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Miscarriage/pregnancy loss

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Why will no one help me

73 replies

feelingprettyalonetoday · 18/11/2018 09:38

I'm about to be discharged from hospital this morning, I don't want to go home and I don't even know if I've lost our baby or not. I don't know what I'm writing for and I don't know if anyone can help understand or point me to where I should go next but here's the story.

Myself and DH have been TTC for 16 months. In that time we've had no pregnancy last more that 5 weeks, mostly chemical pregnancies. We paid private for bloods and SA which only showed I have mild pcos.

We carried on trying and had 7
Losses by September 18. By this time I was referred to the early miscarriage clinic who have booked a hysteroscopy for early next year along with bloods for clotting factors and thyroid.

Fast forward to now and I am or was 5w nd 5 days pregnant. When we found out at 4 weeks I contacted the nurse specialist who put me on progesterone suppositories- I've had nothing but issues with them. I feel terrible, I've been bleeding, in pain and shoulder pain. I let her know this and she advised me to contact my GP?

Friday night I was at work and this became incredibly painful, the bleeding increased and I was sent home. 111 sent me to hospital sat morning, the same hospital we are under for fertility.

I've been on oromorph overnight and my beta hcg is 736. They examined me internally 4 tines and can't find my cervix to see if it's open or closed. They can't scan me because they don't have anyone to scan at a weekend. I'm trying to be understanding because I am a nurse but this is a huge regional hospital for the south.

I've just been told they can't tell me what's going on, they aren't sure if it's miscarriage, ectopic, a twin loss or progesterone issues.
I feel I've lost it, 8 in 16 months.

They are discharging me this morning.... to come back
Next week and find out. I am beyond heartbroken and lost, I don't know what to do. All I've been told is they don't know and to carry on progesterone

My husband keeps crying so I have to be strong for him and try and hide it from my dd (7), I don't want to go home- I don't know where to go or what to do, I want to sit and cry and scream at how unfair it all is but I can't because dh is back at work, childcare needs doing, everyone needs feeding, house needs tidying and dog needs waking.

I'm sorry if you've got this far, and I don't know what I'm asking for but anyone just to chat to would be nice

OP posts:
Viewoffriday · 11/12/2018 13:32

A) very good luck, b) I have both thyroid problems and sticky blood and I had gallons of blood taken throughout my pregnancies. It's much better to check than not, so please get your thyroid checked. Is much more equivocal about the sticky blood tests as pregnancy affects the results of some of these tests.

feelingprettyalonetoday · 11/12/2018 13:43

Thank you @Viewoffriday I spoke to them today and they added it onto my bloods

OP posts:
pumpkinpie01 · 11/12/2018 13:54

Is this your first miscarriage whilst on progesterone ?

feelingprettyalonetoday · 11/12/2018 14:16

My ectopic was my first loss on progesterone @pumpkinpie01. I'm not sure if I'm pregnant again now Howe

OP posts:
Viewoffriday · 11/12/2018 18:03

Results tomorrow? Best of luck. I can't imagine how hard it must be, but I have some experience of how totally disregarded women are in miscarriage. Really wishing you the best.

feelingprettyalonetoday · 11/12/2018 19:22

They said Thursday and will do another one on Thursday but I just know it's not going to work again

OP posts:
Shoebedoo · 12/12/2018 16:25

Hope ur feeling ok today..

feelingprettyalonetoday · 12/12/2018 17:48

Still no results, I think I'll just give up Sad

OP posts:
GoldenBlue · 12/12/2018 21:01

Its hard waiting, you poor thing. I hope you get a result tomorrow x

feelingprettyalonetoday · 12/12/2018 21:29

Me too Sad I'm feeling pretty confident now that I'm not

OP posts:
kaylee1988 · 12/12/2018 22:19

This reply has been deleted

Message deleted by MNHQ as it was posted in the wrong place.

Thisimmortalcurl · 12/12/2018 23:40

Don’t give up .. if not now then some day . Lots of positive wishes for you

FestiveNut · 13/12/2018 05:15

@Kaylee1988 you need to start your own thread, you've commented on someone else's here.

OP, if you're getting very distressed, taking some time out could be a positive thing for you. Good luck in whatever you choose. Flowers

Shoebedoo · 13/12/2018 07:58

I'm hoping u get good news today!

feelingprettyalonetoday · 13/12/2018 08:29

Well I've rang, they have it but they won't give it to me which means I am now delayed starting progesterone and aspirin if I am pregnant.

I should have gone to the hospital that I see epu in! They tell me in 4 hours! But I work there and it was my days off and it's a 45 min driveSad

OP posts:
ForTheLoveOfDoughnuts · 13/12/2018 09:08

I hope you don't mind, I have nothing to add but to say your story has truly touched my heart and I hope for a positive out come for you x

pumpkinpie01 · 13/12/2018 09:48

Good luck , just wanted to say with regard to the progesterone stick with it ( with either this pregnancy if all is ok , fingers crossed or the next one ) I had no trouble getting pregnant but just couldn’t stay pregnant I had 4 miscarriages at 4-7 weeks in the space of 12 months. All miscarriage tests were done and came up with no issues I was then given progesterone which worked. I know it’s hard and it’s heartbreaking but grieve, get angry , treat yourself and don’t give up . Please keep us updated , big hugs x

Patchworksack · 13/12/2018 09:55

Just wanted to say good luck. I had four miscarriages at 8-10 weeks and found a lot of comfort in the recurrent miscarriage threads here. After no answers from the NHS investigations and another loss on progesterone and baby aspirin I went to Coventry to see Siobhan Quenby and was found to have high uNK cells. I had a successful pregnancy first try on her protocol (progesterone, clean, steroids) and my daughter is now 4. Find some support - it is so hard going through this again and again, and keep pushing for answers. I hope this is it for you and you get your rainbow.

feelingprettyalonetoday · 13/12/2018 10:09

Thank you, it's back and it's negative :-( it must have been left over from the ectopic

@Patchworksack did you see prof quenby privately if you don't mind me asking

OP posts:
GoldenBlue · 13/12/2018 15:39

Sorry to hear that, thinking of you x

Shoebedoo · 13/12/2018 20:39

Ahhh sugar! KOKO.. keep on keeping on! Sendings lots of hugs Star

feelingprettyalonetoday · 13/12/2018 21:21

Thank you just working out what now, time I think just time

OP posts:
Viewoffriday · 14/12/2018 21:34

Really sorry to hear that. That's a real shame.

But as pp have said, go easy on yourself, and when you're ready, there are lots of reasons why and lots of excellent treatments. Wishing you the very best.

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