Recurrent miscarriage 3+ miscarriages

[Kappi]

Hi all,

Just thought I’d create a space where I could document todays thoughts and hopefully its useful to someone else who is sadly experiencing similar..

Now on my 3rd missed miscarriage and I’m finding it harder and harder to accept this is just horrid bad luck.

I was under the recurrent miscarriage clinic at local hospital and have had the usual tests - bloods and physical scan. All fine! Nothing came back out of sorts.

We’re hopeful we can send this latest pregnancy for genetic testing - it just depends on whether there is anything to test and if results are gained.

Ive had all 3 miscarriages end before 8.5 weeks.
(8, 7 and 6) all 3 have seen heartbeats at 5.5.

I also took cyclogest progesterone from positive test and higher dose folic acid.

consultants and nurses have been very lovely and kind but keep explaining that none of my bloods indicate any problems. On one hand this is reassuring to hear - but equally it’s upsetting to think that we can be this unlucky.

just wondered if there’s anyone else out there who had 3 miscarriages and went on to carry full term.. or if there’s anyone in the same boat that can understand the dreadful uncertainty of the whole thing!

@Le19899 gosh it’s hard isn’t it.

I hope the hospital trip went smoothly - look after yourself and hopefully things move along as you need them to. It’s rubbish, heartbreaking and exhausting.

the testing should hopefully give you both some clarity on what’s happening - it will never make things okay, but the hope is that you can pin point what happened. If there’s one thing I learned it’s to be really honest and clear about what testing and investigations youre interested in having. If you haven’t already, a referral to Tommy’s was very helpful for us. Even just to talk to a team that specialize in miscarriage brought us comfort to know we weren’t the only ones in the recurrent boat.

@herewegoagain123456 that fills me with hope, I have to say! I’m very worried that this translocation is going to be a hurdle we can’t go over. The ivf clinic are very hopeful - but it’s so nerve wracking!

thank you for taking the time to write - makes a difference when people stop by to share their hopeful stories! I’m sure you’re looking forward to meeting your beautiful baby - not long now!

@Kappi I had commented on this thread in 2023 (had also had a third miscarriage). Since then I was also diagnosed with a translocation. We did a round of IVF with pre testing and managed to get one euploid but unfortunately that was a chemical. I’ve spoken to a lot of fertility doctors who have said people with translocation it’s really just a numbers game and that a lot of their translocation patients have been successful with IVF and pre testing. We’re going to do a few more collections this year. Like you, hoping 2025 will be our year!

@jjelisa wow, what are the chances of our translocations - and going through such similar timelines!

we’re starting ivf soon - we had a break as I wanted to be mentally ready to open up that world again, it’s just so nerve wracking. Also we were fingers crossing for nhs funding which thankfully was approved (due to the translocation)

let’s hope that 2025 is the year - and everyone else on this thread. It’s just exhausting but we’re not alone - I remember that from my first thread, after miscarriage number 1.
<3

@Kappi yes I don’t know anyone with a translocation. Had actually never heard of it before. Glad you’re feeling mentally ready to start IVF and you’ve got NHS funding. Would love to hear how you get on. Will keep you updated as well. Wishing you all the best in the coming months!

Hope you don’t mind me joining the thread. I’m sorry there are others struggling too.
I’ve just found out I am having a third MMC in 18 months. I am already under prof Quenby at Coventry. I am weighing up my options on how to pass the pregnancy, but it will be sent for genetic testing.
Just absolutely devastated it has happened again

Hi @Figtree11- I am so sorry to find you in this thread :( and sorry to hear you’re going through this again. I’ve found reading through this thread extremely helpful and reassuring and not feeling so alone. I’ve just experienced my first MMC but is my 3rd loss in 7 months now. First one I was a chemical at 4 weeks, 2nd was just before Christmas at 6 weeks and now this MMC which was suspected at a private scan at what should have been 8 weeks but measured 6 with no heartbeat. Went back yesterday for follow up scan and confirmed MMC - had already done our research on options and decided to go for surgical management which they actually did yesterday afternoon under local - a lot sooner than expected but I’m actually relieved I’m not having to wait around for something to happen on it’s own. They’re sending the tissue for genetic testing, took bloods and are referring me to recurrent miscarriage clinic. Physically I’m okay and have already stopped bleeding which feels weird. Emotionally I’m all over the place and have completely lost faith in my body! We were so hopeful about this one as my little boy (3.5) was a rainbow after 2 early losses so we stupidly thought this was following the same pattern.

We’re going to a local miscarriage support group on Tuesday and I’m probably going to access the counselling that’s been offered as we do want to try again but I just don’t know how I’ll cope if/when we do get pregnant again.

Ive started taking CoQ10 and a multivitamin with omega 3 and higher dose folic acid as heard that can help with egg quality and figure that can start working whilst we wait for everything to happen and cycles to regulate over the next couple of months. I definitely want to wait for my next period before we even think about trying again!

sending massive hugs, it’s bloody awful isn’t it?!

