Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Hello everyone, can I join you? You can see my story on my venting thread here .

But to summarise, I have had 3 miscarriages, two MMCs at 11.5 (June last year) and 9 weeks (twins) (September last year) and one at 17 weeks 8 weeks ago due to a placental abruption. However i am lucky enough to have a 2 year old dd, which was a trouble free pregnancy.

I had my 3rd ERPC yesterday afternoon since losing my son (hospital not covered themselves in glory there) and then this morning attended his cremation. It was so sad, seeing his little white box. We requested a postmortem and we have a meeting on the results of that in a couple of weeks. Once that has happened, I think it will feel more like we can move on.

I am 40, so don't feel I have too much time to waste, but at the same time feel I need some time to get back to normal before getting on the TTC treadmill again. I have a recurrent miscarriage clinic appointment at the Royal Free in May. Has anyone had any experience of them?

Got my thyroid results back from the GP (he tested after the recurrent mc clinic didn't). TH was a little low at 11 but within normal, however TSH was 5.78. All the websites say it should be about 1-2 for ttc. Hopefully we have finally found the reason for the mcs. I think probably the thyroid can't cope with the extra demands of pregnancy and goes hypo :(. Anyone got experiences of this?

hippo my thyroid is hypo as well and I am on thyroxine but unfortunately had 2 MCs even after the meds and diagnosis.

homelander I also have a 2y DD and go to the royal free Hampstead but didn't do the RMC tests there.
Welcome to the thread.

Home welcome to our thread.

Your journey over the past 11 months sounds just heartbreaking and exhausting.

I hope you get medical support for rmc and possibly an answer.
I'm sure you've already asked about causes of placental abruption, but with your other mcs it could be worth getting them to test your autoimmunity. Antiphosphilid Syndrome (? spelling) is one contributing factor in PA.

I only found this out because I thought I might have had a PA as I went into labour with my second ds, as it started with a significant bleed. I haven't talked it through with anyone yet, but I am having my second blood test to see if I do have APS.

Triple I've had all the usual blood tests and only the antibodies one came back with any anomalies. I've had scans which show everything is in place, but that is it.

My hospital is small and provincial and has one consultant who has an interest in rmc. It's all been a bit of an uphill struggle, but I remain hopeful that it might be APS and treatable...

Fucking knackered though. Keeping on going is such hard work. I'm nearly 42 with 2 kids and 2 step kids, a full time job (when I'm there!) and my first proper flare up of arthritis. I feel about 104!

homelander welcome to the thread and so sorry to hear of all you've been through. I hope you get some answers from the postmortem and your tests at the Royal Free. Whilst understanding why losses happened doesn't make them any less sad, it does make it easier to move forwards and decide if it's right to try again.

hippo I have a friend IRL who lost 2 pregnancies at least partly due to hypothyroidism (one also had Turner's syndrome) and your TSH sounds very high for TTC. I would try to get yourself onto thyroxine and not TTC again until TSH has come down, then you need to have an increased dose of thyroxine as soon as you get a BFP and regular monitoring of TSH throughout pregnancy (every couple of weeks) with dose adjustments as necessary. My friend has had 2 healthy pregnancies since her diagnosis

tanny nice to see you back on the board a bit more. have they investigated the possibility that your arthritis is connected to the MC? Have you been checked for rheumatoid factor?

Baking I intend to mention it when I go to my GP next week, but I think it is osteoarthritis rather than rheumatoid. It runs in my family and my symptoms are of osteo. That said, this is my first attack on this scale, it's only ever been a dull ache in hands and feet before, and occasionally hip pain. This is full on, hips, knees, ankle, wrists, toes and stiff neck. All with pain and weakness. I have wondered if there was a link to the mcs, or at least to the stress I'm currently experiencing.

My mum and grandma both have/had it and were my age when it started to get worse.

Sounds miserable, poor you I don't know a lot about arthritis in people but certainly in animals multiple joints and flare ups would make me think about autoimmune/rheumatoid arthritis. Hope the GP can help you feel better.

Thanks. I definitely will mention it, because, as you say, with my history it might be significant.

I really don't want it to be rheumatoid arthritis though

My elbows are fine! Silver lining and all that!

