was under the recurrent miscarriage clinic at local hospital and have had the usual tests - bloods and physical scan. All fine! Nothing came back out of sorts.

We’re hopeful we can send this latest pregnancy for genetic testing - it just depends on whether there is anything to test and if results are gained.

Ive had all 3 miscarriages end before 8.5 weeks.
(8, 7 and 6) all 3 have seen heartbeats at 5.5.

I also took cyclogest progesterone from positive test and higher dose folic acid.

consultants and nurses have been very lovely and kind but keep explaining that none of my bloods indicate any problems. On one hand this is reassuring to hear - but equally it’s upsetting to think that we can be this unlucky.

just wondered if there’s anyone else out there who had 3 miscarriages and went on to carry full term.. or if there’s anyone in the same boat that can understand the dreadful uncertainty of the whole thing!

@Gymbelle 2 weeks before your wedding! You must be made of tough stuff ❤️

You've summed it up perfectly - it's so lonely.
But I'm reminded today from all you lovely people that none of us are alone in it.

I can't thank you enough for taking time out your evenings to stop by and be that hope. I really wish you all the love for your pregnancy- your beautiful light at the end of the tunnel

Thank you 💛

Hi @Kappi i am so sorry to hear about your recurrent losses. We tried for DC2 for 5 years and in that time had 3 MCs. I completely lost all hope, went through the stages of anger, heartbreak, grief, etc. We accepted we should happy with our lot and move on as a family of 3.

I had my 3rd MC in March 2022, then in the May found out I was pregnant again. I was so angry. I was livid. I couldn’t believe I would have to go through it all again. I text DP a picture of the test saying ‘here we go again.’ I started bleeding at around 7 weeks and went to EPU which had basically become my second home. Well they did a scan and there was a little heart beating away. Measuring 8+4. And now that little heartbeat is 6 months old and my dream come true miracle baby.

We never found out the reason for our losses, my appointment for the RMC clinic came through when I was 20 weeks pregnant. I just wanted to tell you my story because I remember too, too clearly how I felt last March. 5 years, 3 MCs and just exhausted and heartbroken with it all. But miracles do happen. I wouldn’t have believed it but they do! I don’t know what made DS2 stick, but I really hope you get your miracle soon.

@Tisfortired That's how I feel when I fall pregnant- it's sad but it's been that way ever since the first miscarriage. It's rotten how the 'joy' is robbed from you after loss.

Thank you for stopping to share - I've posted on here after each miscarriage but I've been so grateful for the many responses this time!

It's lovely that your miracle came to you, sometimes I feel there's hope and then other times holding on for a miracle seems incredibly slim in terms of chances! It's such a rollercoaster where you can't get off. Because in A way you want to be on the journey.

It's heartwarming to think there is another family out there, that got there. At the moment we are just a 2 but hopefully one day a 3 💐

I went on to have a baby after three losses. Finally, I was given progesterone and blood thinning injections and believe at least one of those helped me carry to term.

This is a step in the right direction news.sky.com/video/presenter-myleene-klass-tells-sky-news-change-in-miscarriage-care-will-be-a-huge-advantage-for-so-many-women-12925662

I'm so sorry for your losses @Kappi. I had difficulty conceiving (took 2.5 years to get my first positive test) and then sadly had 4 miscarriages when I finally could get pregnant. 2 of these were early losses (4 and 5.5 weeks), the other 2 were both MMCs after seeing good heartbeats (10.5 and 11 weeks where the babies had died 1-2 weeks earlier). I have never known pain like it. I had a good support network but unless people have been through it, they cannot really understand.

We had the last baby tested and found out that that loss was due to trisomy 15 and told it was likely just bad luck. We were tested for translocation and I was convinced one of us would have it due to the similarities with the 2 MMCs but the tests were thankfully negative. All other tests were clear too.

I persuaded my consultant to let me try aspirin and progesterone for my next pregnancy (I had taken aspirin with no.4 as well). Even though progesterone wouldn't have helped the last loss with the trisomy, I hoped it might have helped whatever had caused the 2 early losses). I was also taking letrozole to try and get a better egg. I just wanted to try anything that might help.