@Figtree11 @MummyV2021 It’s so awful! I’m sorry to read of your losses. It’s just the saddest thing and feels particularly cruel in the lead up to Mother’s Day.

You’re definitely not alone and there are so many of us that are with you.

Our pregnancy was sent for genetic testing too, hopefully the results can be returned swiftly for you- waiting Is so tough! X

So sorry you're going through this.

I had five miscarriages in a row and then two healthy children.

Thank you @MummyV2021 I am so sorry you’ve had a third loss too. I honestly thought this time would be different. Just can’t believe this is how life is turning out.
That’s good though that they are sending it for genetic testing, and you’re being referred. Luckily (I guess!) for me I got referred to Tommys after my second loss so have been under their care and they have been so lovely so I do feel supported. I hope it’s not long til you get some answers

@Kappi it does feel particularly cruel it being Mother’s Day 😔 It definitely helps to talk to others who know how painful multiple losses are. I’ve not had chance to read the thread back yet, but did the genetic testing shed any light for you? I’ve been told it can take up to 12wks for results so we won’t be TTC until after then

@Figtree11 I’m glad you’re in good hands and feel supported. So important. They didn’t give me a timeline on the genetic testing but we’re probably not going to wait for that before TTC again - I’ve just turned 39 so don’t feel like time is on our side. Going to do anything in my control in the meantime and certainly won’t be trying until at least I’ve had my next period so long as we feel ready.

@Kappidefinitely feels more cruel with the timing leading up to Mother’s Day - my first EPU scan last week after my concerning private scan was on my birthday too, so doubly terrible timing!! How are you feeling about starting IVF soon? Sending lots of positive vibes your way for a successful journey!

@Figtree11 our testing showed nothing other than a sporadic chromosomal anomaly- we were told we were just unlucky and to keep trying.

however, it was when we started our tests for ivf that our embryologist suggested a karyotyping test- the 3 back miscarriages caught his attention as they all ended before 8 weeks. Sure enough, we found that I have a Robertsonian translocation. So our route was either keep going unassisted- and possibly ride out more losses. Or, try ivf with PGT and only implant embryos that are likely to result in a healthy pregnancy.
we decided on ivf as the losses so far have been so tough!

if the embryologist hadn’t suggested the test, we wouldn’t have known there was an issue. As the pregnancy we tested had a different - random- Anomaly. Not my translocation. I’m very grateful to him for suggesting we test!

We waited 10 weeks for our results I think - it wasn’t easy but there were easier days and obviously some really hard days too. Whole thing is just torment!

@MummyV2021 On your birthday, god that’s hard x

I’m all the emotions! Good days and bad really, I think opening up that world again is so draining and makes you quite vulnerable really. But I know that worrying won’t change anything so I really am trying to be as positive as I can manage, if that makes sense!

@MummyV2021 definitely helps to be supported. Even got given a book and some forget me knot seeds to plant and a keepsake heart. And they were just lovely people. It’s only been a day since I found out, but just knowing I’m hopefully being looked after is helping a bit. Got everything crossed for you that next time ends up in a healthy one for you

@Kappi thanks for sharing. I’ve not heard of that before, so it sounds really promising to hopefully have a reason. I too would go for ivf like you have, there’s only so many times you can keep trying naturally isn’t there with it being like a roll of a dice as it just gets to you.
My second loss was a partial molar so I am really hoping it’s not another one. Sending loads of luck for you IVF

Hello everyone, sorry you are all struggling so much.
@Figtree11 I feel almost like you are a friend for the wrong reasons. I have been on various threads in this board over the last 18 months and I know you have been in here too. I am so sorry that we are still here.
I have seen others come on here with pain and sorry and come through so with successful pregnancies over the time I have been on these boards and I am somewhat exhausted with waiting for my turn. I think, ladies, we are all in solidarity on this.
For my part, after my MMC, which shocked me to the core , I have only had a couple if chemicals. I do count myself lucky to have fallen pregnant every few months but for it to fail every time and then waiting for the body to regulate again is harrowing.
I had private testing for immune issues, which I suspected I might have for various reasons and the results did indeed show high NK cell activity and toxicity so I will be on prednisone, cyclogest and a great deal of prayer if I am lucky enough to conceive again.
We all just got very, very unlucky with this baby making game ladies and I am so much hoping we all find our way to motherhood and happiness soon.

@Kappi hope you’re doing ok? Have you started IVF yet?

I’ve just started down regulation with ARGC here in London. Hoping to get some genetically normal embryos by end of this month (despite having the translocation). I did get one normal embryo last egg collection but unfortunately ended in a chemical pregnancy. Still staying hopeful though!

@Objectiontime I am so sorry that you too are waiting for your rainbow baby. It’s so hard for me to think that I’ve had 3 losses in 18 months now, and it’s coming up to 2 years since I started TTC and it’s still not worked out. Each time my body doesn’t recognise the pregnancy stopped either, so I’m due to do medical management tomorrow.
It’s positive though that you have a new protocol in place now for if you get pregnant so that it can hopefully stick. I hope it’s just a short matter of time now until you conceive again

@jjelisa I’m almost at egg collection for round 1! Exhausted and pretty worried we won’t get embryos - I feel like At each stage I prepare for the worst without even meaning to!

bless you I’ve read about the down regulation - I’m only on short protocol first. I think maybe as it’s the first round? Sending you lots of love for your cycle - you’re incredible to do it!

