Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Hello everyone,

"I'm sure you've already asked about causes of placental abruption, but with your other mcs it could be worth getting them to test your autoimmunity. Antiphosphilid Syndrome (? spelling) is one contributing factor in PA."

Tannyloo, yes I have been tested for that. I did have a slightly raised anticardiolipin (sp?) level on a couple of tests when I was pregnant with my dd, but not enough for the haematologist to prescribe clexane. I don't think the blood tests I had this pregnancy showed the same levels.

However, I had an appt with her a couple of weeks ago and she has prescribed it for when I get pregnant this time given my miscarriage history. She was brilliant actually, she actually gave me the prescription there and then rather than wait for a bfp, I have 3 months supply of clexane in my wardrobe! But she did say, that whatever the RMC says goes, if they say no clexane, I should listen. That appt isn't for another month.

Mintleaf, she also prescribed me 75mg of aspirin.

I am feeling a bit better now I have had time to get over the cremation. We picked up his ashes on Monday, we're going to take them to the coast where my husband is from and scatter them on a beach there next time we go.

We have an appt next Friday to discuss his postmortem results. I think they also analysed the placental tissue, so will be helpful to hear if they found anything.

homelander good to hear that you have supportive experts. I hope the appointment next week gives you some answers too. It must have been very hard to get through the cremation, but I hope being able to scatter his ashes will be a healing experience for you both.

Hey everyone,

Thanks for yesterday. Still no further forward today. Consultant's secretary still ignoring me and my gp. Very irksome. I've pretty much given up now which is highly melodramatic, particularly given most of what I've read says clexane would be started after hb anyway.

Homelander - I haven't read up thread yet to know your story fully but I just wanted to say that I'm very sorry for what you've been through. I'm glad you're feeling a bit better now. As Tins said, hopefully scattering his ashes will also help. . Also glad to hear you have a supportive team. I hope next Fridays appointment gives you some helpful answers.

Hi everyone
First mc Jan 2011 6wks , Mar 2012 healthy lb , July 2013 mc 6wks and currently going through 3rd mc .
Being refered for testing not sure what to expect , want to try again asap but been told it could take up to 6 months to complete all testing , I just want so badly to give my lb and dsd's a baby brother/sister and really don't know how many more losses I can put myself dh through

I take it all back regarding my consultant , consultant's secretary and gp. Consultant has faxed protocol from holiday and am now sitting clutching my clexane in the gp waiting room where I am about to be taught how to administer it (eek). Was supposed to be on aspirin which is good as had started taking it Very relieved.

Hey Debbie. I'm really sorry to hear about your losses. It's so hard when you start considering how much more loss you can take isn't it. Look after yourself . In terms of my experience with testing, I got referred locally as opposed to to one of the specialist centres. It's been fine apart from the odd hiccup with advice to my GP Just involved blood tests and an ultrasound.

Mintleaf - that is fantastic service from your consultant! What a relief you can start the clexane, fingers crossed for you.

Debby I can totally relate to what you said about putting yourself through more losses. I can't bear to think what kind of mess I would be in if I had another mc (have had 3 over the past year). I am just giving myself a bit of time before TTC again, though being 40, I can't afford to hang around too long. Be kind to yourself.

Mint leaf- awesome news :-)

Debby- sorry to hear for your losses and 6/12 will hopefully fly by for you with loads of postive tests to getting you a well deserved baby. Good luck for you x

Homelander- I hope your doing well. How brave you have been. X

mint glad you got it sorted. With clexane, I found it helped to ice the area with a bag of peas before and after injecting, choose areas down towards your hip avoiding midline of your tummy, stretch the skin out and slide needle in at 45 degrees rather than pinching a fold and going perpendicular, inject slowly and let the product disperse before withdrawing the needle, ice again.

debby welcome to the thread. Nobody wants to be here but it does help to have somewhere to chat where everyone understands. 6 months sounds pessimistic really. If you can get your GP to send bloods from you and DH for karyotyping now that will speed things up as that takes about 8 weeks to come back. For some of the others you need hormones to have settled so you may need to wait a cycle or two but the results are quick. If there is any opportunity to get genetic tests on material from the most recent miscarriage then pursue that. I'm sorry for the crap you've been through, I hope this phase of the journey will give you some answers and renewed hope. We've probably all had moments when we wonder whether to give up and save ourselves the heartache, you can always decide at any point that you don't want to try again, but it's still worth having the tests to see if there is something treatable.

