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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 12

978 replies

bakingtins · 13/09/2014 20:32

Welcome everyone! A thread for anyone who has suffered recurrent losses and is in need of support, information, moral support or tea and sympathy. Newbies very welcome.

Please can we start (as is traditional) with a recap of where we are on 'the journey'.

OP posts:
Justonemoretime · 21/10/2014 17:44

Flen, sorry for your losses, hope you get the help and support you need (and are entitled to) in RL, and find the advice and support you need on here. Do push for the testing, its so important to get all the possible information you can in order to put a plan in place for your next try. Good luck! x

Belleende · 21/10/2014 18:46

flen welcome to the club no one wants to be a member of and sorry for your losses. I have found the ladies on here to be the source of wisdom and support through multiple pregnancy losses. They really help to cut through all the junk that is out there.

cloudjumper sounds like turkey baster for you this month. Can you store sperm in the fridge for those ovulation emergencies?

Well my end there are two things that always turn up when I am pregnant and about not to be. My mother and head hunters tempting me with lucrative job offers. Fecking typical. Despite only seeing her about twice p.a. mother has managed to be in the vicinity for all my pregnancy losses. The harbinger of pregnancy doom is visiting the week I have my reassurance scan. And I have had 2 headhunters after me this week, and of course if I go for new role, there would be no mat pay. Someone somewhere is taking the piss.

girliesaints · 21/10/2014 21:16

Belleende- I've had similar luck and it annoys me the headhunters won't take no for an answer. Hopefully it's a good omen this occasion x

Hello to the newbies & hope we can provide you with much needed support x

Justonemoretime · 21/10/2014 21:20

The last time I got pg I was immediately head hunted, took the job and stared down the barrel of no maternity pay. So much happier in that job, despite everything. I just thought, how pissed off would I be if I missed the opportunity and then things went wrong (which they sadly did). Go with your gut and good luck. x

BettyButterchops · 22/10/2014 02:26

Marchgirl. Sorry you've had sad news. I'm in Edin and was up at the rm clinic at the ERI in May. I had mc3 in March and wanted to get on with bloods so my gp agreed, but they were not the right bundle so had to be redone at rmc. All that waiting is the worst! Watch the clinic doesn't lose you in system, I found they needed chasing up esp for scan. Rm clinic shares waiting room with the labour ward, the nerve! I sat and sulked behind newspaper til it was my turn. They took bloods, but not enough so I had to return the next day and was made to wait for the consultant on the labour ward, great, as she'd been called to an emergency section. She was nice and explained lots to me. The chap was a bit cooler and very dismissive of coventry. Scan was annoying as was expected to wait with all the preg couples. I couldnt without a weep and asked to wait somewhere more private which they happily arranged. The tests all came back as fine, have been offered a scan prior yo booking in if that ever happens and that's it. I have a great gp who has been through same as me do she is very supportive. I hope you find it goes ok. Ive not been on here for ages and need to go back and catch up. Waves to all and sorry new folks have had a rough time. Glad to read of some ladies that are showing there's hope yet too. X x x

BettyButterchops · 22/10/2014 02:29

That message sound a bit blunt at end, sorry. That's probably because I'm up far too late and half asleep. Best and warmest wishes to all on this thread for better times ahead. xx

Belleende · 22/10/2014 08:35

HI betty love the name! Don't think you were blunt at all.
IT seems like there is a huge variety in the quality of care and options available depending on where you are. I founD my rm consultant very passive. I tested high for TSH she said it was borderline, probably not worth treating. Only when I read the guidelines I discovered I was x3 the recommended level for ttc. My gp was much more proactive.
just I am lucky I have just changed roles and loving the new one, so no urge to jump just yet. And after being in this company for 10 years they frickin owe me a mat leave baby or not!

Flen · 22/10/2014 08:41

Thank you everyone for being so welcoming. I can feel there's a huge pool of knowledge and support here, which makes me feel a little bit better about what lies ahead. D&C tomorrow...

charlieis30 · 22/10/2014 10:24

Good luck flen. I think you mentioned this was your first D&C/ERPC. It's completely sh*t but in a lot of ways easier than actually dealing with the MC. I was at the hosp at 3pm, in surgery by 5.30, awake again at 6.30 and home by 8pm. It made me feel a bit like I could move on to the healing part (emotionally & physically)

Marchgirl · 22/10/2014 12:50

Hope it's not too awful today flen.

Betty Thanks for your info about ERI. Good to know in advance about the waiting room issue so I can brace myself.
Interesting what you said about gp taking the wrong bloods. I phoned the PSC (everyone else calls it EPU) yesterday to ask about getting bloods taken first and they advised against this, as they said I needed to wait until hormone levels were back to normal and that gps might not get the bloods right as they have to be in the right tubes and be examined quickly.