I'm pleased to say that my 5th pregnancy was successful and I now have a happy and healthy 9 month old son. I'm not going to say it was an easy pregnancy because it wasn't, I had high anxiety throughout the whole thing and was just waiting for it to go wrong. I actually hated being pregnant because I just associated it with loss and pain, I never actually thought I would get a baby from it. I still can't quite believe he is real now to be honest.

The pain of the last 5 years is still there and I still cry about the babies I lost sometimes, but I am so glad I kept going and so grateful I got my miracle eventually. Sending lots of love and support to you. I really hope you manage to get your happy ending too x

@bellamountain this is what I'm hoping might be possible for me too! - although my bloods have come back normal, I can't shake the idea of something clotting-related because they end between 6-8 after a heartbeat is found!

I mean, I'm not an expert so I'm very open to whatever the consultants tell me Might be wrong. Just not finding anything yet!

I think after 3 Ive started to feel that hope fade a bit - so hearing that it was possible for you is really uplifting ❤️ just got to keep positive stories in my mind when things get dark xx

After so long and what sounds like real struggles, I'm really glad to hear your son arrived safe and well ❤️

How do you get letrozole? I've not thought to take anything pre-conception! Thank you!
I think depending on the outcome of the genetic testing of this pregnancy, we'll have the testing for translocation also. they mentioned it might be necessary to explore. I'm trying not to worry too far ahead but it's a real fear that something is wrong there.

I can totally understand that feeling of not enjoying pregnancy- you did so well to manage! For me its utterly terrifying because each time it's ended in loss.

Thank you for giving me some hope here, Like you - I'll always remember the pregnancies that I've had. Just got to find the strength to keep going xx

@Kappi I had all the standard NHS tests after my third miscarriage and nothing was found. However, my consultant said for some reason progesterone and or blood thinners do work for many women.

Good luck.

Hi Kappi,

I'm so sorry for your losses. I started TTC in my mid twenties. Am now mid-30’s.

I’ve had multiple losses at a similar gestation to you. 4 before having my DD’s (age 3&2), including an MMC at 16 weeks. No reasons found. Each tended to happen just as we got to the top of the lists for IVF and every time placed us back at the bottom (not sure if this happens anymore?!)

My early pregnancy with DD was eventful, as dates didn’t seem to fit and at one point I was told it wasn’t likely to be viable, but waited and got lucky. She spent some time in NICU but that was related to birth rather than baby!

Fell with DD2 7 months post partum, similar pattern early scan at 6 weeks with heartbeat, then pulled back over a week at 12 weeks! But again, DD born at term healthy happy and a much easier baby than dd1.

Ive had three early losses since, at 4, 6 and 8 ish weeks, but am currently pregnant and have my fingers crossed.

Over the years I’ve been seen (never privately) by the MMC clinics, and prescribed progesterone, aspirin etc. BUT wasn’t taking them for my DD’s pregnancies (as possibly silly/definitely not evidence based but I worried they simply delayed my losses rather than stopped me losing).

Sorry cut off my post. Was going to add, I found the clinics really helpful and now have early/extra scans with the EPU. I suspect I could/should have had more testing, but the initial battle before DD1 was falling pregnant!

@Callmemummynotmaaa wow that's a journey and a half, thank you for sharing. It astound me that there are so many strong women out there who can give me hope.
Sorry to hear of your losses. They don't get any easier do they.

I'm hopeful that aspirin might help support the pregnancies - that's assuming there isn't a chromosomal problem in my previous losses. Ill never know really - I've taken progesterone from positive test and the consultant wants to try that again next time.

It's reassuring that your journey found its happy ending without private investigation - as I just don't think that's going to be possible for us. I've been told that until anything problematic comes up from genetic testing, that it's just rotten bad luck - and I'm gna have to try really hard to believe that and continue to draw strength from those around me. Thank you again for sharing your story - I'm sure others find it reassuring also xx

Hi @Kappi 👋

was doing some late night scrolling and found this - we’ve spoken before on other threads and have a very similar timeline - we’ve had losses in June 22, Oct 22 and June 23. I hope you are staying strong 🙏🏻

I was just wondering if you’d had an appointment in Coventry and how it went? We’ve had one through for end of Oct.

