Recurrent Miscarriage Support - tests, treatment, trying again - thread 11

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Thanks Triple. That certainly creates a dilemma. For this month though, I think I am ttc (as I can't have the Coventry tests this month anyway). Will see how I feel about stopping ttc next month. I think I am minded to have another try before resorting to Coventry even though logically/financially it doesn't make a whole load of sense. Am just a bit reluctant to have two differing opinions at this particular juncture and in my heart would like to believe St Mary's that my chance of a happy outcome next time is good.

That sounds nice Cloud. Glad ds is chuffed. I had planned to move dd from her tiny boxroom into the spare room by now, on the basis that her room would then become dc2's nursery. But obviously that hasn't happened, so she is still in there, and maybe I should move her just to give her a bit more space. Given that her toys are in fact spread all over the house, she isn't really deprived of playing room, but I do feel a bit like Harry Potter's aunt Petunia giving her such a tiny room when we aren't technically short of bedrooms. But the spare room is on the second floor so miles away if I need to run up and change her/grab a toy etc etc as we're trying to leave the house. First world problem or what eh?

Sounds like a nice weekend cloud!! We are planing an ikea visit over bank holiday weekend! DS has accumulated a huge lego collection and we (I) need some sort of shelves/display cabinet.

Longest - same here DS is in the box room and we thought of moving when new baby comes lol. So I think it's not going to happen straight away. I see your point about not being confused by differing opinion as I am pretty sure Coventry would nonetheless put you on heparin/clexane and progesterone. In some ways those are really can't hurt treatments - so see how you feel in a couple of months time about it.

In my case I was on full Coventry protocol and st Mary's also have me heparin and it still didn't work out. So now I do blv that sometimes it's just a matter of working out irrespective of what protocol or treatment you are on!!

Hope it's your lucky one next time :)

Hey girls,

Sorry to message about me me me but I'm so teary this evening. Saw GP today and she made a throw away comment about how there's a chance my egg and DH's sperm "just don't like one another".

Now I'm visualising myself as having such a negative 'environment' that it would even reject my beautiful and much loved husband swimmers. Or maybe that my eggs are so poor his swimmers try to swim away.

Could there be any truth or science in this or is it just something stupid she said? Heart broken at the moment.

XXX

Your GP needs some training in dealing with sensitive issues. Firstly she probably doesn't even know enough about miscarriages/infertility to deliver such a verdict on it. I am sure we know more! And if the GP believes that then they need to offer you some tests to "prove" such a throw away comment!

You have been pg before so clearly the egg and sperm have met successfully before. Please don't stress about it. Unless I was meeting a consultant - I wouldn't give 2p about a GP's advice on this topic. I am sure we are more well versed having ready a lot on it.

Are you taking any meds at the moment?

Thanks triple, she's had infertility herself so she should know how hard it is. I am on meds at the moment so probably making me super sensitive haha. Still wish she hadn't said though.

How are you feeling now? Are you recovering ok? X

Hello, Ladies. I hope you're doing OK?
Cat, hope you're feeling better - ignore your GP, how insensitive!
I'm back from my weekend at Beautiful Days festival where I drank far too much and stayed up very late. Naughty, I know, but you've got to live your life, and maybe letting my hair down will have done me some good!
I'll read back tomorrow, but I thought's I'd say hello. You'd gone from my feed and I thought I'd lost you! :(

Sometimes I wish some GPs would just shut up... cat she has no proof to say that

Hi cat - I'm sorry, that's a horrible thing to have in your head. Try not to think about it too much - on the BabyCentre MC board I used to follow, the girls were fond of reminding each other that each month: new egg, new sperm = new baby. I continue to remind myself about that every day!

Went a bit nuts today and bought a 200mg Co Q10 and the pregnacare extra or super or whatever it is. Operation Feel In Control begins! :P

Sounds amazing just. I am sure it will have done you a lot of good. Hopefully you'll be duffed this month!

I'm ok now thanks. Realised it's not worth stressing over. All being well I'll be heavily pregnant soon and then all this will be like a bad dream.

XxX

It's something my DH tries really hard to get me to do - not always rush to thinking the worst. Like many women, I catastrophise a lot.
My mantra about my 2 MCs has been "it's just bad luck, it's just bad luck, it's just bad luck..." (rather than jump straight to thinking there's some insurmountable problem with either me or the DH). It doesn't always work, but I try!

Cat, your GP is talking BS - sorry to be frank, but that is such a flippant and totally unjustified comment, I'm really on your behalf! Has she done/seen any tests on you? Or maybe had a little camera up to check?! Honestly, what a stupid stupid thing to say. Ignore ignore ignore!

Cat lovely What rubbish. You have already got pregnant twice so proof your eggs are not rejecting your dh's sperm
Xx

Glad you are feeling better cat !

Charli - seriously sometimes it is all about positive mental attitude. I think that plays a more imp role than any meds can.

As for me I am going for a few reiki sessions. Have heard good things about it and it's all about distressing and being in a happier place for me.

Has anyone considered chinese herbs? I have heard good things but worry that it could mess up cycles too as who knows what's in them!!

Glad you are feeling better cat !

Charli - seriously sometimes it is all about positive mental attitude. I think that plays a more imp role than any meds can.

As for me I am going for a few reiki sessions. Have heard good things about it and it's all about distressing and being in a happier place for me.

Has anyone considered chinese herbs? I have heard good things but worry that it could mess up cycles too as who knows what's in them!!

Hi all, still here, still pg... (5+5 so still very early days)

Realised I don't really knicker check anymore... none of my last mcs had bleeding as it was all discovered on 'reassurance' scans
my body like to hold on to things

(mc1 and 3 had bleeding then... no early scans then...)