Thank you baking. The stand in dr wasn't sure so he has reared me to obs. I think I will arrange an appointment with my usual dr soon and will def get it sorted before trying again. More time wasted but at least there is some possible reason I guess.

Referred, nor reared!

Hello, I was hoping I could join you all for some sympathy and te drinking and to go round and round in the emotional miscarriage roller coaster.
A little about me;
I am 33 DP is 31
1 Dd aged 6- ex husbands
New DP and I have been trying for 3 years and managed to fall pregnant and miscarry 5 possibly 6 times ( weird chemical pregnancy thing this month?)
Fed up with a non conclusive series of tests and about to embark on a dr quenby visit in June ( due to holidays in May, lucky girl I have 2 booked :-) ! )

Parents don't seem interested and seem to get advised to relax and it will happen on a regular basis ( I can assure you all I have not been stressed continuously for 3 years ! ) and I am ready to scream.

Anyway enough of me I hope you all don't mind but going to grab a cuppa now and read through your thread xx

Hi dildoos glad you decided to join us. The thread is quite quiet at the moment but it's because a lot of the longer term posters have successfully graduated to pregnancy threads so we won't complain. I really hope Prof Q can help you too, there are several people heading to Coventry in the next few months if you read through.

Hi dildoos I might see you there in June

I am waiting for my AF after my last mc (5th) and then one more cycle before i book my appointment...

Hey everyone. I've been avoiding the forum for a while, just getting some headspace really. Got my first appointment through for the MC clinic, which is in just over 2 weeks.

In your experience, will they do any of the tests there and then, or is it more a q and a session? Not really sure what to expect, how long we'll be there etc.

thanks!

in my first appointment at st mary's they did scan + bloods and went through a giant questionnaire i had to fill out in advance...

Thanks Tiny. I've asked work if I can work from home after the appointment as I don't know how long I will be there (its at 11.15am) or whether I will get back to work.

I'm a bit nervous.

Mine were in 2011 so can't remember too well, but it did take a few hours...

seeing someone to get weighed, then queueing for a scan, then seeing the Consultant to talk through stuff and the scan results, then off to do the bloods and book the next appointment.

Ok that's helpful, thank you!

Morning all,

So I've got my Prof Quenby results and I am..... TOTALLY NORMAL. As usual. Got my 15 min phone consultation tomorrow evening so I will see what she says re the next step. I've done my first month on the day 21-28 progesterone and that did make my af seem more 'normal' so I expect the lining did benefit. So I guess I'll carry on with that strategy until further notice. Seems I'm well and truly in the 'bad luck' camp :/
Welcome to all the newbies, I hope you get some answers soon.
Waves to the regulars :)

Hi just I don't know if that's good news or not? Probably is in terms of chances of success, but frustrating to not have a diagnosis still. She may well recommend the day21 progesterone and possibly clexane anyway, it was only the steroids in my protocol that were directly related to NK cells. Keep us posted....

Thank you for the welcomes.

Salt- at our appointment we didn't get scanned however was revered for that, but we did have blood tests including chromosome analysis for myself and DP and had already had sperm count checked but if hadn't been done I know they would have carried out this test too. Good luck hope you feel satisfied with your visit. May I suggest you write any questions down you may have as I was so nervous I forgot half the things I wanted to ask.

Just- how are you feeling with results? Relieved that your normal or disappointed as a high nk cells result would have given you an answer to your past history? I get really upset when tests results are normal as want an answer yesterday!

Xx

Tiny tear- yes I have calculated if all goes to my smooth 28 day cycle with my perfect 14 day ovulation I will be due to go on the 24th June which is a Tuesday and I am sure they said they only do a Monday or Friday pm so will that be the Friday I go? As that's then 13 days after ovulation. Can anyone advise me on this please?
Also will dr Q maybe pop me on mess anyway in the meantime before the results are in?
Sorry for all the questions.

Good luck to you tiny, have you calculated when roughly you willbe attending in June? X

Not a clue has it's been nearly 6 weeks since the mc and no sign of AF... I bet it will come to ruin my Easter...

I think it's 7-10 days post ov so the Monday should be fine. They won't want it to be too close to your period or the lining will be starting to break down.