I also wanted to offer what (maybe?!) could be a comforting point of view. Whilst our area won’t refer for RMC testing until 3, I think I cried enough that they gave us testing on baby number 2s genetics. We also paid to have testing on number 3. They showed loss 2 had Turners and loss 3 a Trisomy. I’m still utterly convinced something else was up in loss 1 as I had weird pins and needles throughout, but for the last two it really does seem like shitty bad luck could be plausible. Now worried ‘shitty bad luck’ could equate to crappy eggs but that is another matter!

I was utterly convinced, given a previous healthy birth and the fact our losses were carbon copies, our losses weren’t simply chromosomal. I’ve since had testing that suggests possible clotting and immune issues but the fact remains that nothing would have saved those two babies even if there is also something else at play.

Thank you for starting this thread - so much hope on here after multiple losses. Always happy to connect. It’s very isolating in real life xx

@MamaW05 hi! Sorry for the late reply - you know how life gets!

Our Timelines are really similar aren’t they - on the one hand it’s so sad but in a small way it’s comforting to know I’m not the only one in the world feeling this way. You’re right, it’s so lovely at times.

Coventry is another 2 months away for us but I’m kind of using this time in between as a break from trying and just gathering my thoughts again. My cycles shortened since my first pregnancy loss and I came off the folic acid after my most recent. So I’m just looking at trying to let my body rest before I see Prof Quenby.

Ive seen on here that some women get a letter from the clinic at Cov asking for a load of bloods - have you had this? I know the initial letter says not to phone - but, I’m worried I’ll need the results back in time for the appointment!

its interesting that your pregnancies also had a chromosomal result show up, - ours came back recently as trisomy - do you know if that is a sign of egg quality generally or whether that’s a sad but ‘one off’ event? I find that some sources say different things!

Sorry to bombard you with questions - I understand entirely if you’d rather not share! X

No definitely it makes a difference having someone else almost literally in the same boat, though I’m sorry for us both.
So I got my letter from Coventry only about a month before the appointment as they say bloods can take up to 2 weeks to come back. I’m going locally on Friday for bloods with the appointment on the 27th.

my cycles have also shortened since my second loss, and last month I had a weird super early ovulation. It’s just tiring isn’t it!

eugh I don’t know on the egg quality, it’s driving me nuts! The first loss we tested was Turners which at first I was told was utterly random, but after our second tested was confirmed Trisomy they said oh well Turners can be due to the egg maybe, so clear as mud! It seems when it’s chromosomal they say it’s just ‘bad luck’ but yeh at what point does that actually mean an egg quality issue?? I do have silent endo and apparently the systemic inflammation associated can impact eggs, and also low AMH. That’s also disputed. Lots will say that has no indication on egg quality, some say it might 🤷‍♀️

we are probably going to start IVF end of this year/beginning of next to do PGT-A testing but I’m unlikely to get loads of eggs with my AMH and worried it will expose that all my eggs are crap! 🤦‍♀️ but generally it seems the field view it as a positive if they find chromosomal abnormalities as it means just a case of finding the golden egg? But I was kind of hoping for a magic pill to just correct a problem xx

@MamaW05 you’re so right, it’s really tiring!

thanks for letting me know about your letter.. I’ll hang on then, rather than doing exactly what the initial letter asked me not to do!!

the egg quality issue is really worrying me - but I have read, (as I’m sure we all have!) that there are steps you can take to support your eggs. It’s all new to me though, so I’m just going to see what comes from the Cov appointment.

I hadn’t heard of silent endo until you mentioned it! How did you discover that, as maybe that’s my situation also? I feel like I’ve had every blood test known but that hasn’t been mentioned!

like you, I wondered about ivf with preimplantation testing!

I don’t know about you, but some days I think - nobody’s given me an answer or reason to not try, as it is apparently ‘bad luck’ but looking at more appointments might mean we find a problem that can’t be ‘solved’.