Hi everyone, sorry haven't been around - password reset & busy week. Welcome newbies and so sorry to hear of the rubbish things you've been through. homelander I am so sorry for your loss and I hope you get all the care and answers you need. You sound amazingly strong.
Congratulations mint - was glad when I got to the end to know you safely have the meds! Sounds good on the plan just. I've also been having acupuncture and do find my AFs are getting better so hoping the lining is too! I am also due to have clexane next time. Not much to report from me - AF two days late but no BFP. Mildly fed up to be honest. Now 8 months trying since we got the all clear to try again and nothing. So hysteroscopy next month which I was hoping I wouldn't need but do need to make sure there is no scarring from the ERPCs. Joy. It's 2 years this month that we started TTC and kind of losing hope a bit. Sorry really self indulgent, feeling sorry for mysel post. Have a great Easter all - at least the sun is shining today so going to snap out of this mood!

Oh spoke too soon. AF has arrived! On the plus side at least I am getting slightly longer cycles. Silver linings and all that...

I'm not sure I'm in the right place but just after some hope and reassurance. DH and I have been trying since December, I had a BFP followed by a MC in feb and again last week I had a BFP followed by a MC today. I know it's only 2 and not yet the horrid 3 but I am incredibly worried there is something wrong. Each pregnancy has failed to get to 5 weeks, both have been very early MC. Having spent far too long on Dr google I worry it is my boby rejecting the baby or an issue with lack of progestrone. I am going to make a doctors appointment next week but feel I may not get very far due to not yet having 3 MC's. Any suggestions about what to say would be very much appreciated xx

Woo bloody hoo. AF is here 6 weeks after medical management.

Now one more cycle before Coventry!

But good timing AF. I wouldn't want to have sex on my 5th wedding anniversary anyway...

Hi jones I'm afraid you are a bit at the mercy of your GP on that one because the NICE guidelines say do nothing until after 3 consecutive MC. It's very hard to accept a second loss is just bad luck, I do feel for you. If you have time on your side fertility wise I think you have to grit your teeth and try again, if you feel time is running out then paying privately to see someone might be an option? I'd certainly ask your GP, but sadly your mental health and the emotional toll of repeated losses doesn't feature highly in NHS priorities. It's only 1% of couples who will have 3 losses, stats are still on your side for a good outcome next time, and of that 1% they only find a reason in half of cases with the NHS testing (so presumably would be lower than that after 2MC) Do let us know how you get on.

Xposted tiny happy anniversary! You'll have to make up for it later!

Jones, can you find any shred of evidence that other family members have had mc issues? After out second, we found out that dh's cousin had had issues and got a letter confirming what they had (translocated chromosome) which enabled us to get some tests early (we were both fine). Also, I think prof Quenby will see you before 3 MCs but it cost £360. Good luck.

I think anyone will see you as a private patient whenever you want. I did go private after my 3rd MC, still didn't qualify on NHS as it wasn't 3 in a row. It cost £200 for a consultation and then GP ran the recommended tests on consultant's say-so. Prof Q's tests are different to the standard NHS ones (uterine biopsy) I would think most people only go after drawing a blank on the NHS tests, though I did get the impression she thought NHS testing was often a waste of time....

So sorry Jones it's really hard to accept the bad luck line after the 2nd. We did do some testing privately after the 2nd - I think probably for the more common things and it wasn't hugely expensive. GP wouldn't do anything sadly but as Baking says, some do seem willing to carry out a some tests so it's worth asking. It's really a personal decision. I've got friends in RL who had 2 MCs just wanted to crack on and went on to have completely healthy pregnancies. Look after yourself

Happy anniversary tiny!

Thanks!
Went out for a meal and it was lovely...

Happy anniversary tiny!

Baking tins- my dad is a scientist and told me that the level of NK cells is distinctly different in your uterus compared to every where else in your body, this is why a blood test ( which is how a lot of consultants try and confirm ) is not a true reading like that of prof Q as she takes a uterine scrap so would give the levels of NK cells in the place where it matters most for us. This is why I have chosen her over the others in London, since scrolling through mumsnet she seems to be a very popular lady

Jones sorry to hear about your loss, I don't think they get any easier if it's your first or your 10th the same thought processes happen but I have a book called natural solutions to infertility and it's also has preventing miscarriages in it , obviously there was nothing you could do but this book explained a lot about all the testing available, how the test is carried out and a plan for if it's not been 3 mc in a row, in helping with optimum body etc etc so I look though this book a lot ( keeps me sane ) the author is Marilyn Grenville PHD.

No need to convince me. I went to see her last July, I'm now 33 weeks pregnant after 4MC
I hope she's able to help you too.

I hope so too