Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

sruddy don't worry too much aboutsstill getting pos tests. I had a faint pos 3 weeks after natural mc, followed by af 4 days later. Which was weird bc I thought it had to get to neg before ov and af would restart.

I'm on a similar timescale to you and charlie 1st mc due 9th sept, 2nd 1st march.

ididnt whatever it is at least you will now know and get treatment if necessary. Hoping it's something fairly simple that a few choice drugs will sort out.

Grr f-ing princesses. Bet she gets as many scans as she wants too.

She's a jinx! I was two weeks behind her with my first MC, and now this ...

effin your last comment made me laugh. I was thinking the same thing today. SCANS! SCANS!

Actually what you said about AF was interesting. I'm day 28 post-ERPC today, AF arrived bang on 28 after natural MC but I wasn't as far along that time. I think my hormones are still all over the place. Want AF so badly though!

Hi all, sorry to post and run, and not name check you all, haven't been around for a couple of days. Hugs to all those who are feeling low.

cat in case you are still there, just wanted to say I wish you the absolute best of luck with everything. Your kind and supportive words have helped many of us through a bad day I am sure. We are still here for you if you choose to pop back on. Keep us updated if you can xxx

Stupid blooming princesses - bet they wouldn't need to wait to be referred to the RMC. Pah. This past year has definitely made me into a more cynical individual!
Hope everyone's doing ok - I can't scroll back on my phone for some reason. Silly phone.
Having a brain battle, we really want to ttc ASAP but should we wait for various tests from the RMC or should we go for it and go for all the tests St Mary's offer once you're pregnant. They usually put you on progesterone, asprin and herapin and check you every 48 hours. I feel like I'm wasting time just waiting for my referral - it going to be 4 months and then another 3 months for results. But then if they find something then I'm wasting time by ttc again without all the facts argh! What are your words of wisdom, please can I have a fish slap or two?!

Fish slap here...

I had 3 MCs in 2010 then went on a forced break from December to may while did the tests at St Mary's London and waited for the result, but then had my dd even though there were no meds then as the results were normal.... So maybe a little wait will be good ...

Boozle - it is a massive dilemma. I have struggled with it too. The only thing I would say is that you may not have to wait that long for an appointment - my nhs appointment came through 1 month after the date of my gp referral letter. Most of the blood test results come through quickly. One has to be repeated after 6 weeks and takes 4 weeks to get the results, but I have had the go ahead from Mr Rai to ttc while still awaiting that one - so there might be a compromise to be had? I was very impatient too but when I had a slight pregnancy scare in the first cycle when still awaiting all my test results it was frankly terrifying. I am in the same position now in that no cause has been identified but at least I know that some things have been ruled out. All in all - maybe there's a compromise to be had? I haven't been prescribed anything by St Mary's yet either (I had my follow-up consultation with Mr Rai privately and though it's still conceivable I might be prescribed something at my next NHS appointment I don't think they tend go in for "just in case" treatments if they don't find anything).

I have to say I don't find the "break" does relax me very much if I'm honest. But it was still important to me to get at least the majority of my test results back to minimise the risk of another mc as best I could. It's a very personal decision.

For me my break was ok as I really invested in my health and started running and lost 5kg...

Just did a little happy dance in the loo - AF has arrived! It feels like a major step towards putting the MC behind me and moving forward into a hopefully rainbow-coloured future! Positivity is going to rule this month! Yay!

Yay charlie! Who'd have ever thought we'd be happy to see AF! How many days since your ERPC? Enjoy the positivity today.

boozle what a dilemma. I can't offer advice as I've not been through this process. But I think in these situations there isn't a right answer and it is simply a choice between two equally good/valid options. But I'm sure others will have some experiences to share that may help.

Charlie. Are you ttc again now too then? Good luck! I am on CD36 now (7 days po) and counting down the days to testing again.

Good on you Tanny. 5kg is a lot.

It was, recovered it all by now probably with the comfort thing... but i know i can do it, when i can go out and run...

fingers crossed to BFPs this month

effin day 30 of cycle, had ERPC 4 weeks ago Monday. Having had AF 28 days after my natural MC in Feb and reading so many stories of girls waiting for weeks or months for AF, I'm considering myself extreeeemely lucky at this point (well, if you discount the actual MCs)

lurker defo trying. DH is on a work trip so I won't see him until next week then grand plan is to DTD every 2 days. I'm temping and using my microscope, but I'm going to try REALLY hard not to put pressure on DH, I know it's really tough for him.