This thread is full of incredible people and I’m really glad we have somewhere to come for solidarity - the world around us seems to have it made and it can feel so lonely to not have that same joy. It’s Mother’s Day today, sending all the love and understanding to anyone that finds this day a challenge x

Thank you Figtree11. Let's hope things improve for us both in the near future. Do you have any reasons given for your MMCs. They are so awful!. Have you had any suggestions as to why this us happening? Have you had immune testing?

I hope everyone got through Mother’s Day ok.

@Kappi have everything crossed for you for the egg collection!

@Objectiontime fingers crossed for us.
I don’t know about the first one, but the second one was a partial molar. So it’s meant to be just extremely bad luck, so I thought the third pregnancy would work out, so now I’m worried there is something wrong. I’m under the care of Tommys, so this one is being sent off for genetic testing. And will have an appointment to talk next steps. Have had some tests done such as checking for sticky blood but that was negative. I found out I had pcos and on metformin for that

Hi, joining the thread after my third MC (second MMC) in January. Was supposed to be referred to the recurrent miscarriage clinic on the day of my surgery, they took a load of bloods after the surgery whilst I was still groggy so I didn’t really ask any questions but they told DH that I would have an appointment in about 6 weeks. I left it until 9 weeks to call and chase the appointment and found out the referral was never submitted. Allegedly I was sent a letter in Feb asking to confirm the length of pregnancy for the first loss (didn’t need medical intervention so they didn’t have it in my records) but I never received it, and I’ve been watching the post like a hawk waiting for the appointment letter..

Feeling frustrated and annoyed that I fell through the cracks and with myself that I didn’t chase sooner as I feel like I’m back to square one
The junior doc who brought me in to take a history (that I’ve already given but that’s not his fault) and some more bloods was very apologetic, he’d recently moved from another hospital so has some ideas on how to improve this process to prevent this happening to others but that doesn’t really help me at this point.. he told me to call the secretary this week to ensure my referral has been received and see if they can reduce the wait time due to the error but said he can’t control the wait so we will just have to see.. Genetic testing was supposed to have been done following the surgery, the doctor said it would be discussed when I eventually get my appointment but didn’t say that it had been done so I’m hoping it didn’t get missed in the confusion..

Quite cathartic to write all that out 😅 sorry to see some familiar usernames here.. manifesting that 2026 will be our year.

I’m struggling more than I thought I would be, they’ve said to access Tommys if I need to talk but I’ve seen others say it’s more practical support than emotional.. not sure where else to turn. DH is great and very supportive but he’s the eternal optimist and I’m not so much so I’m feeling quite alone in that sense.

Really sorry to see you here @Confusedmermaid1💔 and really sorry for your rubbish follow up situation. You’ve made me think I need to call them in a few weeks to check on the referrals and stuff as they also said they were taking care of it all and I wouldn’t need to do anything. So I probably need to take that with a pinch of salt. Do you have any local support groups or anything??

Me and DH have been to our local baby loss support group this evening and whilst it was pretty harrowing hearing some of the stories it was helpful to not feel alone and also helped me process some feelings I wasn’t even aware of - like the fact I feel like I’ve had an easy ride of it - no pain, no side effects, no blood loss and just being able to crack on with it almost. I’m definitely emotionally detached right now but I know that’s a self preservation thing.

One thing that was interesting after I shared my history of falling pregnant very quickly in quick succession (3 times in the space of 4 months when trying for DS1 and now 3 times in 6 months), a few of the women suggested that I might be hyperfertile - I have NEVER heard of this before. Has anyone else? I’ve obviously come home and googled it and it weirdly does resonate with me and gives me some hope that things will turn out ok but also terrifies me at how many losses I may have to experience given my body might be prone to implanting even crappy embryos 😭 they suggested I start taking low dose aspirin now before we start trying again but I’m not sure how helpful that will be in terms of the general embryo quality?!

@MummyV2021 there’s lots of supplements both you and your partner can take to improve sperm and egg quality, if you’re not already?
This is what I took : Co-q10, vit D, fish oil. I also took vit C, vaginal probiotic and b12
partner: Impryl (for sperm) + eating good fats like walnuts, co-q10, vit D.
I recommend reading ‘it starts with the egg’ for lots of supplement, diet and lifestyle changes.
sorry if you already know this! X

I had 3 mcs and then a successful pregnancy. I had all the tests and all the doctors said it was bad luck/age and there was no reason I couldn't have a healthy baby. It's easy for me to speak with hindsight now, but I'll never forget what it was like to live with that uncertainty and the horrible, horrible ttc/pregnant/mc/ttc again rollercoaster that took over my life. As long as you want to stay on the rollercoaster, all you can do is keep going, one day at a time, find the snatched moments of happiness when they come. Thinking of you x