Im early 30s so I try to remind myself plenty of women have successful journeys - but I can’t help feeling jealous of those who have that carefree pregnancy

I really hope your appointment at Cov is supportive and as informative as it can be! Thank you for replying as well, hopefully this thread is helping others out there who drop by needing support! Xx

@Kappi Thanks for the update and hope you’re doing ok! Also early thirties with a similar journey. Will start trying again in a month or two. Hope to hear some positive news on this thread from you. All the best in the meantime. x

@jjelisa

and to you 💜

We can try take each day as it comes, some are easier than others xx

Very wise words! And yes thank you for setting this up, feeling less alone. Same to you, I hope your appointment goes well.

I had a saline ultrasound which spotted the silent endo.

I do feel like ultimately most people seem to have success, it’s sometimes just a journey getting there 💜 and it will be totally worth it

Hi ladies, I’m right now suffering my third miscarriage in the last two years late 30’s / no children. I’m in despair. All pregnancies have been natural but we also started ivf last year with PGTA testing which hasn’t been successful so far. I’ve had all the testing done and nothing obviously found. I just don’t know why this keeps happening to me. I’m so sad and stressed about it 💔 don’t know where to turn xxx

Hey, so I think I am on my 3rd missed miscarriage. Got a scan on Sunday to find out. Not sure I can do this again

@LAURAPAX i am so sorry you are feeling this way, it’s horrible :( I don’t know what testing you have had but I will say what has saved my mental health as well as giving me guidance on what to do next testing wise is sessions with Rachel Sheriff at The Fertility Suite. She will do a whole holistic review of your losses and general health and recommend further testing if she thinks necessary - for me I did vaginal microbiome and then moved on to immunes testing as I had had everything else. She looks at what is optimal for fertility, vs ‘normal’. Some tests she can run, some she recommends a consultant. And she suggests for partner too. My husband had semen analysis then dna fragmentation when none of the other 3 specialists we saw even looked at him!
Since consulting her I have really felt like I’ve had a partner to work through all this together. I am also lucky enough to be close enough to have accupuncture with her which I’ve found so calming, if you are able.
sorry to rant on, but I really couldn’t recommend her more!
I did have a third loss which turned out to be chromosomal, and her support of it’s ok, we have a plan of what to do next in place, made all the difference to the despair I felt.
TW - I am now 24 weeks pregnant and although I am still holding my breath I am hopeful this is the one, and im
not sure I’d be at this stage without her xx

Hi @Kappi so sorry for your losses. I found this post you made really helpful reading through everyone's stories. Currently going through my 3rd loss in a row. Luckily I have a little boy who's 4 and really gets me through. We just really wanted to give him a sibling.
Just wondering if you had any luck with further testing etc and managed to have a successful pregnancy after all your losses 🤞xx

@Le19899
Im sorry to read you and your partner have experienced losses also. It’s just the saddest thing.

we took a break in the end and looked into ivf with pre testing - as it turns out after much testing and everything ‘coming back normal’ - the karyotyping test highlighted a balanced translocation. We are hoping that 2025 might be our year for our first pregnancy to cross the finish line, so to speak!

i hope you are able to feel as comforted as anyone can do, following recurrent losses. This thread - and me! Are always here for a hand hold! X

@Kappi thank you so much for replying. I really hope 2025 is the year for your rainbow baby!

I have to go into hospital tomorrow to have a tablet to get things moving. I've given it some time and nothings happening naturally (my other 2 happened naturally) so not looking forward to the next few days.

They are hoping to send this pregnancy off for testing, so hoping for answers 🤞and will attend the miscarriage clinic for further tests soon.

We did say this would be our last time trying. It just takes so much from you everytime and we feel incredibly lucky we have our little boy, maybe thats just what's meant for us. I just hold out the tinyest bit of hope I could have an answer and if we did ever try again whatevers wrong could be fixed.

Sending you lots of love and baby dust xxxx

Hi,

Just wanted to add a little hope.

I had 3 losses back to back and had given up hope.

But now I'm 36 weeks pregnant with a healthy rainbow baby.

Sending baby dust your way. X