Tiny don't stress, I put on 5kg since my wedding last year but I know I can lose it. I've joined the gym again and started pilates & lots of walking, plus Operation Healthy Charlie starts today! :) Plus based on my last pregnancy if I get preg again I'll lose loads in the first trim as MS was so grim.

boozle I've lost touch with where you are up to but if you haven't had the standard NHS tests then I'd wait. The only test St Mary's offer when you are pregnant is the TEG clotting test which is sometimes abnormal in pregnancy and not in a non-pregnant state, and I'm not sure they would take you on as a new patient when you were pregnant already. The 48 hr thing also sounds unlikely to me (most RMCs it seems to be fortnightly, I had weekly checks over my 'danger' weeks) At least get in touch with them and be sure what they'd offer you if you got a BFP before testing is complete before deciding.
Like tiny I used the time to eat well and get fitter - it can be a positive thing.

Can't write much as I'm on holiday and am rationing Internet use. Saw the news about Kate today though and I thought I'd come in here and grumble with you all

Ididn't - are you ok? What did the doc say? Thinking of you and very much hoping its nothing serious.

I hope everyone else is doing ok. .

boozle I agree with what others have said - a break can be a good thing. No obsessing of which day of the cycle you are in, no having to time dtd, no 2ww - it was bliss! I had a break after my 3rd and after my 4th mc, while we were waiting for the test results, and I really enjoyed just living a normal life again for once, like before this whole madness started. It gives you time to sit back and thing, re-focus and re-charge. Give it a go and see how you like it! Your DH might also be grateful...

Yay, Charlie! Probably the only time we are glad to see AF is after a mc. Welcome back on the rollercoaster

Thanks guys - I think you are all the sounds of reason in my crazy head! I'm already on the fitness wheel with running and horse riding.
I'm only a week post ERPC so still waiting for the letters to come through but I have a follow up scan this week so I'll ask about it then.
baking I agree - it's just what they told us they were going to do last time we were in, if I were to find myself pregnant again - although they did say to try to get the progesterone from my gp and then they'd give it to me if he was reluctant. They said I could come in every week but they'd recommend 48 hour bloods. I wonder why - I just assumed it was the norm.
Anyway, after taking the horse out and clearing my head I think you're all probably right. I've spent 9 out of the last 11 months pregnant and maybe we should see if we can at least rule some bits out before trying again. So frustrating - I'm such an inpatient person! Plus my DH is very keen to try again straight away, I think it's his way of coping with it all. Hope everyone's having a lovely Tuesday, yay on AF Charlie fingers crossed it's the last one you'll see for a while!

Maybe they meant 48hr HCG in the early weeks before they can scan? Can't see it being an ongoing thing though....

Thanks for the positivity ladies! I'm psyching myself up for at least a few months to get pregnant again, it was 3 months TTC for both my pregnancies. Although a number of people have repeated the "more fertile after an ERPC" old wives tale to me. I don't want to get my hopes up for first month or anything!

boozle I guess I'm a lot like you - I'm so impatient. But it sounds that you, like me, don't have a huge amount of trouble getting pregnant - just staying that way, so there's not the same stressful time pressure as other people feel. I took a couple of months off after my 1st MC and then was super frustrated when it took another 3 months to get pregnant again (not long I know but it felt like a lifetime). This time I want to get straight back to TTC. That said, it's partly because I feel like once I am preg again there's a "good" result either way - either I'll carry to term (best option!) or, if I MC again, I will get the attention from the NHS. My plan is that, if I do have MC3, I will take time off to do as many tests as possible.

Hi ladies thanks for the support. Basically it was to say I've got low phosphate levels - whatever that means! And they'll repeat the tests in a few weeks. I've had a load of questions enter my head now so have requested another telephone consultation today to discuss it such as: do I need to come and collect a blood form, is this something that's causing my recurrent MC or something else entirely, should I be concerned, how can I fix these levels etc etc etc

But I'm on the school run...so I'm hoping they don't ring for a while!!

Interesting, haven't heard of that before... but they don't seem to worried if they aren't giving you any meds and will only recheck in a few weeks

Yeah that's what I'm thinking. I've done the bad thing of googling and got not a lot then I googled low phosphate levels and miscarriage and APS came up.

Our gynae appt for recurrent mc is on Monday so I'll ask them if it's significant

Ididnt in some ways an APS diagnosis would be good - it's one of the treatable causes of rmc. I hope you're feeling reassured that it's nothing too scary anyway.

Ha Charlie - welcome aboard . I totally jumped dh the day I felt ov pain. Turned into a farce with dd waking up in the middle - hearing her through the monitor does not contribute to romance I can tell you. Felt ridiculous afterwards. In some ways a BFN this month would be good as I can go to Oz without stressing about scans and TEGs and so on, but I am secretly hoping this means sod's law intervenes!

longest this is what I'm thinking so I'm going into Monday feeling really positive and think if it's not APS or a treatable condition I'm going to be gutted!

Just taking a second away from my sulking and wild mood swings to thank you all for the kind messages.

Hopefully I'll be in a better state of mind and able to join you all again one day. For now it's time for wine, chocolate and even the odd cigarette

Very funny to read your comments about Kate Middleton. What a jammy bitch she is!!! Tanny don't worry about the timing, your baby is going to be so much cutter

Hugs and best wishes to you all xxxx