Tiny, good news, so far so good. I'm like you, my body loves to hold on to everything... joy! FX this is your lucky time around!
Triple, Chinese herbs, yuck, yuck and yuck! I have tried them and couldn't even get through one dose. No idea if they work, I can't even put it near my face! :)

tiny Yay! Today you are pregnant (repeat continuously) Do you think you will be getting a reassurance scan at some point?

charli Well, you are here, which I think is a big step towards a positive attitude - asking for and giving support. It's a long, hard road, but there is always hope.

triple I went to an acupuncturist last year who wanted to try the Chinese herbs - but I chickened out, not only because she seemed too focussed on regulating my cycles (nothing wrong with them), whereas I wanted help to get a pregnancy to stick. And I wouldn't have been able to ttc while getting the herbs, so I declined at the time.
I'm a bit scaredweary of the herbs- they can be really powerful, and I think I would have to have a lot of trust in the acupuncturist to go with this... What specifically would you want to take them for?

Whoop tiny you're doing so well! Every day is another day crossed off. Are they going to give you a scan at 7 weeks?

triple let me know how you find the herbs. It's about the only thing I haven't tried haha.

I'm feeling better today. Thanks to all you lovely ladies for being kind yesterday.

XxX

I am being scanned tomorrow at 5+6... just to check all is in the right place and then should hopefully start heparin per Coventry protocol...

I know i won't be seeing anything and I also think it will be too soon for a hb, so i am actually not too worried... well just a teeeny bit...

still have MASSIVE breastfeeding aversion (good thing my DD isn't wanting it that much) and I am cold and shattered (been going to sleep at 9h30 and dont even feel my DH coming to bed) so thinking positive

Good luck for the scan tiny. Hopefully it will show things coming along in the right way and you can start the Cov protocal. Symptoms sounds good but oh what we women go through ay?!

xxx

Hi tiny sounds like all's going well. Update us after your scan!

triple I just started acupuncture again and I was a bit wary of doing herbs. I had a round of acupuncture with the herbs in December, then conceived my next cycle so I don't know whether that hd anything to do with anything. I didn't have the herbs next time I conceived so I guess not. I've elected not to take the herbs this time - I'm already on a pregnancy multi, extra folic, floridix iron stuff, coQ10 (following the advice of some of you ladies here!) and extra fish oil. I am not really keen to add more to the mix at this point. My acupuncturist didn't think there was an issue with TTC while on the herbs, but like cloudjumper said, they can be really potent and you're putting a lot of trust in someone. They are also completely disgusting!

Speaking of supplements, I think a few of you said you were on extra folic - I chuck a couple of extra tablets down my throat just because I have them, but I know you're supposed to take extra if you have a history of spina bifida etc. My DH was born with a cleft (hare) lip and required surgery as a baby. I've read conflicting things about whether it's genetic and whether folic can help. My old GP didn't seem to think it was necessary and I'll ask my current GP next time I'm in there, but just wondering if any of you have been given any advice re the extra folic? I think it's one of the ones that you just pee out if you overtake it, although I do know it can mask B12 deficiency. I feel a bit naughty self-prescribing extra, but it makes me feel like I'm actively doing something that may help.

Also, re the CoQ10 I just bought the regular one but there's the more expensive one which you supposedly metabolise better (again, I've read conflicting things about that). I even thought about buying both and taking one of each! But I'm already knocking back handfuls of pills...

Sorry for the novel-length post...

Good luck Tiny - baby steps!

Just had my NHS appointment at St Mary's. Didn't learn anything massively new but my scan showed a very mildly heart-shaped uterus. They don't think it's impacting on the uterus cavity but are sending me for a saline scan just to check it isn't more pronounced than first appears. Does anyone have experience of this? In a way I am pleased. I doubt they will decide to do anything about it if it's only mild and they will probably say there is no link but to have a potential explanation for previous mcs that presumably doesn't mean inevitable loss (as I have dd) is vaguely reassuring. Also going to participate in the TABLET trial and havea repeat of a couple of the blood tests I already had so more tests in a couple of weeks. V grateful to the NHS for chucking their resources at me, I have to say. I now know how much that lot would cost privately.

lurker a heart-shaped uterus sounds lovely, like your body is giving you a big kiss :) Stay positive!

Clearly the preggo hormones have not left the building, I have been in floods of tears AGAIN this morning over Grand Designs. I know, saddo.
I'm still having some pink when I wipe (EPRC+8 days) but nothing between and no clots. Hope it's all ok.

lurker Good luck with the TABLET trial, because i am on thyroxine anyway I couldn't participate...

Just had my second counselling session... went slightly better than last week... but that is also because i am feeling a bit more positive... i don't know... she said something interesting which made me think... i don't really spend time on myself and probably that is also making me feel a bit lost...

i seem to worry about everyone else...

Longest, glad to hear your St Mary's appointment went well. I also had a heart shaped uterus, but it sounds like yours is less pronounced than mine. I ended up having a hysteroscopy and the septum was removed. This was a straight forward day procedure much like an ERPC, and two coils were fitted for 1 month afterwards and I had a course of HRT. Its as good as new now :) The problem probably had nothing to do with the mcs, but it was causing big problems with retained products after ERPCs because they were missing bits up in the 'corners', as it were. I understand that more pronounced anatomical issues might cause problems but these are mostly later in pregnancy, especially if the uterus is totally bi-cornate. There is a tiny chance that if implantation occurs on the septum itself the lining might be slightly thinner.... but that's a negligible possibility from what I've been told. If yours is not causing you a problem, I expect they'll have it alone. Hope your saline scan can be done soon to put any worries to rest.
I also had the bloods for the TABLET test done, but I was not a candidate for the trial (just too bloody 'normal', as usual!).
Charlie, sounds like you're healing well. Take care of yourself. I expect there will be good and bad days. Be kind to yourself.