She also said they would probably only do the clotting test once rather than twice, 6wks apart, as it was long enough after preg that once would be accurate. Did you have follow up tests or just one lot?

ImnotawitchImyourwife · 22/10/2014 15:24

Welcome to the thread from a fellow newbie and all the best for tomorrow Flen

Shock at the waiting room set up Betty. Whoever is responsible for that needs sacking.

So apparently I didn't manage to save enough tissue for genetic testing so there won't be any more answers this time. Did at least have a really good chat with the EPU nurse when I went to drop it off though. She's pushing for me to be seen at the rm clinic again. They said they wouldn't need to see me again, but I've MCd another twice since then and she doesn't think it's acceptable for them to just ignore that fact. Not sure what good it'll do, but if nothing else it's nice to know there's someone helping me fight my corner.

Belleende · 22/10/2014 15:26

Need more advice. I think this is the neediest I have ever been, please forgive me! My first MC started just a few hours after a short haul flight. I am due to fly to Belfast tomorrow for work. I have looked and there is no evidence linking flying to MC but I am feeling hesitant.WWYD?

cloudjumper · 22/10/2014 15:31

belle I would take the stance that the flight had nothing to do with your mc and that is was 'just' coincidence - I flew a number of times during the first trimester of my successful pregnancy without any problems. As you say, there is no evidence that flying is linked to mc.

However, if it would make you feel better not to go, cancel your flight! And don't feel you have to justify it to anybody!
Hth

Bristolian1 · 22/10/2014 15:56

Belle I flew in my last pregnancy, was worried so saw the GP first and they said it would be fine - think of flight attendants etc. It did end in an MMC but I saw a heartbeat after the flight and I don't think it was related. However I do second what Cloud says - do what you are comfortable with.

Bristolian1 · 22/10/2014 15:57

Also welcome Flen (and any other newbies - this thread moves so fast!). Sorry you find yourself here and I hope today went ok.

TinyTear · 22/10/2014 15:58

Belle, I have actually flown more in my only successful pregnancy so far than in any of the miscarriages.

This time have only been to Sweden, but have flown...

Itscurtainsforyou · 22/10/2014 17:36

Hello everyone. I have an appointment with the consultant tomorrow and I'm trying to think of the questions I want to ask. At the moment I have:

  • what are the reasons for miscarriage at 6-7 weeks (I've had 2 this year) and what can be done to reduce the risk of it happening again?
  • given my blood clotting disorder, and the fact that aspirin didn't help this time, can he prescribe me heparin from bfp onwards next time? (Which happens at another local hospital)
  • other people I know who've had early miscarriages have been prescribed progesterone or hcg injections from bfp - is this an option for me (& if not, why not?)
  • can I be referred to the recurrent miscarriage clinic, which do they recommend? How long is referral time?
  • as I've already had lots of blood tests, what will the rmc do in addition?

Is there anything else I've not thought of?

Thanks Smile

longestlurkerever · 22/10/2014 17:42

Hello everyone. Welcome flen. So sorry you are going through such an awful time. It just stinks, doesnt it? I hope all goes well today.

belle I just flew 2 x 24 hours and 2 x 3 hours in the early weeks. I didn't especially enjoy it but it doesn't seem to have done any harm. Another good scan today. I am 8.5 weeks. I have now been given cyclogest. Slightly annoyed I wasn't given it earlier. Why cant they agree even within one hospital? X

Justonemoretime · 22/10/2014 17:44

Curtains, I'd ask whether they will review any progesterone advice once the PROMISE trial is published later this month if he says no to it and the trail says yes. Good luck. Also mention that heparin seems to have more benefits than aspirin alone. x

Justonemoretime · 22/10/2014 17:45

FYI, heparin is from in utro scan, not normally bfp.

TinyTear · 22/10/2014 17:57

Great news lurker!

If we are both lucky this time we can meet up in the heath in summer

longestlurkerever · 22/10/2014 18:12

curtains the dr I saw today hinted that the trial was going to show positive findings and said it certainly wouldn't do any harm. Cyclogest is progesterone btw in case that wasn't clear.

tiny how amazing would that be? Quite tearful thinking about it. Scan today was properly baby shaped so starting to get exciting, though obviously that means it will be even more gutting if it goes wrong.

Justonemoretime · 22/10/2014 18:30

Longest, yay! Grin

Itscurtainsforyou · 22/10/2014 18:32

That's great - thanks!

Marchgirl · 22/10/2014 18:33

Brilliant news longest. So pleased to hear that and fingers crossed for a boringly normal rest of pregnancy. When is your next scan?

Apparently the ERI are starting the RESPONSE trial in January and I may be eligible. Is anyone already taking part and what are people's thoughts on it?